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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think you don't see many people with Down's syndrome anymore?

371 replies

Neonoen · 04/11/2016 16:50

When I was a school there was a boy with downs syndome in my class. At secondary there was the first boy and then another one too.

I worked with a man with Downs syndrome at my first job (he taught me how to use the photocopier the first day after I wasted a whole reem of paper Blush). At the same time there was a woman who travelled on the same bus as me with Down syndrome and another who worked in McDonald's.

Yesterday on the TV they were interviewing that man who has the lead role in a new film (he has downs). DS asked why he spoke like that, I explained and then realised none of my children know what Down's syndrome is or have ever encountered anybody with it. There's no children with downs in their schools, no families with any members who have downs and no businesses that I can think of who employ anybody locally with Down's syndrome.

Other than the SN session at the local pool, I can't remember when I last encountered anybody with downs.

Is it just me? Is it a result of advanced ante natal testing?

In fact thinking of it I'm surprised at the lack of any experience my DC have of people with disabilities.

I really don't want to offend with this and hope I've used the correct terminology.

OP posts:
lougle · 04/11/2016 16:52

My DD2 has a girl in her class who has DS (mainstream). My DD1 has a girl in her class who has DS (Special School).

ElspethFlashman · 04/11/2016 16:56

Come to Ireland. Loads here.

WipsGlitter · 04/11/2016 16:57

93% of women who find out they are carrying a child with downs choose to terminate, so yes there are less children being born within downs.

heron98 · 04/11/2016 16:58

I was thinking something similiar recently - as a child I remember there being a noticeable number of adults around with very severe learning disabilities (not Down's Syndrome but far more profound) and there aren't nearly as many now.

ICanTuckMyBoobsInMyPockets · 04/11/2016 16:59

93%???

Gosh, that's very sad.

I never really thought about it, but yes you're right, I haven't encountered a person with DS for a long time.

redannie118 · 04/11/2016 17:00

This reply has been withdrawn

The OP has privacy concerns, and so we've agreed to take this down now.

sizeofalentil · 04/11/2016 17:00

I hope you don't get flamed for this post, as you do raise an interesting point. Afraid I agree with WipsGlitter that it's probably down to early testing and terminations.

Neonoen · 04/11/2016 17:01

Elspeth...because of fewer abortions in Ireland presumably? Surprised at those stats, that's very high.

I don't want my children growing up ignorant of people with disabilities. Yesterday was the first time that I'd really thought about it.

DD did say "has he got ADHD mummy". Guessing that that's the only reference point they have for SN as classmates have it?

OP posts:
sonlypuppyfat · 04/11/2016 17:02

My BIL had downs at 30 he still couldn't speak or indeed take himself to the toilet he made my MIL an old woman before her time. They all don't have jobs etc. When I was pregnant I didn't have any antinatal tests to look for Downs but I understand why some women would

Gazelda · 04/11/2016 17:02

Try to find Sally Phillips' recent BBC documentary on iplayer. She was covering the subject of a new, safer ante-natal test and how he possibility that it will result in more terminations. Her DS had Down's syndrome and she was trying to highlight that he and others with the same disability have every chance of a wonderful life, so the thought of terminating based on a DS diagnosis will mean eradication of people with that disability - a thought that upsets her when she sees the joy her son brings and lives.

Titsalinabumsquash · 04/11/2016 17:02

93% wow that's high! How sad, there is a little boy with DS in my children's school and he's absolutely lovely, you wouldn't know he has DS from his behaviour and interaction with his peers and his health is good from talking to his DM.

Arfarfanarf · 04/11/2016 17:02

This reply has been deleted

Message withdrawn at poster's request.

Neonoen · 04/11/2016 17:03

Actually they do realise about obvious physics disabilites. We live in an army town and there's quite a few men with missing limbs now Sad. But they do seem to have encountered many people with DS type disabilities.

OP posts:
ByeByeLilSebastian · 04/11/2016 17:03

It might just be you. There are quite a few adults and children with downs round here.

Ollycat · 04/11/2016 17:04

Did you see Sally Phillips recent documentary - A World without Downs (I think) - v interesting and thought provoking - def worth a watch.

TheLegendOfBeans · 04/11/2016 17:04

There's an documentary that Sally Phillips (she was in Smack the Pony and Bridget Jones' diary) made that aired about a month ago: it was called "A World Without Down's?"

I haven't seen it but as I agree with your post this has spurred me on to watch it. I've been sort of hiding from it as I think it'll be quite upsetting.

AgeingArtemis · 04/11/2016 17:04

There's a man with down's syndrome who works in sainsburys where I live, but he's the only one I've seen in ages. I honestly can't remember the last time I saw a child with DS

TheLegendOfBeans · 04/11/2016 17:04

Cross post x

Neonoen · 04/11/2016 17:04

physical dont

OP posts:
BankWadger · 04/11/2016 17:04

Could be because there is better education for SN now as well. Kids in dedicated classes/schools.

NavyandWhite · 04/11/2016 17:05

This reply has been deleted

Message withdrawn at poster's request.

Neonoen · 04/11/2016 17:05

Will look for documentary now.

Is it something DC could watch? Oldest is 11

OP posts:
WhisperingLoudly · 04/11/2016 17:06

Quite obviously it's as a result of prenatal screening Hmm

I don't see it as something to mourn, same as I don't see the birth of a child with Downs as something to be mourned. Behind each child born with downs and for every pregnancy terminated because of Downsa deeply personnel and often difficult decision has been made.

Strawberrybonbons16 · 04/11/2016 17:07

I have a cousin with DS. He went to a SN school, and so I assumed growing up that most weren't in a mainstream school, hence why there wasn't anyone with DS in any of my classes. My cousin tends to socialise with other people with DS/SN in groups specifically for them and their needs. Although there is a group that go to my local pool at the same time of week I go. It's nice to see that people with DS are being given roles on tv/films Smile I guess sadly the termination rate also has a part to play in your observation but I would have thought it would be also due to attending different schools and social clubs as I mentioned Smile

Ollycat · 04/11/2016 17:08

Legend it was a good doc - the statistics for terminations of Downs babies is v high and it was quite interesting how the medical
Profession lead people towards a decision.

SP has a son with Downs.