AIBU to think that thousands of people loving charlie and bradley is some what false.

[Lonelymummyof1]

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

I should probably state before people think I am some sort of monster who does not care..

I do care.

When I was 32 weeks pregnant I was offered a termination as I was going to give to a baby with a lung head ration of 0.2 with a very slim chance of surving.
I watched her go through hell and still do for for 3 years.
I get the heart break, i get what the parents are going through.

I do not get the supporters and I do get the hospital x

Lonely, I have to say, having followed your DDs story since she was a small baby, I do feel I have an affection for her. Her videos make me smile and laugh. She's in my thoughts when she has been through her worst treatments and illnesses. I've never met her but I am rather fond of her!

Rhodiolo please tell me who you are 😂😂😂😂😂😂😂😂😂

I have been trying to guess since yesterday haha

Same person as last time I named changed on here.

Oh hahahah

Well you will know then I have nothing against sharing things on personal facebooks etc
Same as many of the children we probably share common followings for.
However you will also know there is no tabloids / press / fundraising etc around my DD :)
Thats the way it will stay haha
I mean tbf her idol is not famous so that might of helped keep it away

The hysteria and ignorance displayed by some of the 'supporters' is breathtaking.
On the Great Ormond Street Hospital FB page there have been awful comments directed at the staff.
Many of these people are coming across as unhinged.

Apparently they're staging a protest outside Buckingham Palace at the moment, there are about 40 'supporters' and a bunch of perplexed tourists looking on.

You sound very wise and very sensible lonley your comments have been a breath of fresh air amongst all this chaos.

Lonely that's sensible. I can see why parents do choose to go public to raise funds and awareness etc but at such a critical and personal time I'd just shun the media and concentrate solely on my child. I think, I've never been in this situation with my dc thank god and touch wood. It all just seems so horribly intrusive and I don't believe it's helping anyone. Very very sad indeed.

Can anyone clarify how the vociferous Italian element got drawn in to Charlie's online following? Is it via a Catholicism/Vatican connection?

I just watched some of the "live" protest. They are barmy. Yelling "Gosh are killing a baby" in front of their own children at bewildered tourists.

Lonely, I admire how you handle your situation and how you cope with your everyday life. Twinkletoes is a credit to you, she is utterly adorable.

I just do not understand the whole thing,
The supporters are just making it worse making things up that they have done to be heros etc.

Also you can do things for someone without publicly having to tell everyone what you done !

My previous thread about daughters ballet teacher !
Not once not even on her ballet teacher page has she asked for recognition.

The thing is as well it would be busy as probably a lot of the crowd are confused tourists! The chants are horrible. The whole thing is horrible how is this helping?!

I think people genuinely believe that the nhs is limited by funds and does not offer cutting edge treatments. So many stories in the press about x drug being "too expensive" etc.

What people don't realise is the nhs is actually right up there with the best. We have people from all over the world train at our medical schools and in our hospitals. Nobody is refused treatment, which often means experimental procedures are tried which wouldn't be given the go ahead by insurance companies in the us.

but it now seems to be the default that the nhs can't or won't offer the latest treatments. So from the minute of diagnosis people are crowdfunding for treatment in america or germany- under the assumption the nhs isn't as good.

The nhs does fund treatment abroad, if it is deemed benefical to the patient. I know one little girl who was sent to the us for proton beam therapy, funded by the nhs, as it was agreed she would benefit and the nhs didn't have a proton machine at that point.

I never donate to crowdfunding for "treatment abroad" as it's pretty much never needed.

It makes no sense at all to do their protest at Buckingham Palace. (Although the "message" of the protest is unclear too.). Why there? Of course the tourists will not have a clue what it's about.

I think it's terrifying for a child who may be being treated at Great Ormand Street, to hear this being spouted in the street. It's shameful and disgusting and as horrible as I am about to sound, with Charlie's inevitable death it's only going to get a whole lot worse.

I'm almost thankful my child isn't treated by GOSH as I can tell you for nothing I wouldn't be able to go to an appointment without possibly arguing horribly or punching someone if they tried preaching this shit to my face.

I'm sorry, I haven't gotten extremely angry just now as I decided to (for the first time) nosey at the Charlie Facebook pages and I wish I hadn't now.

Growing up near by the area and some people there do go mob heavy which is probably why it's so shocking. The local then centre can be a bit Jeremy Kyle.

It's terribly sad, I cannot even imagine what they are going through.

However to be so cruel about the staff and GOSH is unacceptable, do people think it's easy for them, some of them have none him his whole life, in life we try to be professional but we can become attached, it's human nature I'm sure they'd all love nothing more than to say he's well and can go home.

This definitely seems false. Blue hearts and that harmless but these protests however.. Especially as you don't know whose talking past. People with children in hospitals..children themselves and hearing all of this. Questions the sanity

I've seen some of the stream of the Palace 'protest'.

The chants of 'Gosh are killing a baby!' are horrifying and absolutely vile. This should be a very ill little boy spending his final days quietly, and in privacy and comfort with his parents. The whole situation has become a media frenzy and has led to a shocking promotion of hate towards a lot of people who have almost certainly done nothing other than do what they truly believe is best for the welfare of this child. I feel the parents grief has been manipulated by the press and idots of social media. This isn't about Charlie any more, it's about mobbish ignoracy.

I really hope GOSH don't suffer too significantly from this, I think I will go and donate to them, I also hope little Charlie with pass away with peace and dignity and his parents will be fully supported in the right way.

*Ignorance! whoops

Also there's a comment about what people should say if interviewed by press..along lines of GOSH will want their own post mortem/make it private so can't be known that it actually is all cover up and they've got it all wrong..and different coroners may also be bribed to stay quiet...

The thing is a lot of supporters are willing to spend time posting utter rubbish or exceedingly unwanted and untrue statements are the same people who have no idea - and cannot be bothered - to understand his condition.

It came up at work last week.

A female colleague was reading the Fail and commenting on how terrible GOSH were not to let him home.

I asked what did she know about Charlie's condition? Did she even know what it was? Did she have any idea about the technical difficulties in moving such a poorly child whilst still maintaining a high standard of care and pain relief?

Obviously no, no and no. Yet people still seem to think that the medical team and outside experts who've assessed and treated Charlie are hiding something. Why? I can only assume that some people thrive on a cause and enjoy the sense of righteous indignation they embrace - even in the face of compelling professional evidence that they are wrong. As another poster said in a few weeks there will be a new cause and all the blue hearts and nasty posts will be forgotten.

Its actually concerning
What do people think oh we saved too many lives this year so this one has to go.

Indeed - it's a known fact that medical professionals who specialise in paediatric care hate children