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Claiming PIP with no diagnosis

32 replies

Maybeshesbornwithitmaybeitssertraline · 16/09/2026 18:30

I have been claiming Dla for ds3 since he was 11, using the referral form for his autism and adhd assessment as evidence and his sanction report from school. He gets middle rate care, low rate mobility. Now he is 15, nearly 16 and I have been asked to apply for PIP for him.

We still don't have an assessment date for him over 3 years later. I'm worried he is going to lose his dla and the disability element of universal credit.

OP posts:
BendyAndTired · 16/09/2026 19:56

Maybeshesbornwithitmaybeitssertraline · 16/09/2026 18:30

I have been claiming Dla for ds3 since he was 11, using the referral form for his autism and adhd assessment as evidence and his sanction report from school. He gets middle rate care, low rate mobility. Now he is 15, nearly 16 and I have been asked to apply for PIP for him.

We still don't have an assessment date for him over 3 years later. I'm worried he is going to lose his dla and the disability element of universal credit.

PIP is awarded according to how your disabilities impact your daily life, you don’t need a diagnosis to claim it, you just need evidence, and the evidence you used to claim DLA is fine to use on his PIP claim. Gather as much evidence as you can, get statements from teachers and anyone else who supports him. Good luck.

ThunderThunderThunderThunderCats · 16/09/2026 19:56

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Where has OP said her son has mental health problems and doesn’t plan to work?

Maybeshesbornwithitmaybeitssertraline · 16/09/2026 21:35

He doesn't work at the moment but he is in year 11 so most children aren't working at his age.

We can't do right to choose where we live, we just have to join the waiting list and wait years.

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Sonolanona · 17/09/2026 11:21

Honestly, just apply. PIP forms are easier than DLA in my (28 year) experience.
My son has autism and mild/mod learning difficulties and we found going to PIP easier. His actual diagnosis had no bearing on his award...it was making clear what support he needs, in great and clear detail.
Stuff like.. can he cook ..if he can does he need support to do so..if not, why not?
Can he travel independently at the level you'd expect for his age? (my son is 29 and can do one local bus...thats it.. so I explain that compared to a typical man, I would expect him to be able to plan a journey , catch a train, go on holiday ...he can't do any of that)
Can you leave him alone overnight? (I can't... he won't burn the house down, but would sit there oblivious while it burned around him!)
Can he manage his money, or is he vunerable... my son can use his debit card but has been drawn into many 'charity' scams because he trusts everyone.
Do you have to support his behaviour, over and above what would be considered typical? My son appears able, but his understanding of social communication is not.
Think about those sort of things.
My son works... he actually has a job in the local supermarket but he still requires..and always will,.. a lot of support to keep him safe, stable and functioning.
We don't see any specialists about him...haven't for years (other than for a medical condition) but we have not (yet) had been refused PIP because I am very detailed on the forms and paint a clear picture of how he needs support.

Maybeshesbornwithitmaybeitssertraline · 17/09/2026 14:41

Thankyou. Every time he does something at school that the teacher wants to discuss with us I always ask for the details in writing so I can send it with the dla form. He does a lot of impulsive behaviour, especially if he sees anyone making fun of his brother who has asd. He can cook simple meals but has to be supervised because he will do things like forget to turn the oven off or he will repeatedly put the same piece of toast in the toaster to see what will happen. He can't go out unsupervised. He has no idea about money. We pay him to mow the lawn but we pay him in lego because he doesn't understand money. I can leave him for about 30 minutes, no more than that.

OP posts:
roaringdragon · 17/09/2026 17:36

Before applying, it will help you to read more about PIP. In order to be considered able to do something one has to be able to do it reliably. That means safely, to an acceptable standard, repeatedly and in a reasonable time frame. If you can’t do something safely, to an acceptable standard, repeatedly and in a reasonable time frame, you can’t do the task. So it is not ‘yes but’ if you can’t do something reliably. Many assessors will only see ‘yes’.

Pearlstillsinging · 17/09/2026 17:39

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PIP is intended to support claimants so that they can access work as has been pointed out numerous times on this forum.

I cannot believe the level of ignorance of some posters

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