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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to go to OOH with tingly boy?

183 replies

stealtheatingtunnocks · 25/09/2016 11:31

8 year old boy, fit and well.

Gets double vision in the mornings for about a year, and "wobbly eyes" in class - nothing found by optician, waiting for hospital optician appointment.

Went a bit deaf for a few days in one ear last week.

Said a few days ago "why does your body go fuzzy, mum?" described vague tingling and floating feelings in arms.

Today, since he woke up at about 7am - has pins and needles in both arms, both legs and is definitely weak. Is able to walk, but, slow and can't do things he usually would. Can't touch his nose with his finger. nystagmus tracking a finger. Is tired, pale, bags under his eyes but eating.

I know enough about neurology for me to now be properly concerned, but, am aware that I am also liable to being a bit neurotic as our other son has been very unwell for a few years with a different condition.

WWYD, he's probably a bit viral, there's been bugs going around the school - is it ridiculous to go to OOH? Am I that neurotic mum and just need to have a cup of tea and a cuddle?

OP posts:
FrankiesKnuckle · 13/10/2016 16:39

Sorry that link doesn't appear to work. Try this mollaretsmeningitis.org/what-is-mollarets-meningitis/

stealtheatingtunnocks · 21/10/2016 12:34

positive things here:

admission for investigations found nothing
ophthalmologist found nothing
MRI soon
pattern is definitely after exercise

bothersome things here:
still wakening at night with headache
still nauseous
still tingly

So, we know more about what it isn't, which is helpful. Just not what it is, which is odd. Most likely explanation is that it's psychological, but, he's a happy wee kid and always says if he has a worry, well, I THINK he does.

I'll feel better after he's had the scan, that's for sure. Am more relaxed, and also, more bemused.

OP posts:
stealtheatingtunnocks · 21/10/2016 12:36

Thanks, frankie, it was his brother who had viral meningitis. He's never had any drama before now. That's interesting,t hough, I'll keep an eye out for the other kid. Hope your friend feels better soon.

OP posts:
SquawkFish · 21/10/2016 12:40

Have they checked his potassium levels? And adrenal gland function?

stealtheatingtunnocks · 21/10/2016 13:01

Yeah, that's what we were in for, Squawk. They wanted to check his salts when he was symptomatic. So, lots of exercise - bingo, bloods taken whilst he was wobbly. And, the neurologist appeared at that moment to have a prod - they are really very good.

First lot of bloods were clear, waiting on second lot. Apparently there's a couple of rare metabolic and genetic things which could cause this sort of symptom. And, also,s sometimes they never really get an answer, can only rule things out and wait for things to become more clear.

He's not unwell, though. So, that's reassuring. He's not quite right, but, he's not poorly. Phew.

OP posts:
SquawkFish · 21/10/2016 13:42

That's cool! I'm also super glad he's not really unwell and I hope he gets fully better soon.

Does he like exercise? Or he is one of those that are going to be delighted if he gets told he needs to lay of it for a little while whilst they figure out what is going on?

stealtheatingtunnocks · 21/10/2016 14:00

Nah, he's never still. Unless he's tingling. Loves his rugby, and running in general. Typical 8 year old kid, really.

OP posts:
TheWrathFromHighAtopTheThing · 11/11/2016 14:09

How's your boy doing OP? Hope all's well Flowers

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