get it out before she pops 2

[littlemaemae]

Following on from aibu to take dd3 to a&e

Littlemae thankyou, but you are doing amazing. I have been lurking here throughout, worried about you both. It is really hard for me to comment without panicking you too much, but I feel so dreadfully sorry for you all. (My situation was very different, meningitis missed by gps, hospitals etc)
I went on to have another child, she is a wonderful 12 year old now. I would also say that if you have to cry and show the doctors how upset you are, that is not necessarily a bad thing, sometimes that can get some action! Another thing that really pisses me off is that children are sometimes not taken as seriously as adults (amazingly!)
If an adult was in so much pain and discomfort I am sure they would be sorted by now!
Anyway, the very best of luck. You are doing fantastic, keep it up xx

Thank you for all the support and great advice.
I will try my best to ask all the right questions and I have looked on the GOSH website and it looks very good, I didn't know that you could asked to be referred to a specific hospital of your choice so I was ask the consultant tomorrow about it.

I presume you've already seen this on the GOSH website. http://www.gosh.nhs.uk/medical-information/clinical-specialties/gastroenterology-information-parents-and-visitors/conditions-we-treat

there are even some useful links to relevant consultants and their secretaries.

Channel your inner tiger mum- ness and roar!!!

Op I Don't think it's about asking the "right" questions. Just asking questions, lots of questions, any questions until you are happy you know what is happening, why and when.

(GOSH is amazing, a family member was there as a tiny baby and it's always been a place my Mum has talked about as world leading - which I'm sure it probably is in some fields).

I keep (hopefully) looking in on this thread every day. Horrified that there is no real improvement and hope your little daughter gets some relief soon. Thinking of you all.

Poor little girl! Those photos are shocking. Sending her and you lots of hugs. I really hope they manage to sort it out soon.

I wish she was at GOSH - they have such a great reputation.

Sending you love and awe at your amazing strength

In most areas your consultant won't be able to refer you out of region unless they feel it's the only option. That's because they don't hold the purchasing power. Your GP does. Still worth a try of course. Sounds like he's trying to help you now.
You have a legal right to choose where you are treated for outpatient appointments but not urgent or emergency care. So you can ask your GP to refer you to GOSH.

Hope tomorrow brings some help for your DD. You're doing brilliantly.

Gosh is tertiary (specialist) and a consultant or paed has to refer.
Gp cannot usually refer to gosh.
Get her back to your local hosp tomortow.

The pain won't be constant necessarily it will come in waves.

Still thinking of you all sorry I still dont have anything to add x

Hope you all get some rest tonight. You will get further quicker going back to see consultant in the morning and being classed as an inpatient transfer. Going to Leicester tonight wouldn't really help speed things up.

Just popping up to check in with you all again. Thinking of you all and sending support from afar. I wouldn't want to be in your position but, were I ever, I would hanker for even half of your resolve, courage and cojones! Keep at it, stay strong x

Hope she had a good nights sleep, it sounds like the consultant is keen to help which is great but I think you need to ask him to send her elsewhere now.

I'm trying to vaguely work out how many times I have been to the toilet since you started your first thread.

It doesn't bear thinking about.

I am so stressed out I can barely function. I really feel like I am making it all up or its a dream.
I don't know if we are staying in, going home, being transferred.
If she is going to get any relief soon. If this will actually be resolved.
And our letting agent is inspecting today anytime between now and 6pm I asked them to cancel they said no and will let themselves in.
I have issues with my privacy being invaded and my housekeeping scrutinised. I suffer from mild ocd and it's really adding to the pressure. We are waiting in asda cafe so we don't go home and mess it up.

Thank you for the lovely messages.
We are exhausted and need DD to get better and get back to normality.

I can not imagine how families with seriously ill children cope, I know some previous posters have sadly been in the most awful of positions. I am thinking of you and how brave and amazing you all are

And our letting agent is inspecting today anytime between now and 6pm I asked them to cancel they said no and will let themselves in.

You've withdrawn permission for them to inspect, so I don't believe they have any right ot let themselves in. You do, in fact, have the right to privacy.

I know what you mean about families with seriously ill children Mae but actually I think your anxiety may be to do with the fact that there isn't anything happening or a plan so you are flailing around with nothing to grasp. It seemed that your anxiety was less when you were in hospital, they were taking it seriously and there was a plan.
I hope you get a plan in place today.

Morning littlemae, my son is under gosh gastro for constipation and reflux. We see a consultant called dr hill, they have been really lovely and the are the first drs to say that chronic constipation is not normal they booked us in urgently for a colonoscopy, suction rectal biopsy and some other tests for his reflux. Unfortunately because my son has a blood condition he hasn't been well enough to have it done for the colonoscopy you have to have bowel prep for 24 hours before meaning lots of laxatives and only clear liquids and jelly oh and no red or purple liquids. we made it through the 24hour bowel prep but unfortunately my son spiked a fever a few minutes before going down . Also the bowel prep didn't work as my son was to constipated so I was told the coloscopy wouldn't have worked, my son didn't clear out properly so the colonoscopy wouldn't have worked anyway so next time we will have to go in hospital earlier these tests are done under a general anaesthetic. But I was informed that the aneastnatists at gosh are some of the best in the world and they can sometimes do it without having to ventilate. Hope this helps.

I told them DD was in hospital and I didn't know if I would get a chance to come home and tidy up and I had no idea what state dp had left it in at the time.
She had no sympathy just said it was inconvenient for them to change it. We are round the corner from the office.
Do they think I am trying it on?
They know DD.
I am getting Myself would up and I know it's not important

It doesn't matter if it's inconvenient for the letting agent, they still don't have any right to just let themselves into the house unless it's an emergency such as a gas leak.

I'm certain that the letting agent isn't looking for a show home level of tidyness. They are checking for things that have an effect on the house beyond normal wear and tear, so things like pets (if not allowed in the agreement), radical redecorating, appliances missing etc. You'll be fine.

And yes, they should reschedule.

Letting agents are clearly ducks but don't worry they can't expect show home standards. They will do a perfunctory look and get on with something else. Good luck with something happens in today. I'm near Leicester so if you end up here and need anything at all let me know

Dicks not ducks!