I can't imagine what his parents are going through. No matter how much you disagree with their decisions- and I do, very much- it is obvious it cannot be easy for them.
An issue I have with the people in Charlie's Army and that those on my Facebook do not seem to actually KNOW anything about his diagnosis or condition.
I've seen comments such as, "he'd look distressed if he were in pain," and "if he can't see, why are his eyes open?"
Plain ignorance is meaning that people are supporting something they do not understand. The poor child cannot see, hear or breathe. As a post above says, "every cell in his body is dying."
He's not some little boy with cancer who can be treated with some pioneering medication. Nor can he be compared to other children who have "miraculously recovered."
The fact is he is dying, only existing right now due to his life support. People are campaigning for treatment like life saving drugs are being withheld- this is not true. It appears nothing can be done for poor Charlie.
And if nothing can be done for him, then surely the right decision is to let him go peacefully?
I also do not like the whole #parentalrights hashtag. I like to believe I could always make the best decisions regarding my child, but the fact is that in emotional, heart breaking situations parents cannot always choose the right thing. He is their child, yes. But what about Charlie's rights? He is their child, but still a person. Which is why a court ruling and higher power is needed if his parents cannot make decisions objectively anymore. (But who can blame them anyway? Their child is dying and they are obviously distraught.)
As for GOSH, they have done nothing wrong. So many children benefit from them and I really hope nothing subtracts from the support they receive. Other children will need their help long after Charlie and I'd hate it if other children lost out due to lack of funding through the disgusting comments people are making.
"I hope GOSH fall down"
One comment I saw. I couldn't believe it. A person really wishes the end of GOSH when they save so many lives?
It breaks my heart.
And again, I do not agree with blaming Charlie's parents. I feel strongly he should be allowed to die with dignity, but blaming his parents is not right. I have endless sympathy for them.
I'm sorry this is long. I just feel very strongly about the whole situation. I really hope it is resolved soon and a media blackout would be brilliant. I also hope that all conversation surrounding Charlie remains respectful and genuine. The parents are real people after all.