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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think that a lot of the time having someone in the family with a disability does mean being long term poor?

575 replies

extremepie · 31/05/2014 14:06

Obviously this is not the case for everyone but it certainly is for me!

I know that families with a disabled member do get extra help in the form of extra tax credits, DLA, carer's allowance ha! etc but aibu to think that due to the often extra expenses that are incurred by having someone with a disability in the family all this doesn't go as far as you might think?

Due to my current circumstances, I am not able to work and I can't see this changing in the near to moderate future unless something drastically changes. This is not unusual, as a lot of us just can't work around all the medical appointments, time off required to look after them etc so working is just not feasible but I hate the idea that this current situation is all I have to look forward to in the future and that my financial situation will not really improve :(

Aibu to think I'm not alone in this and that for a lot of people having to manage the needs to someone with a disability means they are struggle in the long term? In most circumstances if your money situation is tight you can either try and earn more money or cut your expenses but often people with a disabled family member can't do either!

OP posts:
FidelineandFumblin · 31/05/2014 23:25

Lefty

Grin I might ring the DVLA on Monday and start describing the additional needs mt DC has as a result of Autism. Should be a free five minutes' worth of entertainment.

BeyondTheLimitsOfAcceptability · 31/05/2014 23:26

Its not stopping her having her opinion though, just stopping her sharing it here as its "not conductive to the site" or whatever that message is.

There are plenty of parents of disabled children, plenty of disabled parents, plenty of carers of disabled adults here. Why does our right to use the site come below posters like hers right to spout whatever hurtful shite they can think up this week.

Smilesandpiles · 31/05/2014 23:28

It does seem to be only her though...so why IS she getting away with it?

FidelineandFumblin · 31/05/2014 23:28

Ah well she DIDN'T catch me at a low time - the crockery is quite safe Smile

I might go and start a campaign of spiteful criticism against boarding school mums though to compare if Happy and I get treated the same Wink

You'll probably all have to shout quite loud to let me know how it turns out Grin

PartialFancy · 31/05/2014 23:29

If it's deleted, that'll be a perfectly decent, well-expressed OP that should have been a worthwhile thread, gone.

Whatsername will be happy at least - the one who doesn't want us to talk about life with a a disability being a bit shit.

(Sorry, it's late, I'm tired, can't remember name.)

BeyondTheLimitsOfAcceptability · 31/05/2014 23:29

Seriously, i think mnhq need to start taking a very hard line with the disabilist posts, it will not be tolerated, full stop. Nothing short of that is good enough.

Retropear · 31/05/2014 23:31

I think she gets away with the sahp bashing because that is how MN think for sure,can't speak for other areas she has issues with.

I read a lot of the sahp threads and the running down,belittling,de- valuing and general ripping to shreds of parents(mainly mothers) who don't work is getting worse.Some really nasty comments just get left and sahp are goaded and expected to bite their lips and ignore.

I think it's encouraged by the gov and extended on here under the guise of feminism.

There is very little support for sahp on here these days.Mumsnet is really WorkingMumsnet. You're nothing if you want to stay at home with your children.I am shocked that it is now extending to parents who have no choice and disability to contend with on top.

Smilesandpiles · 31/05/2014 23:31

If they don't it's making a mockery of their own campaign Beyond .

Making them out to be hypocrites and as bad as these trolls themselves.

Preciousbane · 31/05/2014 23:31

This reply has been deleted

Message withdrawn at poster's request.

LeftyLoony · 31/05/2014 23:31

It's not actually disablism, though.
It's superior, reactionary shite from someone who knows fuck all.

She HAS caught me at incredibly bad times. When life on its own was enough to make me suicidal.

But I'm still here. I DIDN'T hurt myself. She's not won.

FidelineandFumblin · 31/05/2014 23:33

You mean Chelsy? Yes she's got me a bit worried- my 40th is coming up - she doesn't paint a very rosy picture does she? We will all be disabled (please god not DH too!) but we can all work anyway no matter what problem or how bad or what job (hurrah!)

Smilesandpiles · 31/05/2014 23:34

That poster is consistant on the benefit threads, it's not just SAHP, it's benefits and LP too.

It's the same thing every single time. You can almost rely on that poster posting bile a few minutes after the opening post.

Maryz · 31/05/2014 23:34

This reply has been deleted

Message withdrawn at poster's request.

FidelineandFumblin · 31/05/2014 23:36

I think she gets away with the sahp bashing because that is how MN think for sure

YY

And gets away with a lot more because lone parent and 'scrounger' bashing are currently oh-so fashionable so she hides behind her right to a political viewpoint. I do think this thread is somewhat different though.

LeftyLoony · 31/05/2014 23:36

Don't forget that MN did that research FOR THE GOVERNMENT on what's needed to get parents of disabled kids into work. Which didn't address any of the more complex issues, just assuming childcare would fix it.

Hmm. Maybe there is an agenda here.

Retropear · 31/05/2014 23:37

Smiles I can pick a thread before opening and know which ones she'll be on.I just knew before clicking on here that she'd be on it and the gist of what would be spouted.

If you look on the bright side she was pretty solitary in her views.

FiveFingerDeathPunch · 31/05/2014 23:37

LeftyLoony so true

Smilesandpiles · 31/05/2014 23:38

She may be soliatry on her views on this thread but I've started getting abuse from a neighbours spouting the same shit...so at the moment it's relentless.

FidelineandFumblin · 31/05/2014 23:39

It isn't just opinion though Maryz, it's much much more vicious and targetted and terrier like. She really puts the boot in to people who patently need support.

BeyondTheLimitsOfAcceptability · 31/05/2014 23:39

She doesnt have to be directly negative towards the disabled-ness for it to count though, just that she is negative because of the disabled-ness? Iyswim?

But anyway, mn have their own "not conductive" clause, so they should use that. Imagine if the leftist papers saw how nasty some posters are to disabled parents/parents of disabled children... That'd look good on hq, wouldnt it...

Smilesandpiles · 31/05/2014 23:39

Sorry about the spelling. I'm tired, ds isn't sleeping again and I can't find my glasses.

Retropear · 31/05/2014 23:39

Oh Lefty there is.

It's childcare or nothing.Choice doesn't come into the question these days on MN.

FidelineandFumblin · 31/05/2014 23:40

Jeez Lefty you're right Hmm

FiveFingerDeathPunch · 31/05/2014 23:41

www.mumsnet.com/campaigns/this-is-my-child

FidelineandFumblin · 31/05/2014 23:42