To ask people to PLEASE not picket hospitals?

[SerfTerf]

Or consider any kind of direct action against a hospital because of decisions concerning any individual patient.

It's irresponsible.

Got it wrong?
Because all of the courts and the best medical staff and specialists on the planet are vile murderers and don't know what they are doing?
How absurd.
It must be bloody awful for the staff and the other children and parents there right now.

Charlies Mother is currently finding the time to post Donald Trump's tweets onto FB with "we are still fighting"
a very confused lady who has lost sight of the issue

A child who cannot see or hear or breathe or communicate, is lying there, helpless. The hospital staff can now only do one thing for him and yet there are people out there who are not medical experts, trying to stop them from freeing the child from his truly dreadful life.

There would be an outcry if an animal were treated in this way.

Dailymail, no I did not say that, although everything I said was misinterpreted as it did not follow the accepted script.
What I actually said was the enquiry would look at everything that led up to the fire, including tenant behavior. At no point did I blame the tenants, although I was accused of doing so.

I've just read some of the hysterical posts on the Charlies Army page - "He can give immediate American status and the uk courts decision wouldn't need to be overruled - they can just get them evacuated. He's done it before and he can do it again, let's be positive. I for one hope he does" and "He has my blessing to get his secret service in so they can bring little Charlie with them to the US, but that would happen in a movie, not in this nightmare." - what is wrong with these people? Do we really live in a world where such monstrous stupidity exists?

I think The Donald is just trying to outdo The Pope.

That assumes any thought was engaged beyond creating a distraction from problems at home.

Fascinated that he his happy to inflict more expensive and potentially distressing treatment which a US medical team who have said its not appropriate on a British baby, whilst removing medical care from disabled and dying people in his own country.

Somewhatnew the whole 'parental rights' thing bother me too. I don't really understand what people are getting at and of course we shape our kids in the ways we believe to be right but I don't think you have special rights over a person because you created them?! To me it screams that many people aren't actually putting their children first as individual beings. There not just an extension of you! This has Always been about what's best for the child and it's clear that parents can't always decide that. serfturf I've watch 'sicko' along time ago. I do remember being incredibly shocked by it!

Nobody has parental rights. We only have responsibilities. Those responsibilities can be shared by the court who can then make decisions that override the parents. It happens regularly when children are taken into care or adopted.

@user1495025590

You clearly have no idea about this child's medical condition or what GOSH have done for him.

Piss off back to the Charlie's Army page with the other fools who spend more time making cheesy pics/videos than actually learning about his condition.

Trump's comments seem quite different to the Pope's. The Pope isn't really saying a great deal other than how sad it is and he hopes the parents are with him until the end. Trump is talking about taking an actual course of action.

I don't think it's helps the mum has been posting about other children with conditions and then questioning why he can't have the same...sadly not the same condition! Surley someone must be advising her here as well

As for Trump...yay?!

Copied and pasted from another thread Hopefully this will help posters like User understand the situation.

Venusflytwat Sun 02-Jul-17 08:26:52
I tried to post this into Charlie's Army but the moderators didn't approve it, so I'm posting it here instead. The lack of understanding makes me sad but to deliberately block it makes me angry.

"I have spent a long time wondering whether to post this. I think it will probably be deleted but I beg you to read it before it is.

The MRI scans were presented in court. If you read the court judgement they are clearly referred to in there, I have posted the link to the judgement further down.

I can understand how the MRI reads if you haven't been trained in medicine or imaging at all, and where this misunderstanding comes from. In the instance of brain damage, MRIs look for damage like tumours, or blood clots, or haemorrhages. This is not the sort of brain damage Charlie has. Charlie's brain FUNCTION is damaged at a cellular level. The cells cannot produce the energy to function, because they do not have enough mitochondria. They have no energy and so they cannot function. You would not see this on an MRI. You WOULD see this on other studies such as EEGs. These have been repeatedly done on Charlie and show extensive encephalopathy- this means extensive damage and dysfunction to the function of his brain. Again, I repeat: you would not see this on an MRI.

Please take the time to read the actual court judgement. I have provided the link here, it is all in there. The MRIs you want to wave WERE seen by the court, they are referred to in there. They were not suppressed. Please also take note of how many different hospitals were asked by the court for their advice, both in the UK and abroad. They ALL agree with GOSH's assessment of Charlie's condition. This decision was not informed by GOSH alone.

Charlie's illness is a terrible, cruel tragedy. But clinging to false internet rumours doesn't help him or his poor parents now. Please take a few moments to read the full facts for yourself before taking action based on things which are simply not true, however well intentioned.

