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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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Original poster

To be furious with the school nurse

148 replies

Hedgehog80 · 21/04/2016 20:44

Iam absolutely fuming

Dd2 has various medical conditions, has 1:1 care at school and all going well. Good relationship between us, school and hospital.

The community school nurse paid a visit to school and 'reviewed' all children with medical needs. Fair enough I suppose, didn't think much more of it.
I then got a call from dds hospital as they had been contacted by school nurse with 'concerns'. We cleared it all up and I spoke with the school SENCO who was lovely. Said the nurse had told her 'I don't know much about these conditions but I want copies of this child's records to show my supervisor' the school refused. She them apparently wanted to see dd but they also refused that.

I thought that was the end of it-them I get a GP letter calling us in to discuss these same 'concerns' so I called the GP and explained and then o called the school nurse and told her very bluntly it has nothing to do with her. Dd2 does not have shared care and between us as parents, school and hospital things are fine.

Today I get more correspondence-this nurse is trying to arrange a meeting to discuss her concerns?? It has been addressed twice now and her concerns were the result of a misunderstanding which has been cleared up.
Turns out she is also taking advice from dds old hospital (we left as they made her very ill and gave us wrong advice and treatment) so Iam not happy at all.

She also will not accept that she is not to be involved with dd??? I do not want her interference.

I have written in formally to school banning her from any involvement do why is she persisting ? Iam really angry
Do school nurses have any power at all? I'm thinking of taking this further

OP posts:

Mummyme1987 · 23/04/2016 23:50

Data protection can often catch these people out as they have no rights to your dd info

Mummyme1987 · 23/04/2016 23:51

Reporting them to the ICO is a good idea if the hospital has been told not to have anything to do with your child and they are telling the nurse.

Mummyme1987 · 23/04/2016 23:55

You can also put a data protection request in to the nurse to see everything she has written or said about you. Always worth doing. Soon find out her agenda then.

Mummyme1987 · 23/04/2016 23:56

Hoping it gets sorted very soon Op, and it all stops.

PaperdollCartoon · 24/04/2016 00:23

Rue why on earth would they take your pump?

DP is T1 but uses a pen (he's very suspicious of pumps, but I think probably because he's never had one) we still have problems like this. His medication and care are handled by the hospital specialist diabetes team, have been since he was diagnosed at 9 (he's now 26) but for the last two years the GP has been sending annoyed letters and notes on his prescriptions that he needs a med review there. We've both spoken to them, they've said yes it's fine, as he's under the hospital doesn't need another review here. Two weeks ago he went to pick up the insulin prescription he'd put in 4 days before and it hadn't been done 'because there's a note on the system that he needs a review with the doctor'. He had to take time off work to have an appointment with the doctor just did them to say this shouldn't have happened. I wish I could say the meddling/hoop jumping ends. It doesn't seem to.

Agree with PPs to make sure everything's in writing. But mostly just a I know what a nightmare these things can be x

NeedsAsockamnesty · 24/04/2016 00:28

Paper.

It is my understanding that if the GP is the person who issues the script then it's done on their head.and they do have a duty to follow their own procedures.

That's usually why they have medication reviews

MiscellaneousAssortment · 24/04/2016 04:39

Oh it sounds really frustrating.

I would treat her carefully, as a potential threat which needs vanquishing... Though politely!

I'd be careful to leave a paper trail with timelines, and to have a meeting with her as a final 'goodwill' gesture (aka more paper trail generation). I'd also ask her what her role and responsibilities are, after you've got that info from another source, then see if there are some 'crossed wires'. You can use this to show she has no role as well, to close down this badgering.

I'd also contact the new consultant to maybe write a general 'this child is under our care and here's a summary' type thing. And ask their advice on if they've had this type of thing before. I'd also contact the previous hospital and remind them that they have NO permission to give outdated confidential info on DD.

Good luck.

SeriousSteve · 24/04/2016 05:00

Stand your ground OP. I can't imagine your DDs diabetic team being overly happy a non-pump trained nurse is sticking her nose in either.

She could cause real issues for your DD too, with her lack of knowledge.

(Is your DD on a Medtronic pump?)

shinynewusername · 24/04/2016 07:50

I used to be a director of an (NHS) organisation that provides school nurses. This behaviour sounds totally out of order. Of course, school nurses sometimes have concerns about a child a parent does not want them to see and then it is appropriate to persist. But that is not the case here - all the clinicians and the school are happy with your DD, as are you . It is therefore totally inappropriate for you to be harassed in this way.

If you Google who provides school nurses in your area, this should give you the name of an NHS organisation. Typically it will be called something like [Your Area] Community Services. There should be a website with their directors' contact details. I would complain to their Chief Exec or Director of Nursing.

ChipperCharlie · 24/04/2016 07:57

I'm wondering whether this is about reducing cost.

You stating the previous hospital saying that "no child in our borough will receive 1:1 care in schools" struck a chord with me. Is she somehow having to review HCP's of school pupils to check whether 1:1's are justified? Is your LEA trying to reduce cost? Who funds your DD's 1:1?

