AIBU to think that thousands of people loving charlie and bradley is some what false.

[Lonelymummyof1]

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

It's herd mentality at it's worst. As EB123 says, they're all trying to out do one another with their 'heartbreak'.

Highly unlikely any of them have the first idea what the baby's condition involves or how it's affecting him, or indeed what the parents are going through.

Ignorant people with no filter.

Yeah there's the same sort of shite being posted on some of the Reddit boards, saying this is what happens when you socialise healthcare etc etc etc. Completely discounting the fact that GOSH seriously looked into the possibility of carrying out the therapy, and if they were in the US the parents would be finding the treatment and legal costs themselves. And don't even get me started on #jesuischarliegard. Completely out of line highjacking that.

Exactly, MrBob.
It's horrible.

I think the two cases are different.

Charlie's army is bringing down a world class hospital and may, in their ignorance, result in the deaths of other children.

I will say that the photo's of bradley once treatment was ended were bittersweet. I thought it was a positive message on end of life care- that the treatment was so damaging and once it was stopped and all his tubes and paraphernalia removed he seemed much more comfortable.

This angers me a little. I've been following the story for almost a year now of a little boy who's recently passed away. His parents posted stuff on both Instagram and Facebook and he had quite a few followers. I've never met them but have been commenting on their posts, especially since he died.

I've shed many a tear over this little boy. The comments I've made are genuine and heartfelt. As I think are others who comment who also haven't met him. I weep for his parents and their obvious raw pain.

Although obviously my previous post is in response to the op not a comment on how people have been making uneducated and uninformed comments on poor Charlie and his family.

Oh and the little boy I'm speaking of was at gosh and the care he received was incredible. His parents have received strength and solace from their postings on social media, I really think it's helped them cope.

I commented on a charlie gard post on Facebook. I commented that letting him go was the right thing to do in my opinion.

I detailed a bit about my child (who is still here) and how I and my partner chose to turn her machines off as she was suffering and I couldn't bear seeing her like that any more.

I got really slated by one woman. She said I was sick that I wished my daughter was dead, she then went on to say (without me even disclosing my child's condition) that I am disgusting wishing my child was dead because my child was alive and healthy with no health issues what so ever.

I was dumbfounded, I cried and then I got angry and I posted a picture of my child after her third arrest (without sounding awful she looked dead) and explained that my hold has had a heart transplant and I won't lie, I called her a dumb fuck for saying what she did. My child will always have health issues and I live with a smal fear of when her heart will give out as it's not a forever solution.

I'm sorry for the rant I was just so upset that people that have no idea about having a sick child and anyone who suggests it's nicer to let him go gets called a murderer could say that I wanted my child dead and had to cheek to say my child has no health issues at all.

Needless to say, I never got a response back from her.

I find it sick though that people can jump on the hysteria bandwagon and make it all about them. The parents, and I'm sorry to say this, started off meaning well but have now become liars and very attention seeking.

so sorry to hear what you and your child went through and even more so though not surprised at the response you get! No one on there seems to listen to reason or actually read what others have written who aren't supporting them.

The protest seems so false!!! It's not supportive or caring it's because they have looked at a scan and jumped to conclusions..if that's even what's is about bit confused on that..

I don't think they've become liars. I think they've become increasingly desperate and people around them have encouraged them to take this as far as ten can rather than having the hard conversations about accepting things and letting him go.

It really is horribly sad. They haven't been served well by their people.

There is some degree of lieing though, the doctors would of explained the mri fully.
There is no proof in that mri report without the original report ecg results etc.

I think there is simply a vicious circle occurring.

Originally I think Charlie's parents wanted and encouraged the online support as part of their legal challenges. It may well have provided them strength at a time of great heartbreak and also funding for potential treatments.

However as each legal case has failed the response has been to up the anti each time. The supporters make increasingly spurious and ill informed claims and that whole dynamic encourages ever more desperate responses from the parents - which then feeds the frenzy further.

