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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

do be annoyed our sex life is being restricted?

102 replies

TooAswellAlso · 18/03/2016 09:10

By someone deciding how often we should be having sex?

DP has type 1 diabetes and with with ED. he has been amazing at getting it dealt with by the GP, and for a few years we have had a regular prescription for a variant of sex drug. (It changes)

We always got it in packs of four. Sometimes we would use this in a week, sometimes over a month (health has meant we haven't used any for a few weeks but that's not long term)

But he's just received a letter saying he will be restricted to four tablets a month. One a week.

It's so hard living with ED, the spontaneous element is already hindered, there's emotions attached to it I couldn't explain (both from his side and mine) but this just seems a kick in the teeth.

He's made an appointment and is going to enquire about a private script or any leeway, but AIBU to be annoyed that someone somewhere decided sex once a week is all we are "allowed"?

OP posts:
xenapants · 21/03/2016 09:48

It's like smoking cessation therapy on the NHS. Yes, they'll prescribe NRT because smoking cessation is a medical issue, but only in set amounts. They won't prescribe a packet of Nicorette for each day just because your cravings are more frequent than the amount prescribed and that's the amount you want. Anything over and above what they deem necessary you need to buy yourself and rightly so. Where do people think the money for this stuff comes from? The NHS fairy?

Kewcumber · 21/03/2016 10:00

Surely in this case the cost to the NHS of the drugs is way lower than the price of the NHS prescription - so surely the NHS should encourage GP's to prescribe as much as they like as it helps fund other more expensive drugs Confused

LordoftheTits · 21/03/2016 10:02

Lloyds Pharmacy sell them without prescription in varying strengths and brands. You can buy four tablets for £16 or so, which isn't hideously expensive to top up your existing prescription.

pippistrelle · 21/03/2016 10:04

Not fairies, no. I'd like to see an NHS properly funded from taxes.

ExasperatedAlmostAlways · 21/03/2016 10:10

Once a week! That's rubbish I couldn't deal with that! Must be tough going for you both! wonder who comes up with that number!

IPityThePontipines · 21/03/2016 11:35

Xenapants - you can bust out the bold font all you want, but having a friend with a medical condition doesn't equate to having a knowledge of exactly what medical services are required to treat Diabetes complications and what the financial costs of these treatments are.

If one little pill a few times a week was enough to keep every type 1 Diabetic in a good state of compliance, it would be prescribed to every diabetic, because the cost savings would be so huge.

Comparing the ED medication in this circumstance with Nicorette gum is ludicrous.

5608Carrie · 21/03/2016 20:36

Lloyds pharmacy sell them without prescription in varying strengths and brands. You can buy four tablets for £16 or so, which isn't hideously expensive to top up your existing prescription.

If they do they are breaking the law. Thay are a Prescription Only Medication as defined by the the Medicines Act 1968

LordoftheTits · 21/03/2016 20:39

5608Carrie

They sell it the same way you can buy norethisterone from Boots online. Is that not also a prescription only medication or is that different?

glueandstick · 21/03/2016 20:39

A private prescription usually has an £8 dispensing charge (here any how) and then the cost of the medicine. You may also have to pay your GP to write a script up (here it's £20)

iyamehooru · 21/03/2016 20:43

YABU your sex life is not being restricted, you are able to have one shag a week courtesy of the NHS and any others you have you'd have to pay for yourself.

Although it's harsh as your DP's ED is due to a medical condition through no fault of his own, but in the grand scheme of things paying for meds to assist isn't too much to ask.

5608Carrie · 21/03/2016 22:42

Lord of the tits
That is a private prescription issued by an online prescriber after an online consultation. I don't think they would prescribe if they were aware that the patient was under the care of another prescriber.

madamginger · 22/03/2016 00:04

Lots of pharmacies offer sildenafil for sale. It will be under something called a PGD, and it's perfectly legal.
Lots of prescription only medicines are offered as PGDs inc antibiotics, sildenafil, malarone, the pill and norethisterone.

