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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be not entirely keen to look after my Grandma

488 replies

StWinifred · 12/10/2012 02:19

My Grandma is 100 years old and rather debilitated, although fully compos mentis.

She was being looked after her by her son, who had lived with her for decades. He had a heart attack in the 1980s and I think the strain of looking after his Mum did for him, and he suffered a fatal heart attack in July.

Since then my parents has been looking after her, in her home, which is a largely original 1930s house.

She went to stay with my parents in their own home (an hour or so away) for a few days a month or so ago. She found this a bit disorienting but they were grateful to get home; this was curtailed when she had to go back home for medical appointment.

A few weeks ago my parents wanted to go away so they asked if I could help, I said she can stay here (in our hours for a week), but there's no way I can go there because of various prearranged commitments locally, school, etc. They didn't think this was a good idea.

My sister proposes early on that she should stay in her home as she has been in the area since birth. My sister has been with her partner (she doesn't believe in marriage I think) for a decade and has no children (doesn't believe in this either). Her idea was that we (my parents, my sister, and I), should look after her a couple of days per week each.

Due to work/childcare I can only do this over the weekend. Last weekend I headed there at 6pm (takes about 1hr 45 to get there) on Saturday and got back home at 5:30pm on Monday to pick up the kids from school. My sister was there from 6pm Monday till 8am Wednesday, working from home Tuesday, and I think planning to on Wednesday also in future, though she had a meeting on Wednesday so left early - in future she might be there until afternoon/evening though.

My father said he thinks I shouldn't go every week on Saturday as it would be disruptive to our family. I haven't made any commitments.

Anyway he called on Tuesday to ask what time I was coming on Sunday, and I said I didn't know I will let you know at the end of the week. He called me today at 11:30pm to ask the same, sorry I don't know, does it make any difference? Well we were thinking of going away for a couple of days, he said. Oh really?

He then sent me a rather nagging email saying they would appreciate a routine, and also could you come round and stay with the kids during half term to balance your sister's 'input'? (My DH has work to go to, locally, so it would be me + kids.)

I replied saying sorry I can't give you a routine after only one visit there, it ain't routine yet, and I'm not about to promise to match my sister, what she does is what she can do, and she's got her circumstances and she mine, and actually I didn't really feel the house was suitable for kids when I was there.

Grandma can't make it up the stairs, so she sleeps in the living room, and there's no toilet down stairs, so there's a commode there. She's got severe incontinence so lots of pads to dispose of, plus the commode to empty. She tends to fall over and she can't be left alone at home for more than about 2 hours. She needs her breakfast, lunch, dinner prepared, plus tea, drinks, etc.

They've been in this house for nearly 3 months now and they have no bed, just two very old 'small single' mattresses on the floor. Apparently they ordered a bed from Homebase but it takes 3 weeks or something? Anyway, I thought this was ridiculous, so when I was there on Saturday I went to a local shop and they said they could deliver a bed on Wednesday. Passed this information on to my father and apparently he couldn't get through to them on the phone, so er, still no bed for me to sleep on this weekend.

There's another empty bedroom for the kids (but no bed) but the window frame is rotten and there's a hole in the window.

My DH doesn't like this arrangement at all, and thinks Grandma should go live with my parents, and that it's their responsibility to look after their mother.

My father OTOH seems to think that its our collective responsibility (the four of us being her only direct descendants), and on that basis I should tell him what I'm doing and when, and not only that but try and 'make up' days that I haven't done (when compared with my sister) because childcare in the week is not practical.

I have told him several times that my DH is not really happy about the situation/disruption to family life (e.g., last Monday and foreseeably all future Mondays was disrupted because I had to get up at 7am to give Grandma her breakfast, after she was up till 00:45 watching TV the night before, and then I had to cycle 12 miles to get to the station to get home, and was way too knackered to cook a meal for the family, or to work with my DS on his 11+ preparation), but rather than taking the attitude that 'you are helping out, thank you very much', it seems to be more a case of 'why aren't you doing more'.

I am not really sure if IABU to be resentful of this attitude.

My parents have never told me what they are doing in advance, they will just do it on the day, and I have followed their lead, so if they want to know for instance what we are doing in half-term, I will tell them the day before, because that's when I will know myself. If they want to go away or something, then give me the dates and I will try and help, but it seems like they just want to go and do some gardening at home, ok well you don't need two weeks notice for that do you, and actually perhaps you can get a bloody bed in before I come round again.

