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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

AIBU to think that thousands of people loving charlie and bradley is some what false.

999 replies

Lonelymummyof1 · 01/07/2017 07:29

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

OP posts:
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HarryHarlow · 05/07/2017 17:37

You are mentioning his family

Stopnamechanging · 05/07/2017 17:39

Yes, I am allowed to do that. You are not morally superior for saying that I can't.

Selling air fresheners with a dying baby on it is wrong (in my opinion).

Puzzledandpissedoff · 05/07/2017 17:40

You are talking about a dying baby in a glib, distasteful way here

Actually, all I've seen on here is fully justified compassion for Charlie - and mostly for his parents too, come to that

Isn't it possible to empathise with the dreadful situation they find themselves in and to understand why they've made the choices they have, while still regretting some of those choices for Charlie's sake?

HarryHarlow · 05/07/2017 17:44

Not during what is quite possibly the final few days of his life, no. That is distasteful to me, sorry

LogicalPsycho · 05/07/2017 17:45

Charlie's parents are sadly unaccepting of how gravely ill he is, but there is absolutely no way they're under the impression that Charlie would be flying back from the USA and going home.
Even the people offering the treatment have said Nucleoside therapy is not a cure, and that he would still be very ill.

So realistically, they're actively encouraging the destruction of a GOSH's reputation so they can go to the USA- knowing that they'll be straight back under GOSH's care after returning to the UK.
That makes me feel a bit ill.

QuackPorridgeBacon · 05/07/2017 17:45

Then go away.

LetsGoFlyAKiteee · 05/07/2017 17:48

What I find funny is getting all exciting ooo on this morning..loose woman..let's get Theraea May involved..soon as goes against them they're slagging them off

Still amazed by the whole ooo look Arsenal fc are on our side..who is Jivearsenal?!

Like said before Charlie has been forgotten about it seems. All about who can get replies and whose child/baby cares the most

HarryHarlow · 05/07/2017 17:48

Is that the best you've got?

QuackPorridgeBacon · 05/07/2017 17:48

I've been called awful names and accused of being an awful mother who wishes her child dead, apparently my daughter (after having a heart transplant) according to charlies army, has no Heath issues whatsoever and I am sick for wanting her dead. I stand by anything I have already said about them.

JaneEyre70 · 05/07/2017 17:50

I find his parents social media usage equally distasteful.

GinSoakedTwitchyPony · 05/07/2017 17:51

Best not to engage.
If the thread descends into a bunfight it will be removed.

Stopnamechanging · 05/07/2017 17:52

I've been called awful names and accused of being an awful mother who wishes her child dead, apparently my daughter (after having a heart transplant) according to charlies army, has no Heath issues whatsoever and I am sick for wanting her dead. I stand by anything I have already said about them

Quack I saw those comments, that's what prompted me to post originally. Nasty, bullying drama chasers.

Stopnamechanging · 05/07/2017 17:53

True Gin, it's quite deliberate.

QuackPorridgeBacon · 05/07/2017 17:55

Harry yes it is, I don't want a fight or a debate just a discussion with like minded people. I used the words go away because I'm not going to give any reason for this thread to be deleted. If you don't agree don't bother coming back to read if it upsets you.

Quartz2208 · 05/07/2017 17:55

What is distasteful is the venom they are sending towards GOSH, the NHS and the British legal system. They are angry, they are flailing and the situation they find themselves in is terribly horribly sad. But NO ONE is to blame, NO ONE can do anything and they are inciting up a set of people who clearly have no clue as to what they are doing or what they are talking about.

At the heart of this is a little boy who is suffering, who should have been allowed to go peacefully onto the next stage. Not become this.

QuackPorridgeBacon · 05/07/2017 17:55

Stop it's taken everything I have not to et upset at the comments directed at me.

Puzzledandpissedoff · 05/07/2017 17:56

That is distasteful to me, sorry

No need to apologise - we all have different ideas of what's acceptable or not, so I guess we'll just have to agree to disagree on this one

Personally I'm very glad to see so much empathy with the parents' distress, but still feel that in choosing to plaster their case all over social media they might, perhaps, have given up the right to expect folk to say nothing except what suits

NerrSnerr · 05/07/2017 17:58

What I have seen in this thread are posters who are upset by reading CA and the effects this campaign is having on a very poorly child (his life being prolonged when it's likely he's in pain). That is why I have been posting.

DearMrDilkington · 05/07/2017 17:59

I've reported the CA group on Facebook. Maybe if everyone on here does it, Facebook will remove it?

Some of the comments on there are disgusting and aren't helping the parents at all.

SerfTerf · 05/07/2017 17:59

You are talking about a dying baby in a glib, distasteful way here.

That's a bizarre, inaccurate description of this thread.

You must be here to mudsling and derail.

DarthMaiden · 05/07/2017 18:02

Harry you clearly want to be goady.

The fact is that many of the posters on this thread feel a huge sense of compassion and empathy for his parents situation, as they have sadly faced similar scenarios.

However being sad and sympathetic to their position doesn't also have to equate with either understanding or even agreeing with the way in which they, their wider family and supporters have sometimes conducted themselves.

The accusations, falsehoods and abuse being posted on social media sites controlled unchecked by the family about GOSH, potential treatments and the severity of their child's treatment is concerning.

Its impacting the reputation and funding of an excellent hospital and in turn their ability to care for many other desperately ill children.

It also must be hugely distressing to families who have accepted medical advice to withdraw life support to read posts that insinuate (or outright state) that that decision was murder.

So yes, I am incredibly sorry for them, but at the same time can't help but feel sad that the campaign they are running is not in anyone's best interests, most of all Charlie's.

HarryHarlow · 05/07/2017 18:03

No, sorry I am not. I read the thread and found it very upsetting, thats why I commented. But I have been told to sling my hook and not challenge your beliefs because it's a discussion for like minded people only

nina2b · 05/07/2017 18:05

No one here is being "glib". People are merely debating the way in which the hangers-on are behaving.

islandsandshores · 05/07/2017 18:06

Challenges with fact, then harry

Puzzledandpissedoff · 05/07/2017 18:06

The accusations, falsehoods and abuse being posted on social media sites controlled unchecked by the family about GOSH ... Its impacting the reputation and funding of an excellent hospital and in turn their ability to care for many other desperately ill children ... It also must be hugely distressing to families who have accepted medical advice to withdraw life support

Well said, Darth

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