to go to OOH with tingly boy?

[stealtheatingtunnocks]

8 year old boy, fit and well.

Gets double vision in the mornings for about a year, and "wobbly eyes" in class - nothing found by optician, waiting for hospital optician appointment.

Went a bit deaf for a few days in one ear last week.

Said a few days ago "why does your body go fuzzy, mum?" described vague tingling and floating feelings in arms.

Today, since he woke up at about 7am - has pins and needles in both arms, both legs and is definitely weak. Is able to walk, but, slow and can't do things he usually would. Can't touch his nose with his finger. nystagmus tracking a finger. Is tired, pale, bags under his eyes but eating.

I know enough about neurology for me to now be properly concerned, but, am aware that I am also liable to being a bit neurotic as our other son has been very unwell for a few years with a different condition.

WWYD, he's probably a bit viral, there's been bugs going around the school - is it ridiculous to go to OOH? Am I that neurotic mum and just need to have a cup of tea and a cuddle?

I've been hesitant to post as don't want to be alarmist but agree with Melly. My husband has a benign brain tumour, at diagnosis his symptoms (including visual disturbances) were intermittent.

Keep pushing op. BT are rare but not non-existent.

If he had no impnfammatory markers then surely it's not a virus thing?

Call the neuro department direct. Ask them how long an appointment will take and ask to be put on cancellations list at short notice if an appointment comes up.
Also tell them of recents events because quite often they triage appointments.

Not being an expert, I agree with others that you should push for a deeper investigation. A good GP would recognise that he/she isn't fully equipped to decide if there is a serious problem or not.
There is clearly an issue with your boy and I'd think it would be up to an expert to make sure there's nothing serious behind it. With the help of good diagnostic methods.

I'm listening.

He's still got symptoms off and on. School are noting them down, I'll get a wee picture together.

Feck. This is right out my comfort zone.

My dd last april was in hospital, nurse and i witnessed a seizure and even then they tried to tell us her speech problem( and not talking and seizure) were put on and were going to put in a psych referral. Luckily a neuro visited on a weekly visit to the ward and saw her- they saw swelling behind the eye, she had encephalitis and went straight for scans and to neuro hospital that day.
Dont let them fob you off.

Spoke to neuro secretary (thanks, kidding) - WL is 12 weeks, but, triaged by neurologist. They haven't read his referral letter yet.

Secretary was really nice, but, there's nothing she can do apart from note that I called. GP can expedite things.

So, I'll keep watching him and have got a list of his symptoms together. Am working on keeping calm.

Feck.

Wrote here earlier but didn't want to be alarmist so didn't say what I was thinking, but now others have I will say it. I understand you've been occupied with another sick child, so sorry for you. But this screams to me of a possible brain tumour though I am relieved to hear the optician didn't see anything unusual. I thought people with possible cancer need to be seen within two weeks? I really think your GP sounds good but if this were my child I would go back again and ask the GP how they can possibly be sure my child didn't have a brain tumour. I have read on here of mothers with DC with similar symptoms and going to A&E and having scans and diagnosis almost immediately. Perhaps you need to go back to A&E and start being really very clear about how scared you are and all the things going on rather than going to the GP? Am really sorry to alarm you but seriously I am worried for you.

Yip.

I know enough about neurology to be concerned. In fact, I have a tiny, constant panic that I'm working hard to suppress.

Good things:
He's himself
He's obscenely healthy
He's behaving normally - currently skipping in the hall
He's not lost any weight (well, bit on the skinny side, he's growing)

Things which make me uncomfortable:
It's a year of double vision
Kids can't fake proprioceptive loss
Kids don't describe pins and needles routinely
Kids aren't wildly amused by their clumsy hands "look, mum, look at this!"
These couple of absences weren't "typical", but, they're certainly not normal.
There's a family history - DH's paternal great uncle died of some sort of brain tumour, my uncle had acromegaly and DH's dad has some sort of cerebellar thing going that he's refusing to have investigated, but, that's another thread entirely

Actions:
note down his symptoms, see if there's a pattern
see GP next week with that, without DS, and talk openly - "if you can't see any swelling in his eye, does that absolutely rule out anything space occupying or relapsing-remitting
wait for eye clinic at hospital at end of October.
take better care of myself. Am going to the gym today and will get back to doing that regularly.