5608Carrie · 22/03/2016 08:07

Madamginger the rules of a PGD usually state the requirement for an individual consultation with the prescriber and not to be under the care of another prescriber for the same condition. Therefore it is unlikely Slidenafil would be supplied.

They are supplied by way of a type of group prescription if you meet the specification of the group.

The PGD guidelines specifically state PGDs should not be used to circumvent the repeat prescribing systems used in general practice.

Lanark2 · 22/03/2016 08:10

Its prob because they can be kind of used recreationally so have are resale value

xenapants · 23/03/2016 07:14

Comparing the ED medication in this circumstance with Nicorette gum is ludicrous.

It really isn't. The logistics of the comparison are sound: you don't get to demand an amount of medication on the NHS because that's how much you want. You get what's available to you because someone else is paying for the cost of it.

What is ludicrous is expecting the NHS to pay to fund someone's desire to shag as many times as they like, since PIV sex on tap isn't a medical necessity.

TooAswellAlso · 23/03/2016 12:08

I've left this for a few days as I have had an outcome we are happy with, which I posted.

But Xena, I have to emphasise it is Not just PIV sex. It's any kind of sexual activity on his part. Without drugs his penis does nothing at all. He also struggles with the emotional affect of this.

It's not a case of it only being a semi, being able to give blow jobs or hand jobs. You can do nothing with it.

OP posts:
xenapants · 23/03/2016 12:21

I understand that, I really do, I just don't think it's the NHS's place to fund sex however many times you want/he wants it in a week or for you to complain that the help they are funding for you isn't adequate for your desires. It's not a medical necessity to have sex x number of times a week and the NHS is struggling badly already. But I'm glad you've got an outcome you're happy with.

xenapants · 23/03/2016 12:25

A better analogy than the smoking cessation therapy might be the prescription of gluten free items, for example. If someone's entitled to say, one loaf of GF bread a week on the NHS (I don't know what the figures actually are), they don't get to then turn around and say "But I want more sandwiches than that in a week, give me a larger prescription". You buy the surplus yourself, because while it's a medical necessity to avoid gluten it isn't a medical necessity to have sandwiches as many times a week as you want them.

TooAswellAlso · 23/03/2016 13:04

I do get your analogies, and they do make sense to me. I think my annoyance was at the once a week thing - who made that decision for instance that once a week was the right amount? Why not twice? Being in a loving relationship in your 30s it seems rather restrictive.

I didn't know before I posted here that a private prescription would definitely be an option, so I am glad I posted.

OP posts:
glueandstick · 23/03/2016 22:18

You may be able to strike a deal prescription wise with a private urologist. Check your local private hospital or private wing of the local hospital. They see this stuff all the time and there may be alternatives. Might even be worth the initial comsultation to talk through options as you're both young and have many years that could be very frustrating.

TheRealBarenziah · 23/03/2016 23:13

OP, I'm glad you're happy with the outcome. But for future reference, see my previous post on this thread - your GP should prescribe as many sildenafil tablets as are required. Honestly. Those are the rules. Clearly if he was asking for 28 a month the GP might start to think it was odd, but 8 a month is standard, and I have a couple of patients on 12 a month. Sex is good for your physical and mental health Smile

notonyurjellybellynelly · 24/03/2016 06:54

It's not a case of it only being a semi, being able to give blow jobs or hand jobs. You can do nothing with it

Im sorry you've had to be so explicit due to some of the posters on this thread being crass beyond belief.

But Its great you've got things sorted out. Smile

TooAswellAlso · 24/03/2016 13:00

Glue we are seeing an NHS urologist in the future, so hoping that helps

OP posts:
TooAswellAlso · 24/03/2016 13:00

Thank you barenziah

OP posts:
TooAswellAlso · 24/03/2016 13:02

Notonyour I think it's just people don't understand the full effect of ED - I know I didn't before this with DP

OP posts:
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