New to the board and hope to find some answers for DS with Mulitiple food Intolerances

[rayjay]

I guess the title nearly tells the whole story LOL

I have an 11 month old who has multiple food intolerances. So far we have found 7 foods he can have....apricot, banana, rice, oats, white fish, Corn fed chicken (but only corn fed)and carrot. He has Neocate formula milk and thats it.

We know that he cannot tolerate Dairy, Soy, Wheat, parsnip, pear, brocoli, sweet potato and potato. We have also been told not to try Egg, nuts, seeds.

Last week was a low point when he couldn't tolerate chicken that was fed with vegetables, and now the dietician who we have been seeing has said she feels unable to take us further and has referred us to an immunologist.

Obviously all referals always take a while to go through and we are feeling lost, not knowing what is happening and what the future may hold.

His reaction is initially screaming, not sleeping for about 5 nights after a 'bad' food and rashes which weap and bleed which take about 2.5-3 weeks to dissapear.

If anyone has experience of any of these things and has some helpful advice it would be so great to hear from you.

Sorry for the LONG post, but thanks so much for any help you can give

Rach xx

KerryMum has a son with lots of food allergies/intollerances.

try a search?

Thanks, will do

not experience of so many at once but have you tried lamb? It's generally considered one of the least allergenic foods. You miht also try quinoa because its an excellent food if he can have it.

Hi tatt, we haven't tried Lamb yet, we have been following a sheet given to us by the hosp, all of which are supposed to be foods that don't generally cause probs. Lamb is on the list and one that we will hopefully get to try soon.

It is so long winded though as we can't introduce a new food until the reaction to the previous one has 100% gone, and as that normally takes 2-3 weeks it isn't happening very quickly.

Thanks for the heads up though, I may well try it sooner rather than later now x

Chandra also has a ds with food intollerances, iirc

[mn historian]

have they suggested adding probiotics to his diet as it's possible that may help with immunity? You'd need to be careful they were dairy free. If he could tolerate flaxseed oil the fatty acids in that might help. Keep up the carrot as Vitamin A may also be important.

Difficult to know what to suggest as pear is low allergenic normally and he's reacted to that. Surprised they haven't mentioned quinoa as you can get quinoa flakes (health food stores), it's considered a superfood and is low allergenic.

Your child's gut will develop and they will then be able to tolerate more foods. A lot of food allergies ar outgrown by age 3, although for your child it may take longer. It is really hard for you now but the likelihood is that he will outgrow many of these problems eventually.

Tatt you have been so helpful, I will email the dietician re the quinoa and probiotic.

Thank you x

Rayjay, Chandra here. May I be of help? I have a son with multiple food intolerances and allergies. (about 40+)

I have to say that when many intolerances/allergies are diagnosed, the poor dietititians have a bad time trying to suggest something that may not affect yet another sensitivity.

As Tatt says, some problems will be outgrown in a few years time, and others will remain for longer. So, I know it is easy to say this, but don't panic, it's all a learning process and soon it will become second nature.

The only thing that I can suggest at the moment is to keep a food diary. I also keep a notebook of suitable products where I write the details of everything I found that Ds could eat safely (well, with so many intolerances/allergies, I have to say that this is far from being a huge record so we ended up cooking most of the food from scratch which had the additional bonus of being far more healthier for all the family).

I also take note of every recipes of food that don't include any of the things he can have. I'm a bit of an organisation freak so I have yet another little notebook with the ingredients list of those recipes and a reference to the book where the recipe can be found. This is my most useful notebook, I take it to the supermarket and basically choose the recipe depending on what's available.

If you need more help, I'm here.

heya, do you see a paediatritian? i have found them much more useful with regards to food allergies than dieticians. would be best to ask for a gastro paed. my dd has just been put on antihistamine due to food intollerances may be worth asking about? she hasnt started them yet so cant tell you how well they work, but im hoping.