The criticism of GOSH - the very institution that has offered outstanding care to Charlie is very upsetting to hear.

I think there is a very toxic dynamic at play now that serves no-ones best interests.

Families I've known with very ill children have done nothing but praise the care their children have received and went to on actively raise money for equipment by way of showing their support. This case has been a huge drain on GOSH resources and may well impact donations going forward. I think that's a very sad legacy.

I should elaborated when I referred to them as liars.

They keep using their opinion to say how well Charlie is, to me that is lying as opinion is not fact.

They lied to the American doctor about Charlie's condition and its severity, he said himself he wasn't made aware of how bad Charlie is before he said the treatment could work.

It's their first child so they have the time for all this press, all I can think is why are they not spending and enjoying time with him before it's too late.

I feel like I am in a position to say this because I have come so close to letting my child die. As a parent I made that decision, they just can't accept that the doctor has come to that decision instead.

I also don't understand why they want him to suffer for the sake of a few months? It's cruel and I can't condone it.

Before having my child that had the transplant I would have urged more on the side of trying but there still has to come a point where you call it a day. I realised that with my little girl and I hope they learn to accept the decision made. Now is about enjoying some time with him and saying goodbye.

GOSH is one of two hospitals that provides heart transplant operations. All of those supporting a protest should refuse any care from this hospital for themselves and their children and should also hope that they can make the decision to let their child die if they get offered a bed in GOSH for a transplant.

Many people are (in my opinion) being very silly and not thinking of their possible future and the needing of such services.

We are under GOSH aswell.

( lung disease, complex congenital heart disease and complete intestinal failure)

I met his parents ( avoided the situation tbh ( as the outside smoking brigade recruits and I just can not turn against GOSH.

Ooh i wonder if i went on charlies army page and suggested we all boycott GOSH and refuse to have our children treated there as they are murderers..

Interesting test of Darwinism?

Don't agree with children being put up to this as well. Messages of support etc yet how?!

Lonley I'm not even under GODH, but there were an option.

Basically my daughter needed a Berlin heart (machine to pump her blood around her body from the outside) hope that makes sense lol and the Freeman in Newcastle and GOSH are the only two places to provide that. So we were waiting on a bed and it was basically whoever had a bed first is where we went, it happened to be the freeman but it could have so easily been GOSH (sometimes I wish it was as my friend lives around the corner) instead we were quite lonely to begin with at the freeman but we met people and have a little support group kind of thing and ask after each others children all the time and discuss things others have gone through that we might be etc. So a lot of respect goes to GOSH from me, as it could very well have been them that saved my child.

I'm angry that people are willing to scare children and parents visiting by standing outside and protesting and using words like murder and die. To me it's pretty similar to standing outside an abortion clinic with pictures of dead fetuses and it's just such bad taste no matter what your view is.

GOSH they were

I bit my tounge on the charlies army group until just now when i read someone saying they have spoken to a doctor at another hospital.
Who apparently got back to then with a whole story how they have been fighting against gosh and them as doctors have been in talk about charlies case etc

Since when have doctors openly discussed other peoples cases with strangers

They shouldn't and that is a breach of privacy, they should be reported.

It's sick how some people have such issues with seeking attention that they will go to these lengths.

I suspect that the person who is suggesting the other hospital is about to leap in and save the day is not telling the entire truth. She even claims to have sent a copy of the MRI to the "doctors" she has been talking to. Meanwhile someone else is talking about a movie being made of all this. The whole thing is getting horrifically out of hand.

Lonelymummyof1 think just read your comment..talking to much sense!
Wonder how much of this is made up..Guessing most

Haha yes you probably did.
Its so heart breaking, I know alot about mitochondria I know alot about how hospital systems work.
Everyone has lost the plot.

Can I just say that I really think this thread is 'mumsnet at its best.'

Strong and forceful comments said with nothing but compassion, sense and intelligence.