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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask you to tell me about the HPV Vaccine and if your daughters had it?

129 replies

neighbourhoodwoes · 02/05/2016 22:42

DD just gave me the letter which has to be returned by tomorrow.

Everything I read online about how effective and how long it lasts is conflicting.

Does anyone have any info or views which may help!

OP posts:
HormonalHeap · 04/05/2016 17:50

My daughter had it, sore arm for a couple of days but nothing else just peace of mind

Marynary · 04/05/2016 18:35

ShutUpSirius You didn't "not give it to her" as if she is "gillick competent" then she would have decided whether or not to have it. Her choice would overrule yours (if you are in the UK).

BeALert · 04/05/2016 18:51

The injection covered only a small number of hpv types. Not the main ones

Which are the 'main ones'? How do you define a 'main one'?

BeALert · 04/05/2016 18:52

kodokan thanks for posting that. I'll talk to our paediatrician and find out which one she's using and when she'll switch.

mathanxiety · 04/05/2016 19:40

Himalayan salt and conditions in the mine it comes from.

sashh · 05/05/2016 12:23

What put me off was that the studies were short term. The injection covered only a small number of hpv types. Not the main ones.

Yes it covers the ones that are responsible for 70% of cervical cancers, not the ones that don't.

There was no long term studies into the effects, or how long girls would be protected for.

Er... you can only do a long term study if something has been around for a long time

ShutUpSirius · 05/05/2016 14:01

She is an adult now. If I had another daughter I still wouldn't. As is my choice as a parent.

She could have chosen to have it and has opted not to ... Not based on my thinking but on her own.

But thanks for pointing out my short comings in the short term study explanation.

I made a choice and I stick with it.

ShutUpSirius · 05/05/2016 14:06

At the time when it first came out I went on the Information that was available at that time. At that time I didn't have anywhere near enough to allow me to confidently choose to put more chemicals into my Childs body.

Already on a large number of medicines.

No information on how those additional meds would interact with the very strong amount of medications already in her system by injection 2 times per week.

No information on how any side effects would cause her already precariously balanced health conditions.

So yea. I stand by my choice. It was right for her.

My job as a parent is to balance risks. These are not little risks either.

Already on several sets of meds that cause a potential increase in cancer risk.

Also acutely aware of what cervical, vulval and ovarian cancers look like ....

Thanks for the wee guilt trip ladies. Nice to see my choices picked apart.....

bumbleymummy · 05/05/2016 15:52

Sirius, you don't have to explain you or your daughter's decision.

bruffin · 05/05/2016 15:57

Lyndanotlynda
I cant get the link to work, can you give me the title of the programme please.

bruffin · 05/05/2016 16:31

Dont worry found it LyndanotLynda

As i thought over reporting is a big problem, far more than the under reporting of people with a sore arm.

operaha · 05/05/2016 17:02

My daughter had the first jab and had such a horrific reaction she was hospitalised. If I had another daughter, she wouldn't have it. I've only read about a few such severe reactions, one a lot worse, but all I know is that her immune is shit now, she's had a cold on and off ever since and I curse the damn day we let her have it. Her energy levels have never recovered. She's 18 now.
No doctor would agree that the jab and the reaction were related.

bumbleymummy · 05/05/2016 17:03

Perhaps you could share the correct link or the title with us bruffin?

bumbleymummy · 05/05/2016 17:27

Never mind, found it. If anyone else wants to listen to it, it is called World Cup Migrant Deaths and it is from June last year. It doesn't say that over reporting is 'far more' of a problem than under reporting.

MHRA (not VAERS)estimated that it receives approximately 10% of all ADRs.

bruffin · 05/05/2016 17:39

Yes and underreporying is in things like sore arms and mild fevers. Over reporting is on things like death which are usually not causal. Also solicitors out in reports to make cases for litigation.

Mistigri · 05/05/2016 17:48

We didn't report DD's delayed reaction (sore arm about a month later) but it was objectively quite mild and it resolved spontaneously.

We probably should have reported, as underreporting of mild reactions is a known issue, and this is a side effect that others have experienced. It was bad enough to make me consider delaying or cancelling the second jab, although I didnt.

bumbleymummy · 05/05/2016 17:52

It doesn't say that either.

Just to be clear, you think that under reporting only exists for non-serious ADRs such as 'sore arms and mild fevers' but not for more serious ADRs?

bumbleymummy · 05/05/2016 17:53

That was to bruffin.

Hedgehog80 · 05/05/2016 17:56

My dd1 (14) has various health conditions and although she has had all her other vaccinations we decided to not give her this one. I think it was a combination of she has had a lot of vaccinations recently plus is on various meds so we decided against it.

When she's older she will have the choice herself to have it done

bumbleymummy · 05/05/2016 18:17

For anyone who is interested, Gardasil has the black triangle which means you should report all suspected reactions - regardless of severity. You can use the MHRA yellow card: here

bumbleymummy · 05/05/2016 18:20

Gardasil 9 - the newer one that was mentioned earlier.

Marynary · 05/05/2016 18:21

If I had another daughter I still wouldn't. As is my choice as a parent.

It wasn't your choice "as a parent" though because she had the final decision.

KatieB55 · 06/05/2016 14:44

www.youtube.com/watch?v=GO2i-r39hok

Please watch and consider this if your daughter is due for the vaccination. These reactions are rare, but they can happen.

KatieB55 · 06/05/2016 14:51

I'm posting this because my daughter has POTS and autonomic dysfunction after having had the HPV vaccination - she has just about all of the symptoms listed in this published paper:

www.danmedj.dk/portal/page/portal/danmedj.dk/dmj_forside/PAST_ISSUE/2015/DMJ_2015_04/A5064

She became unwell shortly after having the first vaccination and then became much worse after having the second vaccination. The doctors agreed that she should not have the third vaccination.

Please note that I am not anti-vaccination - my children have had all of their vaccinations.

The FDA required the manufacturers to carry out Phase IV clinical trials to look at chronic conditions and autoimmune illnesses after the vaccination had been approved - these studies have not been completed yet. No studies were carried out on ovarian function.

KatieB55 · 06/05/2016 15:03

www.ncbi.nlm.nih.gov/pubmed/25872549

Sorry - the link in my last post doesn't work any more