OP posts:
shewhowines · 12/12/2012 13:12

You do seem to be doing too much explaining and discussion in your emails - quite formal language too.

Keep it short and simple.

"I can't help out anymore. The impact has been too great on me, DH and the kids. Sorry but I did ask you ages ago to sort something. Good luck in deciding what needs to be done. If you want help in looking at alternatives, let me know. I'm happy to help but I can't keep disrupting the kids lives in actually caring for Gma."

Broken record from then on. Don't feel guilty. You've gone above and beyond what most people would do.

diddl · 12/12/2012 14:31

Ops GM might be happy enough to not have access to a bathroom.

I wouldn´t want my mum living like that, though.

1charlie1 · 12/12/2012 14:47

Have been lurking on this thread... what shines through - or rather, what envelops the siutation ike a churning dark miasma - is the appalling miserliness of your parents towards money which is NOT THEIRS, and which, in fact, which belongs to a frail old woman who NEEDS it to be spent on her care. The recent email exchanges between you and your parents make me feel ill (literally - I have a little ball of anxiety in my stomach now!) Please, please keep saying, 'No,' to your fathers', frankly, unbelievable and deluded bullshit. Please do not enable his bad, bad behaviour. It's like something out of bloody King Lear.

1charlie1 · 12/12/2012 14:47

'Like', not 'ike'!

merrymouse · 12/12/2012 19:16

Also, you could send a thousand emails and have the most well thought out and reasoned point of view ever, and your parents may still never agree that what you are saying is right.

In the end, all you can control is what you do, not what they think.

theoriginalandbestrookie · 12/12/2012 19:38

One question - do you know at all how much money your grandma actually has ? I mean she may think she has loads, but even if she had a reasonable amount like £10,000 thats not going to last long at £800 per week. I'm not saying that something shouldn't be done but it may be worth trying to find out how much money there actually is, just so you know the full facts.

But yes disengage and I feel in your emails to your parents you are trying to get them to acknowledge and understand your (perfectly valid) position. They won't so stop wasting your energy on that aspect of it. Keep it short and sweet, if you don't live up to what they expect so what, likewise with your sister.

AfterEightMintyy · 12/12/2012 19:44

I am going to go out on a limb and say you are taking advantage of the goodwill and resourcefulness of the Mumsnet collective and you need to ACTUALLY DO SOMETHING YOURSELF OP. Why do you keep coming back when nothing has changed?

StWinithread · 12/12/2012 20:29

TheOriginal, not sure, would be surprised if it's as much as six figures though. I have quite a lot of savings and could loan if need be, rather than get into some usurious equity release or whatever.

After8, what exactly am I supposed to do? People have suggested I call SS, and then what? Grandma tells them to go away everything is fine.

DontmindifIdo · 12/12/2012 21:15

OP - call SS, even if Grandma does tell them it's fine and to go away, if her situation is bad enough, they won't - or at least will contact your parents. That might shock them into action. Point it out to them if SS do decide to take over, they will lose the ability to make the decisions at all, she might end up in a home with her house being sold to pay for it and they'll get nothing and have no way of deciding what's best.

Or you might be wrong, your Grandma might want to talk to that nice lady from Social services and start talking about what she'd like. It also might help you want to talk to Age Concern. They might be able to talk to you about how to approach social services to get them to do something.

Lavenderhoney · 13/12/2012 06:27

Can you call ss and ask to speak to whoever made the visit to your gma? Can you arrange for a visit from the gp or nurse when you are there? To hear and see what is said?

Have you suggested to your gma that you have offered for her to live with you which would be better? Then your dsis and dp can visit her, and do all the driving? You can then arrange for her house sale and will whilst she is about to control it. You can organise carers and spend time with her on both your terms. She probably feels she is too old to be moved about though, and has managed til now. She might not want to face that her child is not really doing her right. She may also feel it won't be long now and she wants her dc/gc to have her money. You should tell her you don't want it, and her care is more important.

I would go ahead with callng the local ss, you have every right and you dont have to ask permission. I would send emails tbh- they are just words after all. No one has to act on them, and it's not changing is it?

