Active discussions

Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Talk
Allergies and intolerances

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Original poster

Neocate evelated liver enzymes

25 replies

mariannapa · 31/01/2023 10:47

Hi!!My son has allergy to milk protein and he is on neocate since he was 4 months.At 12 months he had blood tests and his liver enzymes (Ast,Alt) were elevated.We repeated the blood test 3 times and its still elevated.I want to ask if someone had similar experience while on neocate as side effect.

OP posts:
PritiPatelsMaker · 01/02/2023 20:29

I've not heard of that before @mariannapa. What have they said will happen now?

Original poster
mariannapa · 01/02/2023 20:35

We are testing him for several diseases but one doctor mentioned that it could be cause of neocate so we ve changed to a rice milk and we will have blood tests in 3 weeks to see if this could be the reason. I don’t think so and that s why i m asking if someone have heard of this side effect.We had genetic test for cystic fibrosis and metabolic syndromes and we are waiting the results

OP posts:
PritiPatelsMaker · 01/02/2023 20:47

It must be so worrying for you. I hope you get some responses Flowers

HiKelsey · 01/02/2023 20:49

You could ask this question on the main group for cmpa on Facebook. You can do it as a anonymous poster too. Maybe the best place to ask x

Original poster
mariannapa · 02/02/2023 04:25

It is so difficult not having a diagnosis for more than 6 months…I cannot handle it any more

OP posts:
MandyBM · 17/07/2023 20:26

Hello, can you please update us about what happened with your baby? i am in exact same boat.

dementedpixie · 17/07/2023 20:33

Didn't think rice based milks were suitable under the age of 5. What age is you child now?

MandyBM · 18/07/2023 02:12

Rice based formula? Neocate is Amino Acid based not rice based.

YukoandHiro · 18/07/2023 02:17

I've not heard of this but if he's over 12 months he should be on soy or oat milk ideally - does he have gluten and soy allergy too? Do you have a dietician?

Original poster
mariannapa · 18/07/2023 04:55

We cut off neocate and we did blood tests 4 weeks later.Liver enzymes went down!!!not to normal range yet but really close to normal.So…i guess that neocate caused it.We will retest him in august.Does your kid have also evelated liver enzymes?

OP posts:
Original poster
mariannapa · 18/07/2023 04:56

He is 2.He is now on rice “milk”.He is also allergic to soy

OP posts:
Original poster
mariannapa · 18/07/2023 04:57

He is now on rice “milk” as he is also allergic to soy.He was tested negative for celiac disease.After changing to rice milk his liver enzymes dropped down

OP posts:
dementedpixie · 18/07/2023 08:12

Rice milk is not recommended under age 5 due to arsenic levels (as far as I am aware). Oat milk is often recommended and there is a 1+ milk that is fortified for that age group. Have also heard of oatly barista being used.

Original poster
mariannapa · 18/07/2023 11:20

Its rice milk for children between 1-3 years old which is green peas and 7% of rice .Its not one of the common brands that you can find in the supermarket.I know that rice milk its not the best choice for young kids thats why we chose this one

OP posts:
MandyBM · 22/07/2023 12:41

Hi! Thank you for your update. Yes my baby has also high liver enzymes. Did your lo LO tested negative for genetic and metabolic disprders?

Original poster
mariannapa · 22/07/2023 15:52

Yes!!!Everything came back negative.We also tested him for cystic fibrosis because he had steatorrhea(fat in poop) everything came back negative and the fat level in his poop went back to normal when we stopped neocate

OP posts:
MandyBM · 06/08/2023 16:08

Hi I hope your LO is doing great, can you please update us once you tested his liver enzymes again?

Original poster
mariannapa · 06/08/2023 20:02

Yes of course i will!!

OP posts:
Mummy2C · 06/08/2023 23:46

My child has allergy to milk and egg. We use oat milk. In UK there is a lot of advice on not using rice milk. I suggest speaking to a dietician.

Original poster
mariannapa · 07/08/2023 06:13

Actually its a rice-beans milk.only 7%rice

OP posts:
MandyBM · 31/08/2023 07:35

Hello, I hope everything üs ok with your child. Have you tested his liver enzymes again?

Original poster
mariannapa · 03/09/2023 13:10

We got the results this week.They remained stable but still elevated .We will check with a gastroenterologist.Ultrasound showed normal liver after stopping neocate( before he had fatty liver) so we wait for our appointment in 3 months…

OP posts:
JoLo2523 · 31/03/2025 08:33

Hi, I know this is an old post but I'm wondering what came of your little boys situation. My LB has cmpa and was on neoctate, since he was 5mo he has had raised liver enzymes which peaked at 12 months (alongside an ultrasound that showed mild inflammation)and then dropped again after stopping neonate but have remained slightly elevated but his ultrasound is now clear. We haven't had any form of diagnosis yet either.

Original poster
mariannapa · 31/03/2025 11:38

We went through all kind of tests!!You cannot even imagine.Even full genetic panel.Everything was coming back normal. After 1.5 of stopping Neocate my son s liver enzymes went back to normal!!!We never got a diagnosis but i m 90% sure it was cause of Neocate. Dont worry it takes time

OP posts:
JoLo2523 · 31/03/2025 11:41

Thanks so much for responding! I've been so worried that my baby has managed to contract hepatitis B or something 🙈

New posts on this thread. Refresh page
Swipe left for the next trending thread