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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

AIBU to think that thousands of people loving charlie and bradley is some what false.

999 replies

Lonelymummyof1 · 01/07/2017 07:29

I know exactly what It is like to have a poorly child same as hundreds more parents in the uk.
Set aside my belief that I believe that bradley has very little dignity and both him and charlie are now used as some weird sort of click bait.

The supporters I do not understand it ?

We love you, we are heart broken and we will miss you.

Now I get empathy but this is not empathy this is media posts just gone crazy to write the most heart breaking post they can.
I wish neither of these children would have to lose their life and can undetstand the parents pain just like the rest of the terminally ill children in this country.

You can feel sad that these things happen but this just seems weird and could not imagine allowing a nation of people watching my child pass away.

I mean how many of them 2 years from now will wake up on the morning of their anniversary and automatically remember them ?

OP posts:
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alpacasandwich · 02/07/2017 22:12

stop I agree. The general public is behind euthanasia for this reason. But there is a vocal minority who are unable to let go, and are incapable of thinking of the person who is suffering.

missmeg3leg · 02/07/2017 22:17

No words cannot describe the "charlies army" fb posts....."nhs a joke"......"GOSH are murderers" etc......I'd better not bother going to work tomorrow then..

stopfuckingshoutingatme · 02/07/2017 22:22

I read about medics who were operating on the front line in a war zone / and when people came in that were in a very bad way they tacitly agreed to gently end their misery

Medicine is so advanced now that it's become the norm to prolong life and it's not fucking fair when relatives do it . Sorry but I have personal experience of this and I feel for everyone involved (patient , family and medics) it's gone a bit crazy

I am not referring to either of the poor children by the way just to the issue overall

Which is why I feel uncomfortable discussing this as I would not want to cast any aspersions /

HouseOfMouse · 02/07/2017 22:25

It looks like one of the main architects of the "protests" today is a 17-year-old digital marketing apprentice. That does make me a little worried that he is motivated more by a desire to make an impact with this "campaign" (for career reasons) and has not really looked into the merits of the case or considered what the message should have been. Of course the fact that the baying mob seem to have been happy to go along blindly with this doesn't reflect any better on them. But I have seen online papers running with the "it's murder" banner, and that is not good.

Seeingadistance · 02/07/2017 22:26

Much love to the OP and all others on this thread whose children have or are in the care of GOSH.

I have just set up a monthly donation to GOSH as a way of expressing my support for them and all that they do.

Birdsbeesandtrees · 02/07/2017 22:28

I also share your concern house

His person is very young and may also not fully understand the situation. As someone else said it's easier to believe it's a conspiracy and it could be stopped if we all just wanted it enough than to realise there's nothing that can be done to save this poor little baby.

LetsGoFlyAKiteee · 02/07/2017 22:33

Just seems very attention seeking..to many huns..

Still can't over the woman protesting in her house!

MrBobDobalina · 02/07/2017 22:35

I also thought the person's age was probably significant.

I dare say his heart's in the right place but honestly.

Yy to posters above and earlier who said that some people prefer to believe that doctors/governments can fix or prevent everything, but choose not to.

Even the number of people I've talked to (apparently intelligent friends) who said that they never realised that IVF wasn't a guaranteed way of having a baby Hmm. They thought you just went along and it was sorted.

Life is random, and it's far too scary a fact for many to contemplate.

stopfuckingshoutingatme · 02/07/2017 22:36

Quack Flowers too

Sorry you read , post and then I bothered to read what you and OP have been experiencing
I have your backs and I am desperately sorry
This whole media frenzy must be so harrowing to see

And I can turn my phone off

You guys can't escape from it so easily
So sorry Flowers

MrBobDobalina · 02/07/2017 22:37

Yes Flowers is so small for the many on here who've shared their stories.

stopfuckingshoutingatme · 02/07/2017 22:42

I know . Flowers and a sad face emoji don't cut the mustard so they

MommaGee · 02/07/2017 23:50

I feel so very sorry the can't take him home to do all the bits they wanted but surely him passing halfway through a transfer, in time back of an ambulance is worse than hospital together?
It took 5 hours to move my son from incubator to travel cot to go in the ambulance and the same time back. There was a risk that the 1 hr journey over to BCH might be too much. If that had been end of life move would you take the risk? He just needs his parents to hold him.