Could all be down to cash.

JenniferYellowShat · 24/04/2016 08:58

Genuine question OP, why does you DD need 1:1 care?

I know very little about diabetes but doesn't the pump do most of the job? There's a scanner that goes with it, could a TA not do that?

I'm only asking out of curiosity, so feel free to ignore! My friends DD has diabetes, she's in reception with my 4 year old too. I know her family have been through hell and back with it but things seem on an even keel and the pump is pretty amazing, isn't it??

JenniferYellowShat · 24/04/2016 08:59

Also, WRT the nurse, I have a feeling it's to cross the t's and dot the i's but I'd go above her and sort it out.

CantChoose · 24/04/2016 09:14

Gosh this is tricky, I can see both sides.
Completely understand that you are very frustrated with yet another thing to try and sort when you've obviously had lots of appointments and meetings etc already to get everything in place for your DD already.
Equally, either so many horror-story cases of poor communication between agencies etc, I can understand the nurse finding it very hard to let go of the issue - especially if she is meeting resistance from you and others, that will always ring alarm bells...
I agree with previous advice to try to see whoever is in charge of her to get this sorted as I can understand why you might not want to engage with her directly after all this.
paperdoll the medication reviews are added automatically by the prescribing software and the receptionists told to enforce them. They cannot be turned off afaik. I would suggest your son book a telephone appt if your surgery do these. That would be enough for me as a GP to tick off the requirement and would save him taking time off. If the hospital are so adamant he doesn't need to see the GP before the prescription is done they should issue the script IMO. It's the GPs signature and therefore their responsibility, whatever the hospital have said...

mysteryknickers · 24/04/2016 09:18

The OP has said her DD has several health issues. Diabetes is one of them.

Original poster

Hedgehog80 · 24/04/2016 09:41

serioussteve it's an animas vibe pump and a dexcom cgm

jennifer dd needs 1:1 for many reasons. She has type 1 , eds and ibs. Those from birth and type 1 from age 3, she's 6 now

She has no hypo awareness and the pump doesn't do it all-before any food or snack info has to be put into it by us or 1:1 the grams of carbs to be eaten and actual bg (from a fingerprick), Dd levels due to other conditions having an impact can be hard to manage. Even if she's just coming down with a cold levels can be hard to manage. She can't do any of it herself and we don't want her to yet as it will affect her learning and playing and be a constant distraction for her as her cgm alarms a lot etc. obviously when she's older she will but not now

OP posts:

shinynewusername · 24/04/2016 09:43

Sorry to offer unsolicited advice but, just in case you haven't heard of them, I have a patient without hypo awareness whose life (and her parents' lives) has been transformed by a medical response dog. Realise they are not suitable for everyone though.

Original poster

Hedgehog80 · 24/04/2016 09:51

I have read about those shiny but when we thought about it when dd was just diagnosed we were told she was too young and that a cgm would be a better option. It's something to think about for when she's older though but in keeping my fingers crossed she regains some awareness currently she's has none for 3 years now and it does worry me as the cgm is not accurate we've had times it's said she was 5.something and I've checked her and she was in fact 2.something and then the opposite way too so although it's an early warning system it's not 100% and dd can have rapidly changing levels at just the slightest exertion due I think to her eds and her body working so hard/fatigue/pain

OP posts:

Original poster

Hedgehog80 · 24/04/2016 09:56

I'm really allergic to dogs as well so that was a factor but to be honest if it was an option at some point I would happily just take antihistamines ! I'm assuming these dogs are nearer 100% accuracy than a cgm (I trust that 95%)

OP posts:

AugustaFinkNottle · 24/04/2016 09:58

Can you turn this back to the nurse? Maybe write to her repeating in summary what you have told her (including the fact that she can verify it with the hospital, GP and school) and asking her to explain precisely why she thinks a meeting is necessary?

Original poster

Hedgehog80 · 24/04/2016 10:05

I could I suppose. It's probably wrong but I completely resent having to do it though. I've already had phone calls to nurse, GP and hospital and I'm always pushed for time and it just makes my day more hectic so I resent having to write/email/have mewing that are unnecessary!

It might be a good idea to put it down formally. I just look at my diary for the week ahead sometimes with appts, my to do list and then obviously unexpected stuff comes up and I wonder where to fit anything else in (I could mn less but then that's another thing for 'me' gone and I get very little time to myself). In short yes a letter probably would clarify things (again) to her

OP posts:

Original poster

Hedgehog80 · 24/04/2016 10:05

Meetings (mewing?? Autocorrect)

OP posts:

AugustaFinkNottle · 24/04/2016 11:05

If you really haven't put any of this in writing, you must do it now. Otherwise if she chooses to make a fuss it will be her word against yours, and you can be sure she has kept records.

JenniferYellowShat · 24/04/2016 11:16

Thanks for answering me OP, I can't begin to imagine how frightening and stressful it all was especially in the initial hospital.

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