In being petrified about the welfare changes which will affect parents who care for disabled children?

[Dillydaydreaming]

AIBU?

If I am then please explain why parents (often the mother) who have to give up work to take on a caring role are going to be penalised by this utter scum of a "caring" ( don't make me laugh - I might actually fucking cry) Govt.

I am hearing that some families are going to be worse off by huge amounts a month - one family by nearly £200 which is massive if you are already a low income family.

I could quite honestly cry with worry. I work 16 hours a week, my son who is autistic needs supervision day AND night, I am often utterly exhausted and cannot commit to any more hours. I am currently off sick due to sheer fucking exhaustion and yet this fucking Govt think unless I work 20 hours a week I am workfare fodder.

Well do you know what? They can go screw themselves - stupid arseholes all of them.
I cannot physically do any more hours, I can hardly cope with those I do have.

Even worse is the suspicion that with the continual drip feed of erroneous facts and figures designed to portray us all as scrounging workshy wasters there are many who simply won't give a shit prevent worse will AGREE with the changes because they are too thick to read behind the headlines. Children with ADHD qualifying for free cars anyone? What a load of bollocks THAT was, but despite the later retraction by the DM, the damage is done. I've already seen it repeated here by someone who "read it somewhere".

Caring my arse. This Govt does not care for
anyone except those who will line it's pockets

Actually while I feel THIS tired, exhausted, drained etc I cannot think anyone can justify this to me.

This Govt is utter shit of the highest order and my contempt for them knows no bounds.

I am crying, scared and angry all at the same time and it's horrible.

Yanb fecking u.

Personally i'm focusing on a fun christmas spending money I shouldn't be, come April I may consider selling my rather roomy grundies to those grubby undies in vending machines people, I may also consider a sideline as a squishing dominatrix.

Gawd knows what we're expected to do >

YANBU, your situation sounds horribly stressful and exhausting. The vilification of people on benefits is dreadful, and totally undeserved - disabled people and carers and those made redundant because of the economy are all painted as workshy scroungers, just to advance the government's political agenda.

Yanbu. Wait a bit though, there will be plenty, particularly those without a clue who will come along and claim you are a defalcator.

YANBU. I can't add anything.

It sounds awful _ i am so sorry but i haven't read much about the changes. What is changing? will you still get dla/ carers allowance etc, or is changes to tax credits?

Grumpy

Ta xcredits

then Carers- many on carers wiull be forced into workfare on top under universal credit plus you can only have one disabled chiold then (if only!) and-
oh everything stinks frankly!

My sister will lose £200 a month because her severely autistic, non verbal, epileptic dd who OFFICIALLY needs 2 carers in school or they'd be breaking the law ( yet sis of course has to manage her AND her equally disabled brother ) Just so happens to sleep through the night.

Yet she needs constant supervision. She will never be independent, it won't happen.

Fuck, she'll probably lose more when they find out she can dress herself

Sounds like how much we'll lose Cheese.

Ds has started sleep walking now. That will be fun. But he 'sleeps' from midnight till 6 am so we're buggered.

This is besides the fact that he has the mental age of 5, cannot be left unsupervised etc.

I have two that have night terrors, even at 15 and 16. Both ASD. Dd2 has night terrors when she sleeps, which is not often, and she can't be left unsupervised (see eating shower gel thread)! 16 year old has panics, particularly at night, and Dd1 needs changing/showering at night. I also have a disabled dh who cannot move around without help. I daresay Tesco will want me to stack shelves anyway.

yanbu. Can you imagine if Carers said 'fuck this' and put their relatives into residential care. At £3K a week. Much more than the paltry 'benefits' they are acused of 'scrounging'

YANBU. I hate this fucking government.

Maybe that's exactly what people need to do - threaten to place relatives in residential care - it'll be a logistical and very very expensive nightmare for the taxpayer and cost far more than the paltry amoint paid to most carers in this country.

But of course they KNOW we won't do it - they KNOW we love our relatives and will carry on caring regardless - and they are taking advantage of this fact and I fucking well hate the bastards for it.

Yes I am swearing but I am tried, stressed and emotional about this.

Maybe though I am "getting above myself" in daring to compare my worth with "professional" care.

It's far more likely that your care is superior in every way, Dilly

yanbu
this government are vile, they have deliberately painted disabled people and their carers as scroungers, and then have targeted thme in a cruel manner.
families are going to be broken by this,
the daft thing the sad affect of this will lots of children placed in residential care, which will cos t loads more.

I sometimes think we should have a day of action. on a day everyone with a disabled family member rings SS and says they want to place them in care
I bet that would show them

surely if your child sleepwalks or has night terrors, they need care at night.
so you should get the HR DLA

YANBU

If we can't get out of the trap by the time the new rules come in, DP will have to go into residential care. He's quadriplegic and needs 24/7 attendance; if they make me go to work outside the home (I run a business from home but the new FCFC rules seem to make this impossible) he will be left totally alone, unable to even call for help. Our only option will be residential care. It will be that or death.

Weirdly, I won't pay anything, then, unlike now, so I'm not sure how it's saving money. Just destroying our lives and costing easily 150k+ a year (compared to 18k all in now).

We do get HR Care component.
How long will that last? We don't know, the changes are still unclear, particularly with the combination of PiP and Atos. It is terrifying.

Oh, and as I've said on other threads, I've lost my two hours a week respite care, due to cuts. Doesn't sound much, but a couple of hours to myself was a real sanity saver sometimes!

I need to come out my hidey hole and find out what amount I'll be starving on don't I? I've been trying ignore all the scary government changes as I'll just worry myself into a frenzy and I don't get enough sleep as it is, but I think I need to pull my head out of the sand.

I used to have a job, a life, a large amount of friends, a relationship. Then autism came along. I have a 7yr old still in nappies, still not sleeping through the night, he is hugely reliant on me and I hate the fact that I feel my ability to keep my son warm and fed and safe is at the mercy of this horrid government who are determined to ensure the poor get poorer.

Ahahahahahaha We'll see Sevenfold. Toad's renewal is on 2013...such great timing...not.

I doubt it somehow. They'll say it's not enough time up or something or other.

Doesn't make me feel any better that I may not wake up in time when he's unlocked the front door and gone for a wander while he's akip.
I may look into door alarms.

I think the worst thing is just not knowing. Everything is up in the air. They just continually drip drip menace into the media. The council send us letter after letter reviewing this and consulting on that, and all the proposals will just wipe us out completely. PIP, with the wheelchair gotcha, seems to wipe us out completely. Fairer Charging For Care seems to wipe us out completely. We haven't even applied for ESA because I don't want to use up his entitlement in case we lose DLA in 2012. We're trying to plan and protect ourselves but they keep moving the goalposts, and all the time there's this constant murmur of scrounging cheating lying faking deficit cuts scrounging frauds

I feel hated. I feel helpess. I am afraid.

Does the only allowing one person to be disabled mean only one person per family can get dla? I hate the whole drip feeding thing and the fact that they aren't properly explaining things. I've got 3 children. 2 are physically disabled, 1 of them gets dla. I'm struggling to work out what we are going to lose. I think it's ds2's extra tax credits but for all I know they will be wanting me back at work and I don't know what I'm supposed to do with DS2 and ds3 then. I've just cut ds2's preschool sessions down from 3 mornings a week down to 2 because he can't cope with 3.