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Poor growth in 16 yo DS, ask for biopsy for coeliac disease?

5 replies

HopeClearwater · 18/11/2018 11:01

My 16 yo DS has a history of poor growth and is trailing along the 0.2 centile for both height and weight. He has always eaten extremely well, to the point that relatives and friends are constantly surprised by the amount he puts back compared to his size. He’s under a paediatric endocrinologist, has the correct levels of growth hormone, did fine in the glucagon test etc and I am assuming did not test positive in the coeliac blood test. However I think we are missing something - he’s always had very loose stools and very fatty or junk food from McD’s etc goes straight through him. Would it be acceptable to push for an endoscopy to do the biopsy to at least exclude coeliac disease? I understand there’s a significant rate of false negatives in the serological test - is that correct? He’s desperate for answers now and I’d really like to help him.

OP posts:
bedtimestories · 18/11/2018 18:19

My daughter went gluten free after a negative ceoliacs test. All her ceoliac symptoms have gone and she has put on a healthy amount of weight and grown really well too. So I know first hand it can effect growth, however from experience I wouldn't remove a food group without advice from a Dr. Hope you get sorted soon

HopeClearwater · 18/11/2018 22:31

Many thanks bedtimestories

OP posts:
JiltedJohnsJulie · 25/11/2018 09:45

It wouldn’t hurt bro push for the tests but I’m wondering if he could be anaemic as this can as associated with slow growth too.

HopeClearwater · 26/11/2018 13:57

Thank you Jilted

OP posts:
JiltedJohnsJulie · 26/11/2018 15:21

Sorry I haven’t no idea where that bro came from. I think my iPad is trying to “get down with the kids” BlushGrin

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