to think that disability affects you all?

[LadySybilDeChocolate]

www.mumsnet.com/Talk/am_i_being_unreasonable/a1380515-AIBU-about-the-government-lying-about-DLA#29486359 I'm talking about this thread. Your support is needed. Disability is an ongoing issue and the disabled are being bastardised at the moment. Children are having vital benefits cut, as are those who really need them. We all know someone who's disabled. By burying your head in the sand you're ignoring the needs of your relatives, your friends or your children.

I know plenty of people who have a disability. They range from my lovely nephew who is autistic to my mother who has Osteoperosis and heart failure. These cuts would affect my family. What about yours?

We too were offered vouchers, but again, they would own the chair, meaning we couldn't sell it when dd grows out of it, and they wouldn't do the maintainence, if required.

acumenoop
Like your last 2 paragraphs
On means testing - this is always used on what is claimed from the system. Why not consider tax as means testing what goes in?
M/T claims leads to endless bureaucracy and suspicion of fraud,scrounging etc.
And sorry, but I do think we're entitled to equal status and treatment. It's good to have a sense of entitlement to human rights.

Pendeen, I guess you dont bother with insurance or pension either. Cos it doesnt affect you now.
But one day you will be old and frail and then you will discover the battles we are fighting now will affect you. And if we lose...

I have fibromyalgia and get DLA. That little amount helps pay my childcare on weeks when I can barely move to get to work. I'm a nursery nurse so work isn't always possible. Fortunately I do supply so work when I can. More problems have been diagnosed since my first claim so my renewal will be including these problems and hopefully I shall continue to get it otherwise I may have to give up my childminder as I wouldn't be able to afford her.

Depends on how well off you are I guess. The only reason why I can think anyone wouldnt care less is if they had enough money in the bank to pay for not only your disabled life and all that it entails but also enough for members of your family should it happen.

I have seen quite a few on here.
they either say "oh I wouldn't want a disabled child"
Like we chose to have one.
or oh it doesn't affect me.

I am very frustrated by this. Although I feel sympathy for the people who are being hit by the removal of Child benefit, they are already in a much better situation that a disabled person or the family of a disabled person. It is totally unacceptable that disabled people and their carers are going to be hit from all sides:

Incapacity benefit being replaced by Employment support allowance which stops after 1 or 2 years (depending on the next vote) whether or not you are still disabled and unable to work.

DLA being removed from 20% of legitimate claimants to save money

Loss of DLA / ESA or reclassification into a different band (currently 3 rates: low middle and high - being reclassified into 2 - low and high). people in the middle band currently receive higher than normal tax credits and housing benefit. If they are reclassified as low needs, they will have their tax credits and housing benefit reduced without any change in their actual needs.

Higher rate mobility DLA also is usually a pre-requisite for obtaining a blue badge. This in itself can make life a lot more bearable for disabled people and in many cases, enable them to work.

It is so stupid and shortsighted. It is likely to significantly increase the work needed from local authorities (dealing with increased numbers of care placements); hospitals - dealing with iller people who have been able to access earlier help and stop people who are currently working from doing so because they can't access the transport / other assistance they need to do their jobs.

It is the wrong way round.

Yes, I had all my plans in place to return to college, then ds2 was diagnosed with a disability and shortly after that I also became ill with a lifelong condition.

It wasn't something I had ever considered could happen to me. But it did.

It can happen to anyone.

groovee how are you able to claim? I was told in no uncertain terms I wasn't allowed to as it's such an ambiguous condition. Despite having days where I can barely get out of bed, after a full week of work I end up unable to do the housework or play with the kids.

Is it just pot luck with how your claim is assessed?

My husband has MS. I'm scared of PIP and what it means for him, should his condition worsen.

nearlymrscustard

Who told you that?

I know someone who has Fibromyalgia and claims DLA.

To the poster who isnt interested as it 'doesnt affect' her,

Lets hope that in the future after the support has been taken away that neither you or your children become disabled eh?

It didnt affect me either.....before I had a disabled child.

I'm one of the people who has had DLA taken away even though my condition hasn't changed. I had to cancel quite a lot of the domestic support I had, lost certain crucial bits of support at work dependent on being in receipt of DLA, and my health has suffered quite a bit. I ended up being off work for four months.

As I had lost DLA, I had to go for a Blue Badge physical assessment in order to get it renewed. The tests are the same criteria as higher rate mobility allowance. I scored highly which makes a mockery of the DLA assessment, which is basically a call centre employee reading your form. I copied the original form so nothing else was different.

DLA is not just about money, it is about quality of life and access to non financial support structures. I am leaving the house less and less these days, I am a lot more tired and it is more difficult to manage my pain. I wish more people understood what it was all about.

Ps I was super fit and sporty until an unforeseeable pg complication compromised my mobility forever.

So how does PIP work?

Do you choose who provides you with services, rather than allocated by the LA. Would this be helpful or not really?

Of course it affects us all. If you want to live outside society, without any of the medical advances made researching disability, without any of the technology or scientific breakthroughs or art or engineering that disabled people have caused to happen ... go for it.

Sorry, not the point of the thread, but it is so arrogant to say it doesn't affect you, and not only because you might become disabled.

point proved

do not engage with her.
As you will have seen she is not interested in contributing to the discussion or offering anything to the conversation other than meaningless patronising half statements.

true. sorry

I thought the government WANTED people in residential care and institutions which they are striving for to be privatised, as a way of pouring tax payers money into shareholders their personal pockets. That it costs more doesn't bother them at all.

Well that's it isn't it Starlight, care homes will make a mint! All funded by the taxpayer. Kind of like private landlords setting their rents so high that ordinary working families need to claim housing benefit.

Even if you feel it doesn't affect you directly, can you not accept that it affects other people and see that we should support them? Some people are dealt a shitty hand in life, and so many in this country believe that...I don't know, they should just be left without money? We are a society and we should work together to make sure everyone has a good life, not just those lucky enough to be able to work.

And as others have said - maybe it doesn't affect you now, but tomorrow you could be in a car crash and never walk again. Your next child could be born with severe special needs. Your partner could get cancer.

No one wants or wishes these things. But they are all possibilities, and not even marginal ones. They are things that happen every day to some poor fucker who then ends up unable to work and with no money to look after their family.