My daughter died of a cancer that strikes mostly older people just 7 months and 29 days after her diagnosis. In that little time we were in hospital, I now have to count on two hands and then use more to tally up the number of children we know personally who have died from relapse and/or secondary cancer alone.
4%.
It was AML for those who don't already know. Acute myeloid leukaemia. A cancer that strikes mostly those over 55, but still accounts for 20% of children diagnosed with leukaemia. Best case scenario is an 80+% rate of 5-year OS, for ALL, the most common form of leukaemia in children. AML, 50% at best. My child had a mutation, FLT3, that is the most common in adults with AML, but known to be highly lethal in children. They are all treated with decades old drugs. Many people, adults alike, die from the treatment. Many even decline it, the odds are so poor.
The last known study into children with my daughter's mutation had 52 children. It was ended after 2 years because 47 of them were dead.
And this is not even touching on those who are diagnosed with brain cancer.
I had that carved on her headstone. 'Taken by Acute Myeloid Leukaemia', because I want people to know, dammit!
And I want people to know it's 4%, despite all the ads featuring children and young people.
RIP, Aillidh, Aila, Naomi M, Naomi S, Charlie, Margot, Abbi, JackJack . . . I could be here all night.