To be at my wits end and hope there's a doctor on mumsnet on a Sunday?

[Whenisright]

I know I am but here goes.... For at least the last couple of months I wake up with horrible aching mid back pain. Every single morning. It means I simply can't lie in or catch up on sleep, despite being exhausted (twins). The discomfort is so bad I have to get up. Nothing I do in bed helps (position change / stretching / moving beds or surface), I have to get up. Within 10 mins of being up I'm absolutely fine. I have a new excellent mattress, have tried a different mattress and memory foam. Tried different sleeping positions. I'm at my wits end as its getting earlier and earlier. By 3am I was gulping painkillers as I desperately needed to sleep and then was up at 5.45 with the twins. Dr said they could refer me for physio and advised to take ibuprofen. Not helpful. Any ideas at all?? It is my whole middle back and comes round to my ribs at the front. Any Drs here? Thanks!

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MNHQ Update
Fed up of waking with back pain? Our guide to the best mattress for back pain is up to date with a wide range of tried and tested options. We hope it’s helpful!

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

I'm hyper mobile (EDS3) and have the same thing. Ask to see a rheumatologist

Me too. Or as I found out in 2013 I have types 2, 3 and 4 unfortunately. I'm fully housebound now with type 3, in constant, agonising pain with anywhere between about 8-15 or so dislocations a day and type 4 was picked up during an emergency c-sec when things went pear shaped so yes, I'm palliative.
For others type 4 EDS is vascular, not so much muscle/joint related like the other types and very rare so not related here.

But for the OP then yes, those of us with EDS do often raise it to ensure it's ruled out as it's not actually rare, it just took a while until they could accurately diagnose it and now if there are clear links then genetic testing confirms.
So I always say the same and get that ruled out, one thing there that is now often used first is family history.

OP, just go back to your GP and go through things thoroughly. They are sure to have considered more diagnoses than the one you walked out of the door with.
Please don't go back in there suggesting particular tests. If you don't agree or don't understand someone's thinking then ask to see someone else.
Good luck.

Lots of bendies here then! Mine went undiagnosed for 27 years until a family member was and it all seemed to fit. I'd be to the GP probably nearly 100s times in that 27 years hoping they'd be able to help. I think because it can be difficult to diagnose and sometimes GPS don't think of it (the ones I saw didn't) you go on for ages just thinking you have a bad back etc. I was also misdiagnosed with fibromyalgia before the EDS3 diagnosis. It changed how I looked at the pain and it opened up a wealth of info. Especially on my pregnancy, labour and other issues which turned out to be related.

I'm not saying it's what the OP has got but it can't be bad to make people aware of it and be prepared to ask questions.