I pray nothing but peace and love and light for Charlie and his family tonight and in the coming days."

www.bailii.org/ew/cases/EWHC/Fam/2017/972.html

Notes:

• Brain Activity

Dr. B confirmed that, whilst Charlie is not brain dead, he is persistently encephalopathic. In other words, there are no usual signs of normal brain activities such as responsiveness, interaction or crying. Dr. B confirmed that this is supported by repeated electrical tests in the form of EEGs.
Dr. B explained in his oral evidence that, even before Charlie began to suffer from seizures on 15th December 2016, the clinical consensus was that his quality of life was so poor that he should not be subject to long term ventilation, resulting in the advice of the Ethics Committee in November 2016 not to offer Charlie a tracheostomy. Dr. B said that, since that time, Charlie has suffered significant deterioration in brain function evidenced by the development of persistent seizures. The court has also been provided with a letter from Dr. E, Consultant and Senior Lecturer in Paediatric Neurology at the Newcastle Upon Tyne NHS Foundation Trust. Dr. E specialises in rare mitochondrial disorders and is regarded as a world expert in the subject. He referred, in particular, to the fact that Charlie has developed an epileptic encephalopathy, which has been detailed on several EEGs, some of which have been prolonged recordings capturing a wealth of neurophysiological data on Charlie whilst awake and asleep as well as during seizures. Dr. E said this:

1. "Indeed, the most recent EEG performed on 10th January 2017 was very similar to that recorded in December 2016 and which was indicative of a severe epileptic encephalopathy with frequent sub-clinical seizure activity. Subsequent to Charlie's initial cranial MRI scan performed on 7th October 2016, he has had two further scans on 19th October and 6th January 2017. The most recent of these does not show any major pathology, but does reveal some subtle increased signal in the subcortical white matter of the occipital lobes. This would be a typical finding in patients with mitochondrial DNA depletion syndrome."

That got posted on there..person was accused of using fancy words and being negative..a few got it but it doesn't fit the conspiracy story so of course got ignored

There's people on that page now discussing contacting Vladimir Putin to ask him to get involved. Fucking hell.

And get the air force to fly him to America as he could become a citizen..they're all in some over world bubble!!

Surely though as long as those loons are posting on facebook they're not actually doing anything? I.e. They're all mentalists who don't have a clue and probably shouldn't have access to the internet, however, none of them have any power (or brains) and so all the loon postings are just that?

And the reality is that the more mental they become the more likely it is that Charlie's life support will be terminated without any kind of notice precisely to stop any kinds of action from happening etc.

And once Charlie has passed away the loons will find another cause to pursue. Rince and repeat.

Putin is just about the only missing ingredient in this circus, to be fair. I think once he gets involved it's bingo. It would be hilarious if it weren't for the little boy and his parents suffering horribly at the centre of the whole thing.

Not so much the posting on that group that's been damaging

They posted so much on GOSH Facebook page that reviews and posts have been taken down..then the protests.

Some damage probably done to the hospital and people who work there. Even more so that names of the team involved were posted though deleted after but still. Social media is dangerous

That poor baby :( It isn't about him at all any more - it's just a fight

It's seemed to become more about them. Who can get a tweet of a famous person..who can get in contact with a news channel. It's so look at me look at me I care the most

Surely though as long as those loons are posting on facebook they're not actually doing anything?

They've managed to get the President of the United States to tweet about their issue, at a time when over twenty million US citizens risk losing their healthcare coverage as the Republicans take an axe to the Affordable Care Act.

It has repeatedly been shown how disproportionately hard Medicaid caps or cuts will hit families whose children have disabilities: limiting their access to necessary medications and therapies, limiting their educational support, and causing a huge spike in medical-related bankruptcies.

Not once has Trump addressed the concerns of any of the families who've stepped forward to show how these cuts will financially devastate them and significantly decrease their children's quality of life.

But the online mob which now constitutes Charlie's Army have managed to get his attention.

Charlie's story is now being circulated amongst the right-wing in America as proof that socialised healthcare, ie a National Health Service where all people receive medical treatment free at point-of-use, will deliberately kill unwell children and other patients as a cost-saving measure.

Nothing Trump says or does can possibly help Charlie Gard, but with horribly skewed logic his name will now be raised as justification for millions of other kids, including those with life-long disabilities and terminal conditions, losing their healthcare. The longstanding damage done by an online mob (with some of the least-informed medical and legal opinions ever seen, and the most witless conspiracy theories) is way beyond anything they comprehend or even care about, and testament to social media at its worst.

And that's not even getting started on the pro-life nuts this has been broadcast to, who have form for vandalism, intimidation, assault and even murder. If there's so much as one nasty bit of graffiti at GOSH, let alone a major incident, I hope the baying social media ringleaders face charges.

cathf No, you posted stupid things that people responded to, and then flounced. So if the "accepted scrip" is "logic and common sense" then yes, you did deviate, and rightly were called out in it.

Can you drop the chip on your shoulder and stop playing the victim?

Letsgoflyakite yesterday, one CA poster asked another which actress she'd like to play her when this becomes a blockbuster movie. Says so much about how some of them view this.

Are these the same people that were wailing and rending their sackcloth clothing at Princes Di's funeral?
I didn't understand that either.

"Can you stop" hounding @cathf , @DailyMailReadersAreThick maybe?

You're starting to look like the one with the chip.