To think that a lot of the time having someone in the family with a disability does mean being long term poor?

[extremepie]

Obviously this is not the case for everyone but it certainly is for me!

I know that families with a disabled member do get extra help in the form of extra tax credits, DLA, carer's allowance ha! etc but aibu to think that due to the often extra expenses that are incurred by having someone with a disability in the family all this doesn't go as far as you might think?

Due to my current circumstances, I am not able to work and I can't see this changing in the near to moderate future unless something drastically changes. This is not unusual, as a lot of us just can't work around all the medical appointments, time off required to look after them etc so working is just not feasible but I hate the idea that this current situation is all I have to look forward to in the future and that my financial situation will not really improve :(

Aibu to think I'm not alone in this and that for a lot of people having to manage the needs to someone with a disability means they are struggle in the long term? In most circumstances if your money situation is tight you can either try and earn more money or cut your expenses but often people with a disabled family member can't do either!

And that volunteer has no expenses, doesn't need to travel, eat or sleep anywhere?

And that's before we get onto availability.

But wayhey! With lots of extra work from everyone including themselves, your friend gets to run. That's great.

But when you're running, no one needs to put in that extra, do they?

I'm still wondering about the 'modest rent of £85 per week'.

Could you elaborate please? I'd like to know where in the country this would be and what sort of property. We can all move there and our problems will be solved at a stroke.

I'm struggling to decide whether happymum or chelsy is actually katie Hopkins. One of them must be as there can't be three people so vile and blinkered on this earth.

I don't think she's Kaite Hopkins...IDS himself maybe..after all, the brassneck that bloke has is similar to what Smuggy has.

The tandem bike guides are volunteers, too.

Fancy, They were sending emails out about some park in London offering tandem guides and 3 wheels.

The rent is irrelevant if you don't work and are on full benefits as it's paid for in full anyway unless you under occupy. So if its more then the net amount of benefits is even higher. Not exactly poor is it given the min on that rent without DLA and CTax was net £19k so about £24k if it had to be earned.

So it's horrible to expect people to self support as much as possible or to think people with disabilities or caring responsibilities shouldn't be able to work. Right . MN allows people to have their own opinions despite what others think you know, it's a site for adults.

My son takes part in a disabled sport. SS pay for his 1:1 now. Before that I did (£45 an hour). SS keep trying to take the money off him so I have to kick off every now and then to keep access open.

My son will require 24 hour care, he cannot talk, he needs help dressing himself.

Positive thinking is not going to get him working.

Some people will sadly never be able to work.

No, Happy, it is not paid in full if you private let and are under the VERY low caps.

Still trying to figure out how I was supposed to go out and work had DD1 lived . . .

The best attitude in the world made no difference to her cancer.

I'd rather have worked myself to death, be dead now, than have had her go through a second of that and die, much less have had to claim benefits.

I'd be willing to swap being poor forever, working forever, giving all I earned bar a roof than be a disabled person or a parent of a child like that.

Fucking soul-destroying, even more so when you have judgey fucks sticking the boot in you telling you how you should be conducting yourself.

Any takers? Anyone care to swap? If only it worked that way.

Actually my dh works hard despite diabetes and being blind in one eye. He's out at work now as it happens and won't be in until 3am tomorrow. So no we don't get all our rent paid for. If our rent was £85 instead of £250 (and ours is cheap because we are long term tenants and our landlord wants to keep us. We are not in London) then we'd be rolling in it. So where is this wonderful place? I'm starting to think you made it up beach huts don't count

The rent is irrelevant if you don't work and are on full benefits as it's paid for in full anyway unless you under occupy

No it is not. How many times have you been advised to actually check the rules before you spout rubbish?

Will everyone just.. take a breathe and look at my lovely picture.

Nobody commented on my other thread and ducks can make anyone smile.... especially 90 foot tall ones.

No happy rent is NOT paid in full. I said that upthread you obvs couldnt be arsed to read.

My local housing allowance is £91 per week. We do not under or over occupy. The local private rents start at at least £100 per week but most are £110 per week +. Get your facts right before you start spouting your venom against people on benefits.

I love that duck.

Happy mum do you actually realise you are communicating with real people on this thread not just words on a screen. Do you even care how much your posts upset people? You are an attention seeking low life and have been on every thread I have seen you on. Please just either grow up or go away.

Kitty.

I'm leaving this thread. I was in hospital yesterday for treatment under GA, so feel quite ropey. I'm going to find some other threads where people don't go out of their way to make you feel like shit!

Pixel, beach huts are $25 actually, on Koh Tao.

The thing that some posters dont seem to grasp with their narrow view on physical disabilities, is that a large chunk of people who have a physical disability are not just missing a leg or blind or whatever. They are ill. And not just a bit under the weather, but physically unable to get to work whenever they are scheduled to be there.

And the same with mental issues, its not so simple as popping a pill and they can go to work hunky dory, a large chunk (forgive my lack of stats on this) of people who consider themselves disabled by their mental condition do so because it is poorly controlled.

Happy I don't have a single disabled friend who doesn't want to work. Chances are if you are too ill to work, you are too ill for lots of other fun things too. I would love to have a career, I was hugely ambitious (and able) at school. I still have my brains, my body just won't let me do many thing. I tried volunteering for two hours a week, it was too much.

I hate it when people come on and say 'lots of disabled people can work.' Well yes, some can (and do), many don't simply because it's fucking impossible finding some,one who will employ you, many many people just realistically cannot.

I actually saw someone on here write ' I know if I fever broke my back or something, I would be absolutely determined to get back to work, I would do an office job, I couldn't bear sitting around all day.' People are clueless about things like severe pain, severe fatigue, vertigo, anxiety, and other hidden issues. Disability is hit, you are at it's mercy.

Saw someone on another thread on just this issue I mean.

Happy

We DO try to self support where possible!!! As said we get NO benefits other than DLA (which isn't means tested) as my DP earns above the very low threshold and we have no children.

For him to work each day he has to get me out of bed, dressed, out the house, into the car, over to my parents, go to work, come back to my parents, take me home etc etc.

WE DO NOT HAVE ENOUGH to pay for a private carer and I can not be left on my own... So what do you suggest we do... My DP give up his job!?

Sorry what's Koh Tao?