In being petrified about the welfare changes which will affect parents who care for disabled children?

[Dillydaydreaming]

AIBU?

If I am then please explain why parents (often the mother) who have to give up work to take on a caring role are going to be penalised by this utter scum of a "caring" ( don't make me laugh - I might actually fucking cry) Govt.

I am hearing that some families are going to be worse off by huge amounts a month - one family by nearly £200 which is massive if you are already a low income family.

I could quite honestly cry with worry. I work 16 hours a week, my son who is autistic needs supervision day AND night, I am often utterly exhausted and cannot commit to any more hours. I am currently off sick due to sheer fucking exhaustion and yet this fucking Govt think unless I work 20 hours a week I am workfare fodder.

Well do you know what? They can go screw themselves - stupid arseholes all of them.
I cannot physically do any more hours, I can hardly cope with those I do have.

Even worse is the suspicion that with the continual drip feed of erroneous facts and figures designed to portray us all as scrounging workshy wasters there are many who simply won't give a shit prevent worse will AGREE with the changes because they are too thick to read behind the headlines. Children with ADHD qualifying for free cars anyone? What a load of bollocks THAT was, but despite the later retraction by the DM, the damage is done. I've already seen it repeated here by someone who "read it somewhere".

Caring my arse. This Govt does not care for
anyone except those who will line it's pockets

Actually while I feel THIS tired, exhausted, drained etc I cannot think anyone can justify this to me.

This Govt is utter shit of the highest order and my contempt for them knows no bounds.

I am crying, scared and angry all at the same time and it's horrible.

As I type DS (8) is STILL awake!!! Now in bed but wants me in with him. I have no intention of getting into bed with him as his ADHD means he also moves all night do I get bugger all sleep!

Now on sofa hoping he will fall asleep soon so I can go to bed. I can expect at least one night waking and we have to be up for "getting ready for school" at 6.45am.

This is EVERY night! Are you listening "call me Dave"? Of course with a day AND a night nanny the exhaustion never quite came your way did it?

And the wealth behind you meant you didn't need to rely on DLA/tax credit top ups/. Carers Allowance.

Actually it might JUST be true what they say. Never trust a Tory.and"Dave" told bare faced lies in the run up to the election and we were "safe with him".

As Jim Royle would say "me arse"!

It's Ok. As a Lone Parent, I have to chose between being disabled with uncontrolled epilepsy and possible fibro, or being a carer for my DD who is Autistic, partially deaf, has GDD and learning difficulties, has hypermobility syndrome/EDS, mild epilepsy, Auditory Processing Disorder, and two leaky heart valves that need replacing by open heart surgery in less than 3 years time, or being a carer to my DS2 who is also Autistic, has hypermobility syndrome/EDS, Hypotonia, and brittle asthma.

All of which is a moot point, as apparently, none of us are disabled enough for ANY disability benefits. .

And don't talk to me about destruction during meltdowns, or pica.

Anyone remember when DD scratched the paint in my front door, costing me £200? This week alone, she has: Punched holes in two different doors, broken her DS by throwing it when she couldn't do the game, managed to chew a hole in the sleeve of yet another blazer, broken one of my dining chairs by tipping it over during a meltdown, eaten half a pot of glitter (I only buy food grade for crafting now...) and managed to put a hole in her bedroom carpet by pacing when she couldn't sleep a few nights ago. DD is 13yo.

DS2 is 8yo. He managed to eat the end of his DS stylus, lose his 3rd hat this winter, have a meltdown because his sister breathed near him, (Which in turn made HER have a meltdown because he was 'rude'), had a 2 hour meltdown because I bought him the wrong toothbrush after he had dropped the last one down the loo. (They last on average 4 days here, I get through more toothbrushes than fucking Oral B's factory), has eaten around 4p this week (I think) , and has chewed a hole in 10mo DS3's favourite toy.

But, of course, I have noooo extra costs involved in looking after them...

I'm in a wheelchair with additional disabilities and am careing for one disabled child and part time for two disabled adults and dont actually claim anything other than ESA, C/B and CTC and guess what? I get treated as fraudulent for NOT claiming more.

