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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be totally pissed off with some doctors sweeping statement about diabetes

78 replies

Blossomflowers · 28/11/2013 12:26

I am listening to Jeremy Vine and just heard a Doc state that Type 2 Diabetes is totally avoidable. I am sick and tired of people assuming that if you are type 2 that you stuff yourself with pies and cakes, lazy and brought this on yourself. I am none of the above and not overweight but am very active unfortunately I am type 2. I am fuming. AIBU to thia this doctor is a twat and should think before he speaks

OP posts:
JellyBabiesSaveLives · 28/11/2013 18:46

My pet hate is the idea that people with type 2 diabetes "progress" to type 1 when they start taking insulin. Type 1 is an autoimmune disease where the body kills off the insulin-producing cells in the pancreas. Type 2 is where you make insulin perfectly well but are resistant to it and therefore need loads more - and eventually the pancreas keels over from overwork, so low-carbing/tablets are not enough any more. But you don't progress from one type to the other.

And myth number 2 - that adults don't get Type 1. As many adults are diagnosed with Type 1 every year, as children. %-wise, that's less, as there are more adults in the world, but still. You can get it at any time. My FIL was 67 when he got it, 6 months after ds2 (who was 4).

Hmm, I think I need to persuade dh that we should move somewhere hot. We still have 2 children without T1 ... Grin. I did bust a gut to get them both flu jabs though, since there is a fair bit of evidence that flu can trigger it.

claig · 28/11/2013 18:47

Could there be a possble link with some vaccinations?

FryOneFatManic · 28/11/2013 18:52

I think if the medics say low carbing isn't the answer, why is that a friend of DD, who was diagnosed with diabetes at 4 yrs old, has her insulin requirements matched to the carbs in her meal.

Whenever she was around and having tea with us, I had to weigh the carbs and she measured out 1 unit per 10g of carbs.

And it didn't matter how much protein/veg I put on her plate, that wasn't measured.

SantiagoToots · 28/11/2013 18:56

My mum developed Type I aged 30. She had GD when pregnant with my sister - it wasn't diagnosed at the time but a massive weight gain and a nearly 12lb baby are pretty big signs. Within 6 months she had Type I. She'd never been overweight until the second pregnancy.

She has spent nearly 40 years being told by the NHS to fill up on bread/cereal/pasta/potatoes. Fucknuts.

SpottyTeacakes · 28/11/2013 19:01

Exactly fry. It's all about the carbs. No carbs = no insulin. Years ago, though, when insulin was mixed into long acting and quick acting, you had to eat carbs regularly to stop you going hypo. Now you just inject for what you eat. Lucky people get insulin pumps but the nhs won't fund them for most Sad

ivykaty44 · 28/11/2013 19:02

If only I'd known that before having my daughter, who subsequently developed Type 1, perhaps I could have 'prevented' it. However, I shall know for next time
this was where I started trying to say about research and looking into factors as to why people that live in certain areas do not get autoimmune disease, as i think it is really important it isn't a case of me saying how you should have prevented this happening but how to look at preventing in the future. Your family is at risk from autoimmune disease you now know that and you are likely to all be more prone and future generations. You are very scathing about the equator, but when you look at research autoI diseases are more prevalent in the northern hemisphere and there is a lot of thought about vitamin d, you may also know there is a large difference between the Canadian government and Uk government stance on this. Moving to another country is impractical but looking at ways to possible use this knowledge of the areas where the disease is more prevalent may help in the future.

Mittensonkittens · 28/11/2013 19:06

Pump funding is actually more freely accessible now.
Sorry I know it's off topic a bit but most pcts now have quite a bit of funding. I had to fight for my pump five years ago but apparently they are much easier to come by now.

judytheobscure · 28/11/2013 19:13

ivy you have completely missed my point from the start. I am not 'scathing' as you put it, about research done, that may one day in the future be able to prevent diabetes. I am scathing about being told that as of now, it is a preventable disease, if only I would do some research into the lifestyles and habits of people in hot countries. As of now, it isn't. And that's an end to it. So thanks for the patronising lecture, but I don't really have anything else to say about it.

SpottyTeacakes · 28/11/2013 19:25

That's interesting mittens I've only looked at the NICE guidelines and I don't fit the criteria. Do you think it's worth me asking my consultant?

Mittensonkittens · 28/11/2013 19:42

Yes I would.
My dad is a type 1/2 (a type 1 and a half apparently, who knew it existed?!) and was told originally he didn't fit the criteria but now has been told that he would be able to have one now that funding is more widely available.