Almostfifty · 13/12/2012 07:14

SS will come out and give advice as to how she can live comfortably in her house. They will get occupational health in to install guards around toilets etc, another bannister rail for the stairs and let you know just what is available.

Unless you're worried they'll take her into care because she's not being looked after properly you really should ensure they're called to help get things looked at. If that's your worry, then you all need to take a long hard look at what the situation is as it's obviously not right at all.

WelshMaenad · 13/12/2012 08:07

I'd the GM needs home care but genuinely doesn't have the means to pay for it, SS will pay for it and GM will be assessed to make a small contribution. Even though she owns her property.

I don't understand why you keep making excuses not to ring them, OP. I have worked in the elderly care sector, as well as having personal experience of looking after an older person at home. The woman is shitting into a fucking carrier bag and washing in a bucket. SS will NOT find this appropriate. Stop fannying around and just fucking ring them, for Christ's sake. I am getting so fucked off with your self indulgent lengthy updates when NOTHING IS CHANGING for this poor lady. FUCKING DO SOMETHING.

ChristmasSpiritEndorphins · 13/12/2012 08:07

Can you replace her couch with a new one with practical waterproof fabric? Vinyl, and she could have some soft throws on it if she isn't a fan of the leather look, at least they could be tossed into the washing machine.
All of the chairs in my MIL's nursing home are washable vinyl. (On the dementia floor where she stays) In her own room we placed 2 fabric covered chairs, but that isn't a problem for her, at this point anyways.

Can you talk to her and try and get her to agree to have a small bathroom with a toilet and a shower with a seat installed? Or one of those tubs that you walk into ? Maybe get someone in to do an estimate on the cost?

Jux · 13/12/2012 11:23

Can a stair lift be installed? Then she can at least get to a bathroom for a decent wash, and though stair lifts are a bit slow so it may not help for quick visits to the loo, she could at least stop pooing in the sitting room.

It would also mean she could sleep upstairs in an actual bed (assuming here that she has one).

I'm afraid that what 1charlie1 says about your dps s the main impression I get too.

DH phoned SS on behalf of his demented mum who had been left to wander round in filthy, ragged clothes, herself unwashed and not properly fed, by sFIL. DH explained to SS that sFIL wouldn't even acknowledge there was a problem. As a result, they were persistent - but polite - and eventually got in, did an assessment etc. At that point sFIL got hold of a private agency and they now have a wonderful 'PA' who goes in every day. SFIL wouldn't allow a financial assessment (rich as Croesus anyway) so he pays for the lovely lady (and the cleaner, and the delivered meals) himself. None of it would have happened if dh hadn't persisted with SS himself and got them to persist with sFIL. MIL is now clean, ahs clean clothes, eats proper meals every day, takes her medication every day, and sFIL gets a bit of a break. The house is clean too.

Please call SS.

Lemonylemon · 13/12/2012 11:30

"After8, what exactly am I supposed to do? People have suggested I call SS, and then what? Grandma tells them to go away everything is fine. "

Maybe she does, but you should phone them first, tell them EXACTLY what conditions she is living in, having to wash in a bucket, blah, blah, blah and ask if they could get someone in to assess her. It may be a good idea to actually arrange with SS to be at the house yourself when they turn up. They need to see the situation and not be fobbed off.

Care packages can be put in place through the council. It's not difficult. Your g/m's financial situation will be taken into account, you may also like to advise SS here about your parents' attitude to the money etc.

You are allowing your parents to fob everybody off as to how bad the conditions that your g/m has to live in really are.

And yes, you've been on this thread since early October. It's now mid-December, bloody freezing and your gran is still living in a shit tip appalling state. She is a VERY VULNERABLE OLD LADY who would be of interest to SS.

If you don't have the courage for your parents to know that you've contacted SS, speak to SS and ask them not to let your parents know that it is you that contacted them.

StWinithread · 13/12/2012 14:03

I just want to say thank you for all your comments. My parents are truly in denial about this and I think genuinely believe that I'm the only one that can relieve this situation.

My Mum for instance is evidently convinced that my Grandma will drop dead if she stays with them for 2 weeks while the house is done up a bit.

And my Dad doesn't want to do anything.

