DS4 (aged 2) has 6 consultants (ent, eyes, neuro, plastic surgeon, genetics and general paediatrician). Most of them we know. The paediatrician we know extremely well (first name terms, will chat to us if she sees us in the corridor, came to see me in HDU when I had ds5 etc). The neurosurgeon we have never met, just 2 of his registrars and an sho. It's looking more likely that DS4 will need major brain surgery at some point in the next couple of years. The general paed has been keeping him stable with minor procedures under ga in the hope that this will be enough but it's not looking great at the moment.
If he needs this operation I want to actually meet the neurosurgeon and discuss the pros and cons before agreeing to DS4 having the operation. DH thinks I'm being ridiculous and the quick "here's the consent form, any questions?" chat you get just before the operation is fine. Maybe I'm just being precious but all the elective surgery me or my children have had has been done by someone we know, not a stranger. This man has never met us or DS4.
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AIBU?
to want to meet the surgeon before agreeing to major surgery for my child
18 replies
elliejjtiny · 29/07/2015 11:20
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