He is skipping in the house. This is a good thing, even though it is verboten, I'm letting him do it and listening to both his legs hit the floor at the same time. That's a good thing.

Breathe....

Hi op. Keep holding in there
Could you take your son to visit his optician?
My condition was picked up by mine. It might put your mind at rest.

If it were my son and I was having to wait 12 weeks I'd find out how much a CT scan costs privately and have it done asap.

A different situation but my mum had a lot of back pain and had to wait months for an MRI scan because her GP's practice didn't want to refer her. Her condition wasn't life-threatening, just very painful. She now says she wishes she'd gone privately as she would have saved 6 months of pain. I wish I'd paid for it for her. My husband has a problem with his knee and had an MRI scan 3 days after being referred with private health insurance!

And yy to returning to the optician - maybe there will be something to see this time?

Tunnocks sending you good vibes. You are clearly well informed medically.

It's the squeaky wheel that gets the oil.

I saw this today. I'm sorry it seems so alarmist but the more you can have in your back pocket to be forthright and insist on being seen quickly the better

www.walesonline.co.uk/news/wales-news/man-discovered-brain-tumour-after-11950126

Wee quickie update - he's still having weird episodes. There is a pattern though, it happens after activity.

Played rugby on Sunday and had an hour pokemon hunt walk home, that night was asleep by 7pm and off school on Monday. Tuesday - absolutely fine, running around like normal. Today, a wreck, unable to walk properly, headache, nausea, lots of pain. It's settling though - am hoping to get him into school this afternoon.

Happily, have a neuro review next week.

I can't make up my mind if he's exaggerating or attention seeking. But, kids don't fake neuro symptoms, and he is not prone to making things up. His sister on the other hand...

Glad your neuro appt is soon (I ended up waiting nearly 3 years!). I agree it's unlikely he's faking. Most kids would think "rugby yesterday, hurt today" wouldn't they, rather than respond to a cumulative effect like that which you've described.

Good luck

Been thinking of you and glad the appt is soon.

Another hemiplegic migraineur here saying he sounds like I did at that age. If it turns out to be them then join the IMHF (international hemiplegic migraine foundation) on Facebook. Lots of advice and information on there.

Hope he's ok

Has diabetes been excluded?

Thanks, folks.

I've taken a few videos of him to show the neurologist. I really don't want to appear like the neurotic mum - but, nor do I want to turn up without evidence if he's on a Normal Day.

They checked bloods at A+E, Effiels, so, I assume they did sugars as part of that. He's not thirstier or peeing more than usual.

Kid's fine in himself.

I'm working on not obsessing over his every stumble...

Sometimes being "neurotic" or "obsessing" is good. It's how parents (who know their children best) get to the bottom of things.

Good luck for assessment next week. You are NOT being neurotic. 10 month old DGD had what were thought to be infantile seizures. DD took her to A&E who kept her under obs overnight. Discharged following day and given urgent paed neuro appt. DD was told to keep a diary and take videos if possible of any staring/shaking etc. She was given an EEG after a month which came back negative and it was diagnosed as a reaction to the severe reflux she has. No one at ANY time suggested that DD had over-reacted or been neurotic. Everyone who saw DGD said they'd rather see 20 OK kids than risk missing the one who was having seizures.

It's hard not to watch them like hawks when something isn't right. I think it's natural. There's so many things his symptoms could be attributable to, so it needs investigating. If before next week you notice any significant change or worsening of his symptoms I wouldn't hesitate to take him to A&E.

Think it's an inflammatory pattern - worse after activity, better after rest.

Roll on next week.

Just to add a other layer of completeness here. Some of those symptoms seem cardiac in origin. Has he had an ECG ? A chest xray ?

Sounds like a friends dd who for years had these vague type episodes nut no other symptoms, but at 16yr she had several seizures and has been diagnosed with epilepsy....def push for EEG and perhaps an MRI.
First rule a doctor is taught, is to listen to the mums instincts as it's usually correct.
Good luck

Do you know if his B12 level was tested in the blood tests? A B12 deficiency can cause lots of neurological symptoms, clumsiness, lack of coordination, visual problems. Just something else to check out. Hope you get answers soon