Hi. Hope you're ok today.
I noticed that you said you worked until your child was diagnosed and are now their carer, but also said that the only benefits you get are carers allowance and his dla.
You do know that you are entitled to housing benefit, council tax benefit, income support, child tax credits etc, don't you? How are you surviving if CA is your only income? If you haven't already applied for those things - please do so.
I have two children with disabilities. My eldest has autism and erbs palsy and my youngest has autism and adhd. I know what you are saying about routine!
If your child can't cope with dinner a bit late, then he will NOT cope at all with moving to temp accom.
If your problem is no heat or hot water then wear several layers, tuck up under quilts, boil kettles for bathing and hunker down until the boiler is fixed. That will be far less distressing for him than moving to a different home - probably a hostel or b&b, tbh.
I also know what you mean about the working. Me and my husband have our own businesses partly because we simply can't be employed. It doesn't work for us. Employers don't let you let it out of work because the school's phoned and you need to go. Or let you take time off for the eleventy million appoinments your children need! It's doable, many people do, but it's really hard!
When you've got your head round the diagnosis, you can start to look at self employment options as well as employment options.
I know that councils do consider no heating to be a priority (pre children I worked in the housing and repairs dept of a council) and they will be doing everything they can. Keep asking - but keep it polite - and ask them for timescales for repairs, etc. find out what is holding this repair up.