I can't believe so many willing to believe that doctors and nurses who work incredibly long and hard to look after our babies would drug him up just to kill him and the courts would either colluDe or miss that.

His poor nurses :(

converselybranded · 03/07/2017 07:28

I wonder if there should be a media black out this week but seems unlikely. I dread the news, poor GOSH, poor parents of course but this is just beyond horrific now with all those bonkers people out there.

JaneEyre70 · 03/07/2017 08:54

There should be a media blackout now, I can't imagine how his parents are going to react to his passing. I just hope their family step in and take over, they look so exhausted especially Connie. They are going to need a huge amount of support and care after this, I can't even begin to imagine how walking back into their house for the first time in months is going to be for them. I am so sad it had to come to this for Charlie Sad. No matter how any of us think about how they've dealt with this, they still are going through the worst time of their lives.

MommaGee · 03/07/2017 09:02

Agree Jane I do think they believe they're doing their best for him. But its time to leave them to do so peacefully

QuackPorridgeBacon · 03/07/2017 09:17

Thank you stop Smile

FlapsMcGee · 03/07/2017 09:41

I agree a media blackout would be the most respectful thing. I don't think that is what the parents necessarily want though, unfortunately. Likewise Charlie's Army seem to be getting very het up about the lack of media coverage of the protests.

I just hope Charlie's parents get to make the most of the remaining time they have with him. I feel for them so much, I just don't think it's possible to even begin to imagine what they are going through, unless you have been there (which I haven't).

Reading all the similar accounts of seriously ill children on here has really made me think of how many parents must go through something, that no parent ever should. I am so sorry for everyone who has suffered that loss.

AnUtterIdiot · 03/07/2017 10:03

This reply has been deleted

Message withdrawn at poster's request.

Alittlepotofrosie · 03/07/2017 10:47

On the CA page now they're tweeting Donald trump and his family because "he's a good man and he can put pressure on theresa may". Don't they understand that trump has no jurisdiction?

How do these stupid people even function in every day life?

Scrumpernickel · 03/07/2017 10:51

I'd happily boot each member of this 'Army' up the arsehole.

reallyanotherone · 03/07/2017 10:52

I know the parents must be in hell but they have createa monster and only they can stop it now.

Attempts to shut down GOSH, bringing down their international reputation, and having people stop fundraising for the hospital will lead to the deaths and suffering of hundreds of children.

It needs to stop.

Scrumpernickel · 03/07/2017 10:56

Tbh I wouldn't worry about GOSH's fundraising. It's something they're very successful at and a few 'army members' turning against them won't really dent that. Did you know they own the rights to Peter Pan? That must make them a pretty penny.

ARumWithAView · 03/07/2017 11:04

The Donald Trump angle makes me so angry.

Do they realise what Trump's healthcare 'reforms' are going to do to millions of American adults' and children's healthcare?

Do they realise how much Charlie's treatment to date would have cost in the USA?

Do they not see how this case is being warped into an example of why 'socialised healthcare' is wrong? That, even though it's constantly been stressed that financial concerns have not dictated Charlie's treatment, it's being publicised in the US that he's being killed to save money? And that the people spreading this misinformation are American right-wing Trump-supporters who advocate the for-profit healthcare and byzantine insurance schemes which decrease so many people's quality of care, limit their access to care, and are the biggest cause of personal bankruptcy in the US?

So - yes. Drag Trump into this, and make this another PR case for the anti-universal-healthcare lobby over there, and deny millions of future kids affordable healthcare. It's like the 'picket GOSH' and 'boycott GOSH fundraising' and 'harass their doctors' approach: complete and wilful obliviousness about the potential damage to other children's care.

MrBobDobalina · 03/07/2017 12:05

Did you know they own the rights to Peter Pan? That must make them a pretty penny.

Not in the US though, AFAIK the US doesn't recognise Peter Pan's special exemption from the expiry of the copyright laws Sad

MrBobDobalina · 03/07/2017 12:10

Off-topic, but here's an interesting piece about Peter Pan & copyright: www.plagiarismtoday.com/2015/10/21/peter-pan-and-the-copyright-that-never-grew-up/

As you were.......