They haven't said anything to me since I emailed them a couple of days ago and are clearly angry with me about this. But I will just say 'This is not my responsibility, why are you angry, you are being very unreasonable to me. I will visit my Grandma, but I'm not providing any more care at all.'

Regarding action, I call Help The Aged first of all and let you know what they said.

Lemonylemon · 13/12/2012 14:49

Good for you. Because your g/m really does need all the help she can get - and why shouldn't she at her age?

I agree with you that you are the only person who seems to have a handle on all this.... Good luck with Age UK.

diddl · 13/12/2012 15:15

I hope you get some help/advice.

You are very kind about your parents imo.

I find it hard to think that two adults think it´s OK for your Gran to live as she is-would they be happy to?

Horsemad · 13/12/2012 17:22

I think you are possibly in denial yourself OP or you would gave been banging on SS door to get you GM assessed.

Come on! Two months this thread has been going... You sound intelligent, so why have YOU not done what's necessary?

WelshMaenad · 13/12/2012 17:36

Age UK can do nothing except advise you to ring Ss.

RING SS. STOP FUCKING AROUND.

ChristmasSpiritEndorphins · 14/12/2012 02:47

You say you have some savings, can you just go buy her a new couch? Don't ask her, do it as a Christmas present, organize the current one to be carted off to the dump when the new one arrives. I am sure you could find a fairly inexpensive couch, you don't need to buy anything fantastic, just clean and if possible, wipeable. Then put some plastic over the seats, and a decorative cover or throw over to hide the plastic.

I can see your parents are going to do nothing, don't follow their lead.

Be proactive and instead of musing it over, go to the furniture store and order her what she needs.

Remind your father that a downstairs bathroom will increase the value of the house when he sells it. Although they even have no flushing toilet in their own home, I can't imagine how that works out.

WynkenBlynkenandNod · 14/12/2012 03:52

I've just lost a long post about Social Services and Tracker nurses whilst tryng to find you a link for a chemical toilet. I think you can also get portable sinks with hot water. If I were you I'd order those immediately plus one of those reclining chairs and footstools to try and make Grandma's toileting situation a little better until something is sorted. Also I'd push for your parents to get meals on wheels daily, they can also bring sandwiches for tea as well as a hot lunch.

Stand firm with your parents - you won't be doing anyone any favours if you don't. I emailed SS about my Mum after it became clear she can't cope with the regime she is supposed to do to keep her legs well and they got into a right state despite my best efforts. I emailed on a Tuesday and the following Monday carers started coming daily for six weeks and she'll be assessed for her further needs after that.

Our surgery also has a 'Tracker Nurse' who has just started . Her job is to keep those at risk out of hospital and check they have the access to services they need. She listened to me for 40 mins on the phone and was brilliant - maybe your Gran's surgery has one you could speak to if you don't want to contact SS. They won't be able to discuss your Gran with you but will be able to listen to what you have to say and can hopefully act.

Two weeks ago we were in crisis with my Mum but some lovely people on MN gave me some great advice and things are hugely better. She's getting and will continue to get the care she needs and I'm no longer in danger of neglecting my children's needs as a result of trying to meet hers. Good luck, sometimes you need to take difficult steps to make things better, hard at the time but a huge relief once you can see the situation improving .

WynkenBlynkenandNod · 14/12/2012 04:10

In looking for mobile sinks I've just found this wetroom. Not entirely sure how it works but might be worth looking at.

SpecialAgentKat · 14/12/2012 05:29

I think I'll be banned if I say what is truly on my mind Angry

So I'll just say YY to EVERYTHING WelshMaenard has said, and to repeat:

CALL SOCIAL SERVICES.

Honestly I wouldn't be able to sleep at night knowing that my beloved nanna was wearing dirty clothes because there was no washer, washing herself in a bucket and shitting in a bag; and not only were my own parents not stopping it, they were rubbing their greedy little hands together.

See that's the difference. I wouldn't lament about it. I'd CALL SOCIAL SERVICES!

You are the only one she has to fight for her.

Acky123 · 21/12/2012 10:43

Totally agree with SpecialAgentKat, Horsemad and Welsh Maenad.

It's just not acceptable. It's neglect.

I really hope OP's Grandma has a more comfortable Christmas, wherever she spends it, but I think that ship has sailed now and it's too late to get anything sorted out. It's been more than two months now :(

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