AIBU to think that thousands of people loving charlie and bradley is some what false.

[Lonelymummyof1]

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

They don't seem to be the brightest bunch... here is one messaging a Sky New bot.

No, they don't. I saw one of them questioned why the MRI was in the name of Charles and not Charlie.

I think criticism of the parents is unfair. I cannot imagine they are in the right minds. I cannot say I necessarily agree with their choices, but honestly I can't say that I wouldn't act a similar way if it was my DC, because I just don't know. I would hope I would always act in my child's best interests, even if that meant saying goodbye, but who can say until they are in such a unthinkable position? The thought is just utterly horrific.

I don't think it's just about Charlie , though , or indeed any poor poor child . It just strikes me that the loudest voices in almost any issue you care to name , from Brexit , to poor Charlie , to Grenfell , to the NHS , to issues with schools , anything , are always far more vocal about their perceived 'rights' than their responsibilities . And anything that challenges their beliefs , however deluded , or just plain batshit , is automatically a cover up, a conspiracy , or that irritating as fuck phrase 'not fit for purpose' .

Cross posted with alpaca re: Charles/Charlie.

Flaps and the man who posted it was called Charlie!!

I do not think anyone things the parents should not be effected or sad or even look for alternative treatment.

Oh it was a woman I saw query it alpaca. "Great" minds think alike I guess?

I get that hospitals don't always agree with parents. I know mothers repeatedly offered abortions then early inductions for babies with genetic issues and babies refused treatment but do people really think 10 months in the hospital would falsify information for a baby that could be saved just so they don't have to??

Momma The barmy army say his milk is being drugged to keep him sedated, that GOSH are preventing him from going to the US because they will "lose face" if he is cured, and that the court is "in the pockets of GOSH".

This is a small group of very thick people.

You've made an excellent point Autofillcontact

Charlie's parents have conducted themselves in an unusual way. Their utter refusal to accept their son's condition is also unusual. I have no doubt at all that the HCPs involved have tried to make the situation crystal clear. I'm sure they've had access to counsellors. So who are these "yes" men who've allowed this campaign to run on and on and on, and what has been in it for them?

Hey You make a good point. Perhaps a family member behind the scenes?

There is a lot of money floating around. They've got a slick website up.

Yes thats exactly it.

My DD had a 0- 5 percent chance surviving birth, we had a family opted not forced opted for pallative care.
When she was born she against all odds cried and took her first breath her self !
So they had to intervene.
They intubated her and took her to ICU knowing her lungs were gebuinly extremely under developed.
It was 12 hours later she crashed on the ventilator and they put her on a machine that was above a vent called a oxcilator and full nitric oxide.
They explained straight away that it would be down to her and her lungs whether she would survive.
They could not keep her on the machine forever.
We were lucky in some ways that her lungs did get better on the machine.
But unfortuntly more medical stuff followed.
At the time i was heart broken of the thougut that i may have to make that decision to turn of that support.
But I knew I would of agreed and it was not their fault.
During the pregnancy i was imformed of a trial at kings college that was a procedure that i could have whilst pregnant to the baby.
It was the only hope at the time i had but i never went for it.

lonley I remember my little girl being on the oscillator, awful awful sound from it and so terrifying the way our babies shake on it. Like something out of the 50s.

Luckily she came off it otherwise she wouldn't be here now, can't fly with that machine lol.

Oh Lonely I cannot imagine what you and other parents in similar circumstances are going through .

I am going to make a donation to GOSH now, be good if all this could somehow be turned around even in a minuscule fashion for the better.

Oxcilator*

The Charlie's army POV is just absurd. The poor staff at GOSH, some of them must be pretty scared.

Its genuinly very upsetting to hear murder being used, and seeing a hospital that has fought to save mine and many others being dragged through the mud over 1 case.

It's reaching the point where the confidentiality and professionality barring GOSH from being able to refute any of this is becoming damaging to them and it must surely have long since passed the line into libel (or slander, never quite sure on the legal difference) and defamation. All credit to them they are still prioritising their patient and his family at such a cost to themselves. I'm all for free speech but in cases this extreme I'm starting to wonder if there needs to be a development to the rules around confidentiality to prevent such a one sided narrative being allowed to take such hold without balance.

Very well said, MissHavisham's.

Also, I thought there had been a ruling that none of the clinicians involved were to be named, but there's someone in CA who has mentioned a name twice today. I wish I knew where to report it.

www.gosh.nhs.uk/frequently-asked-questions-about-charlie-gard-court-case

GOSH have put this on their website

The children chanting about hospitals murdering babies really shocked me. Those poor kids must be terrified

Venusflytwat someone posted it but doubt be on there long as it's negative..and uses fancy words

I am commenting on it the fancy word part did make me laugh.

Oh and they now want to contact the judge who was involved as he may need to see this evidence..and the reason no media turned up may be down to GOSH...

I read on the Charlie's Army fb page (I know, it's like I can't stop looking at it) that someone had actually contacted Judge Rinder - and there was no joke.

I don't understand (after reading the FAQs but also before) why people think the treatment will help him? If the treatment is meant to help some symptoms and give a better quality of life then surely there has to be some quality of life before they do it?

Like in my daughters case (heart transplant) if she were to show any signs of not having a decent quality of life then she would not have been offered a heart. So say she got offered a heart but then had a stroke or a seizure that day, she would be assessed and if determined that she had a lesser quality of life than expected that can't be dealt with by having a new heart, then she would have been refused the heart. Would it have then been ok for me to slag the hospital off? Would have been ok for me to say they were going to kill my child? Because the inevitable would be letting her go, the heart would be the only thing to save her and if she didn't qualify then there would be no reason to keep her alive.

This is what I don't understand, they know the treatment won't magically make him all better as the damage is done, so why do people insist they are taking away his chance at a decent life?

I've said this before on fb posts and I've been accused of wishing all disabled people who are on ventilators etc dead. I'm hoping on here someone can see what I mean.

This has been a great thread and very informative.

Tramp are you kidding me? Fs these people haven't got a brain cell between them.