They seem to be quite happy to give them out at my clinic whereas as I said five years ago I had to campaign quite hard for mine. I was turned down twice. However it was worth it as it has revolutionised my life.

SpottyTeacakes · 28/11/2013 19:48

Hmm thank you, I will definitely ask when I go back. I recently DKA'd and spent four days in ITU now I've got a cold and it's just such a struggle at the moment. (Sorry for hijack op)

missinglalaland · 28/11/2013 19:52

YANBU!
But what do you expect from the Jeremy Vine Show! Vile stuff.

Type 2 Diabetes runs in my family. Some very thin and active people in my family have suffered from it (think over 80s competitive swimming!)

Mittensonkittens · 28/11/2013 19:55

In what way would you not meet the criteria? I would say that the hospital stay would count strongly in your favour.

SpottyTeacakes · 28/11/2013 20:01

Well NICE guideline state you have to either get debilitating hypos or have an hba1c consistently over 8.5 of which I have neither, although haven't had an hba1c done in almost a year

Mittensonkittens · 28/11/2013 20:05

I had neither of those.
If you say it will help your mental health it counts in your favour by the way! I would definitely speak to the consultant about it.

pootlebug · 28/11/2013 20:15

Interesting on the pumps. DH's hypos are (touch wood) relatively rare, but the last full-on one involved a fractured skull from a fit and several days in Intensive Care. But he's never got anywhere with getting a pump.

The only Type 1 diabetics I've ever met with a pump either live in the US, or are small children, or are doctors....who presumably have a better idea who to talk to to get the pump.

Mittensonkittens · 28/11/2013 20:18

I was the only person I knew who had one at first, but now I know several other people with one.

Most doctors have one because they know that it's the best way of treating diabetes, IMO anyway!

SpottyTeacakes · 28/11/2013 20:20

My consultant is diabetic I bet he has one Grin he can probably afford it privately though!

Mittensonkittens · 28/11/2013 20:25

I remember reading the percentage of healthcare professionals with diabetes who had a pump and it was about 78% as I recall. Much higher than the general population!

I wasn't having bad hypos but a 24 hour acting insulin, or even trying levemir which works for 12 hours wasn't working for me. I need less insulin overnight than in the day so lantus caused me to be either low overnight but ok in the day or ok in the night but high in the day. It was hopeless. Now I have a basal rate of 0.02 units an hour overnight and up to 1.4 unit per hour at some points in the day. A massive difference.

MrsPnut · 28/11/2013 20:31

My mum has late onset type 1 diabetes which was diagnosed in her 50's. She went to the doctor because she'd had pins and needles in her foot for 6 months and when her blood glucose was tested it was about 25 and she has struggled ever since to get it below 10.

DiamondDoris · 28/11/2013 21:06

I'm a fan of low carb diets. I routinely eat low carb but give into carbs occasionally. My DD is type 1 and I find it difficult to control her BG at times. I suggested low carb to the diabetes nurse but she looked at me as though I had two heads. The NHS say children need carbs, but is that actually true? I'd sometimes like to give my DD just protein, veg and fat without the nasty carbs from time to time. My question is, would it hurt her to go without the carbs? She's 10.

Another thing re diabetes type 1, I was extremely overweight in pregnancy - I ate cake A LOT - does anybody think I may have knackered my daughter's pancreas like that?

DiamondDoris · 28/11/2013 21:12

Ignore 2nd paragraph - it doesn't make sense as in type 1 being an auto-immune disease.

SpottyTeacakes · 28/11/2013 21:16

Hmm I don't know for her age I'm afraid. I wouldn't like to cut any food group out of my dc's diet but I can understand why you're considering it

Mittensonkittens · 28/11/2013 21:53

No Diamond.
It's autoimmune caused by the body attacking itself and it's own cells. Possibly caused by a virus. Nothing to do with what you did when pregnant, put that guilt to rest. It's not your fault x

SidandAndyssextoy · 28/11/2013 22:07

I'm overweight and have been trying seriously to lose weight for a long time without much success, including with an NHS dietician. I got GD with my second pregnancy and kept an eye on my BG levels, and they suggest I have Impaired Fasting Glucose. I have done lots of reading and think I have PCOS, which is a hormonal imbalance that leads to a higher incidence of Type II and, wait for it, weight gain.

I am now eating a low GI diet and exercising at least five times a week. The weight isn't shifting easily but the exercise is going brilliantly. I resent the media's portrayal of overweight people as feckless troughers who deserve diabetes. Being handed a hormonal make up that makes you liable to a lifetime of being fat AND diabetes frankly sucks.