I'm only claiming ESA because I was refused JSA when I ran out of paid work and tried to sign on as unemployed.

I can't bring myself to describe what I cope with day and night in, day
and night out.

I have signed up to Dignitas, though I doubt I will be able to afford to use them.

All in this together my arse

It beggars belief. All these benefit cuts will affect the people who truly, desperately need them... while I bet the small percentage of people who take advantage will still find ways of doing it.

I know it's not much, but you have my full support. I don't know how you amazing women cope, but we'd need some of you at the top making some legislation. The World would be a better place to live.

smallwhitecat

Im both a carer and disabled but apparently under Uc I can only be one or the other .

I dont get Ib as when worked out its much the same as both and means no medical .But under the new rules ,If i claim carers conditions i still need to work 2o hours a week as they will not recognise that I am disabled .

So i will more than likley have to try for ESa and hope that i get the support group and well then the government gets out of me doing the caring at 37p a hour

justgettingonwith it

Can you get DLa as it may help a bit

I'm sorry it's so hard for so many of you. I hate this government.

in some ways i am more fortunate as my disability is very obvious and should stand a pretty good chance getting in the Esa support group how much harder it must be for those where it is more hidden

Though saying that under the proposed pip changes I may be classed as mobile as i can self propel for 50 metres

So the changes went to the Lords and are now back with the Commons.

I am on a low income and it's already a struggle. As of April if these changes go through I will be worse off by £100 a month. Huge amount when you don't already have much coming in.

yup the ctc changes come in as of April .So unless your dc is on the HRC eg does not sleep at night then your going lose £25 plus a week no matter how much care they need in the day

please share via any social media you can

Bumping the take-action link here It takes less than a minute to do. Please sign.

My disabled DS does have sleep problems. Hasn't slept for an entire night in over four and a half years for various reasons.

But I can well imagine that what is going to happen is that the government will decide that because care during the night is easy lie about on DLA forms (unless they employ people to come and see what you have to do when the rest of the world is sleeping) that the criteria will change again and it will be virtually impossible for anyone to get the higher rate.

I completed DS DLA renewal today with a specialist CAB advisor. She has already said that if DS does not get the level she thinks he should from the criteria then we ask for their reasons in writing.

We'll see.

Glitter - shared that on FB. It's disgusting,.

Yes it is tralala, but that's my life....

Yanbu. It's like the 80s all over again.

This Govt is just utterly despicable. Taking money from families who absolutely need support.

Scumbags!

YANBU.

It's a shame that Carers provide so much to society and get so little in return. When faced with cuts we have to then take it upon ourselves to campaign to keep what little financial help we do get.

I cannot believe UC won't take into account a household with more than one person with a disability. I'm scared that on reassessment, we will be reduced on every need, despite DS needing more care than ever before.

Plus if they force Carers to take up work I'll have to put DS in hospital a lot more to make sure DS's care needs are met. Which is what we have tried to battle against for so long.

David Cameron is a traitor.

EDCM email campaign standing at 2207 come on let's get it higher!

EDCM at 2207! Why is it so paltry?

Am going to email the link to everyone I know.

Both DH and I work FT. DD has Asperger's, but is high functioning so it doesn't affect school. She was getting low rate mobility as she cannot travel anywhere alone and needs wrap around care from school if I can't take her home. (She'd get lost.)

Anyway, since DD was diagnosed with leukaemia in January, I have been off work. The money is running out, and I am now relying on DLA and, potentially from April if our situation will still not allow me to work, Tax Credits. I hate that I am now having to worry about if we'll qualify, and how we will pay our bills when the money drops that low.

Many people show sympathy with the plight of people in this situation, but don't take action. It can happen to any of us, that's the point, and that's why the welfare state was set up - to look after the vulnerable in times of need.

I am thoroughly disgusted that the very people who need the most consistency in their income because they are having to manage very difficult home situations are the ones left to shoulder the burden of uncertainty.

Nobody wants to have to be a carer for their child.

Wasn't it Dickens who said we can judge a society by how it treats its children?