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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

Charlie gard case thread 2

954 replies

Fancythat69 · 08/07/2017 20:22

The last thread is full, Not sure if another has been started.

Theres a CA rally at GOSH planned for tomorrow. What are these people on?

Charlie gard case thread 2
OP posts:
Thread gallery
16
nolongersurprised · 09/07/2017 10:44

I doubt Trump could even spell "mitochondria", let alone have any awareness regarding how a mitochondrial disorder could cause devastating problems.

Original poster
Fancythat69 · 09/07/2017 10:46
Angry
Charlie gard case thread 2
OP posts:
CaveMum · 09/07/2017 10:47

Trump was jumping on the bandwagon. No doubt intending to use the case as another excuse to get rid of ObamaCare and other forms of "socialised medicine".

muckypup73 · 09/07/2017 10:49

Oh my goodness are they taking the piss? Taken from twitter...........

Charlie's Army HQ: The New MK1 single is now out and available to download!! On @iTunesMusic or @amazon !!! #MK1LetGo

muckypup73 · 09/07/2017 10:50

Sorry guys, wrong charlies army lol I think

Rinoachicken · 09/07/2017 10:51

Wow, so now she's insulting all the mothers out there that have had to face the same scenario and made the race and selfless choice to let their children go. Accusing them of not being proper mothers because they put their child's needs before their own.

That's really really disgusting actually.

GinSoakedTwitchyPony · 09/07/2017 10:51

Sostenueto, I know that Charlie will receive palliative care.
My point was that to use the words 'removal of care' twice is emotive and misleading. Care will not be removed. Do they seriously think that Charile will just be abandoned by HCPs after the ventilator is removed?

Anniegetyourgun · 09/07/2017 10:52

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Maudlinmaud · 09/07/2017 10:52

I haven't the words

Ellie56 · 09/07/2017 10:56

goodbye I posted this link earlier. Trump might have moved on but others are getting involved now.

www.dailymail.co.uk/news/article-4678532/We-ll-make-Charlie-Gard-American-save-life.html

Can't believe Connie is sitting making posters instead of sitting with her son. She really has lost the plot.

MidnightAura · 09/07/2017 10:57

Being niave here but what does a song have to do with Charlie? Does he have a charity song and I just don't know it?

MargaretTwatyer · 09/07/2017 10:59

That is outrageous. They love the media attention more than their child

would you not want to spend every second with your dying child?... its bloody cruel what they are doing

Some of the things being said on this thread are horrendous. CA might be a mob but clearly several posters on this thread are no better. There are horrible comments and diagnoses from looking at pictures which really are horrid.

Rachel Johnson has written a piece today about how very hard it is to be rational and make good decisions when your child is very ill. Something some of you might like to consider from up there on your judgemental high horses.

goodbyestranger · 09/07/2017 11:00

Ellie I don't think citizenship will be granted unless Trump is on board.

I just hope a wardship application is made asap, hopefully tomorrow immediately after the court hearing on the main issue.

MidniteScribbler · 09/07/2017 11:03

#IAmCharlieGard. No you aren't. You are not stuck in a hospital, unable to eat, cry or even breathe on your own. I don't know of any adult that would say they want to be kept alive in such a state, but apparently it's ok to do it to do a baby. #ThankGodI'mNotCharlieGard would be more appropriate.

alltouchedout · 09/07/2017 11:04

This just gets worse and worse :(

Tupperwarelid · 09/07/2017 11:05

There is a very sensible emotion free article in the Sunday Times today about the issues. It's worth a read if you can get hold of it

flatbreads · 09/07/2017 11:05

Margaret I think that this thread has been very measured.

muckypup73 · 09/07/2017 11:06

MargaretTwatyer, I saw what my parents went through when they had to withdraw care for my brother who had severe cerebal palsy, they could have kept him living, but it was invetable that he was going to die anyway, it would have been cruel to keep him alive, and that is why I feel as strongl as I do about the subject, so I am sorry forhaving an opinion.

annandale · 09/07/2017 11:06

I actually hope the parents take more time away from the bedside, though ideally to rest or do something nice. The last 8 months must have been stratospherically gruelling.

I think as well that some of the 'hasn't he grown' coments might come from a place of unease in fact. An awful lot of the activists have had sick or dying children in their families as many of us have. So much pain- i srill can't se how they can campaign in the way they do but it's not all about ignorance.

goodbyestranger · 09/07/2017 11:10

Margaret I've been there, in an American NICU, having been told my child would very likely not survive, and I acted exactly like Rachel did. However, Charlie's mum's behaviour goes way beyond the 'normal' in this abnormal situation and is impacting on so many other people that it's a long way off the scale. It seems a fair call to say her actions indicate self absorbtion to an unnatural degree and if it was affecting only herself, fair play - but it's not.

missdoings · 09/07/2017 11:10

Back in court tomorrow then? Yet more legal fees having to be paid out by GOSH 🙄

Stopnamechanging · 09/07/2017 11:12

*Today 10:59 MargaretTwatyer

That is outrageous. They love the media attention more than their

would you not want to spend every second with your dying child?... its bloody cruel what they are doing

Some of the things being said on this thread are horrendous. CA might be a mob but clearly several posters on this thread are no better. There are horrible comments and diagnoses from looking at pictures which really are horrid

Rachel Johnson has written a piece today about how very hard it is to be rational and make good decisions when your child is very ill. Something some of you might like to consider from up there on your judgemental high horses

Huge apologies if I have got this wrong but were you not on the donations thread to GOSH, implying that the hospital had done something wrong?

Sadly, if you had read the previous thread linked to this one, many posters have been in this situation and you are therefore judging them for taking a different path.

Do you care about the other children in GOSH ITU being affected by this? The staff? The other parents?

MusicForTheJiltedGeneration · 09/07/2017 11:16

Whatever the outcome, they will be held responsible. If the treatment is tried, but fails (as it inevitable will), they will be criticised for not carrying it out months ago. If they continue down the same route of allow him to die with dignity, they will face more accusations of murder

Exactly. GOSH is, and always has been, in a lose-lose situation with this.

LetsGoFlyAKiteee · 09/07/2017 11:19

They want to send a get well card to Charlie...

I don't think GOSH be to effected by this. Step away from CA and the responses are fairly normal. Once it's over whichever way it ends which sadly or in a way not can see how..the Army will die down and leap onto the next thing and forget about this whole murders thing

Puzzledandpissedoff · 09/07/2017 11:20

Rachel Johnson has written a piece today about how very hard it is to be rational and make good decisions when your child is very ill

And she's right - but isn't that why it's worth at least trying to listen to the doctors' advice? Nobody's suggesting the parents should treat them like gods whose every word should be followed without question, but taking every opportunity to slander them hardly seems wise either

Maybe I'm wrong, but I honestly think there's a point where natural, grief-driven opposition can easily turn into something less acceptable