Very long term lurker here but I can't stop myself posting on this.
I have been on the higher rate mobility DLA for a while, l have been working the whole time.
Looking at the points system for PIP I will no longer qualify.
I am the type of person who generally doesn't sit down and worry about something that will happen in the unspecified future, but I am terrified. No other word for it.
It is not the loss of the money, or the car, it is that I will lose the blue badge. I realise I can apply to the council for assessment for this but I'm guessing the council will be stricter than the PIP assessment.
Then what? I cannot cope without it. I am in so much pain daily it takes all my strength not to scream at times. I am concentrating so much to put one foot in front of the other, to hide from my kids the agony I'm in I forget things, I left the car door open this evening for a good couple of hours this evening!
And when I do lose PIP what are they saying? Are they saying I have no right to call myself disabled? That all this effort is for nothing?
So when people say things like cuts need to be made they don't realise the effort it takes some of us just to keep going. This shit with PIP makes me want to just give up and stop but I have wonderful kids who deserve a long and happy life, they need their mum, so I don't even have that option anymore.
And FYI I'm not on DLA as a life style choice, it helps me fucking live!