you would support my views on conventional clinical care and pharmaceutical prescription? The problems with informed consent at the moment, the inadequate safety studies, the problems with peer review, the prescriber's conflict of interest and so on? Wold yo umind just clarifying for me?
Yes. I've lived it. It is an issue, particularly here because of cultural leaning in medecine in general. However it is an even more pressing issue in areas of medicine where the patient is in someway impaired. Such as gereatics and mental health. I am sure there are other areas where there is a heightened degree of "paternalism" decreasing access to informed consent, but those two specialities are where my personal experience has been focused.
I don't agree with you that it can't be changed for the better. That the fight is lost. That we are helpless and powerless and unable to effect change for the better as non medical people. Becuase the stark undeniable realities in terms of informed consent (and evidence based treamtent) between my late mother in law's care in the 40s compared to the end of her life.
Even in the last couple of decades there has been a huge change towards the way at least we as the people resonsible for the care have been afforded informed consent by proxy. Docs are more willing to discuss the limitations of treatments, willing to not blow a gasket if you come in with studies (of da EBIL internet
and ask questions or even question their med choices.
I don't want to go backwards. Colluding with a paternalistic 'tude towards informed concent will take us back.
I am very invested emotionally in not going back. I am very emotionally invested in moveing forward and not stopping til the end of the rad is reached. However long that may take. She died on the last day of 2012. Freed of the distractions of care, and knocked for six by a grief I didn't expect, (becuase I didn't know that the forced intimacy of care cpuld over ride a lack of an easy relationship and cause .... something that isn't affection or love, but replicates in some way the emotional bond of those) I have had the luxary of time recently to examine what happened to her in more depth, trying to understand to what degree how she was treated medically and socially actively contributed to her sysmptoms and the development of her character and behavoirs.
It could have been different. She could have stood a chance. As a human being she deserved better. And it breaks my heart that it wasn't another way.
So yes, over my cold dead body any element that encourages a paternalistic attidue in medicine rather than trying to cut it out.
There is nothing else I can do for her now, but I can be a teeny tiny miniscule "insignificant on my own, but not so utterly irrelavant as part of the mass" part in combatting the elements of her care that helped destroy her.
And a paternalistic mindset amoung medical professionals was a very very big part of the problem.
It still is a problem, not as bad, but not good enpugh. And it could be better if we keep on chipping away at the attidues that underpin and support its continuded presence.
Oh, and I don't just want Big Alt Med forced to provide unbaised, uncherry picked, good quality studies to support their products. I want Big Pharma pinned against a wall (and beaten with large sticks if needs be) until they do the same.
Unsurpising since I spent so long drowning in piles of meds and having to double check that the newest one wasn't percribed as a "head pat, can't help, please leave my surgery now, here this perscrition will lube the exit" mode, becuase of interaction issues and lack of efficacy.
Plus here, particulary at the beginning, kick backs from pharma companies to docs were a real problem. I preffered her and my life not to decend into a living hell due to florid psycosis or mania becuase some mother fucker in a white coat wanted to raise extra funds via pharmascuitial kick backs for his posho holdiay home in a more expensive bit of Liguria.