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Parents' experiences of ADHD medication side effects and personality changes

49 replies

FieldsOBarley · 11/09/2026 10:00

I've finally caught up with the Channel 4 ADHD myth prog this week.

I know it painted a one-sided view, but got me thinking (as parent of a child with suspected ADHD) about side effects of the medication for children and young people.

The Mum on the programme talked about her son not being himself and his personality changing on the meds. Have others experienced this, and what side effects did you notice for your child?

It's interesting the Mum said she was only medicating him really for school, to get him through exams etc, and the presenter concluded that it's the school system that needs changing, not the children. Very thought provoking!

So yeah, if your child is on ADHD meds, what side effects have they experienced and would you say it's changed their personality (for better or worse!)

OP posts:
somanychristmaslights · 18/09/2026 19:25

My DS8 has been on medication since April. You can literally see in his writing book when he went on it as his handwriting changed instantly. He can concentrate more in school, his teacher says he still fiddles with things but he completes him work much better.
only downside we’ve had is his appetite has really reduced so he doesn’t eat much at all. But he doesn’t take his medication at the weekend and then he makes up for it!!

Quokkafeet · 18/09/2026 23:29

somanychristmaslights · 18/09/2026 19:25

My DS8 has been on medication since April. You can literally see in his writing book when he went on it as his handwriting changed instantly. He can concentrate more in school, his teacher says he still fiddles with things but he completes him work much better.
only downside we’ve had is his appetite has really reduced so he doesn’t eat much at all. But he doesn’t take his medication at the weekend and then he makes up for it!!

That's fantastic @somanychristmaslights can I ask which medication your son is on?
We have recently started our same age DS on medikinet. I feel that as time goes on (been a month and a half now) he seems to be settling on it. I had a meeting with his new teacher the other day who seemed surprised by him because he had been prepared for a much more difficult child!
My son, however has started pushing back on taking it which is really annoying. In fact he said yesterday he isn't sure he has ADHD and doesn't think he needs the medication anymore! Had to explain that the reason he doesn't think he needs it is because it's working!

Justttheone · 24/09/2026 08:54

I'm worried about the appetite effect as my DC is quite low weight and we can't really afford further appetite suppression. I do wonder though whether they would sit and eat properly rather than getting bored after a few mouthfuls and claiming to be finished/full.

Interested in this thread?

Then you might like threads about these subjects:

HoppingPavlova · 24/09/2026 09:17

Fantastic. It allows them to be the person they are/should be. Before medication my child rarely smiled and never laughed, not once. After a week on medication, we received an excited call from their teacher to say they had laughed when she was telling a funny story and we realised no one else had ever seen them laugh either. It allowed their brain to compute things and react.

At first we trialled it on school days only but they hated not having it on weekends and also when it wore off, they would smack their head in distress because ‘it doesn’t work’ (their words at the time). Their dev paed explained it well, how would you feel if you couldn’t see properly and someone gave you glasses so you could, but then took your glasses away telling you that you couldn’t use them.

Even as an adult, they are happy, engaged, good personality on meds, but when they wear off most of that disappears and they become a bit of a shell of who they are really. Add onto that compleee inability to do anything really. However, as an adult, they organise their life to allow for this as they are well used to it being how it is (they have been on meds for 20 years now).

ETA - it does affect appetite but they never really had any to begin with, always a light eater and whip thin even before meds. To the point they had tests in hospital just to make sure it was normal for them and not caused by allergies/intolerances/malabsorptions etc. People are a bit unrealistic with the amount they think kids need to eat, they can survive well on not much. We just gave smoothie on waking when they had their meds, and then they got dinner later at night when they became hungry rather than expecting them to eat earlier at a standard dinner time. They didn’t really eat anything inbetween and have carried all that through to adulthood. Super thin but super healthy and seems resistant to most illnesses so no issues.

BeardySchnauzer · 24/09/2026 09:35

Yes dd had a small appetite and she can’t really eat when on the meds so no lunch. She has a breakfast when she wakes up and then takes her meds just before she leaves and has something to eat then. She manages a decent dinner

she doesn’t take the meds at weekends so no issues then

personality wise she is better off the meds but she recognises it makes study easier so is happy to take them

luy · 24/09/2026 09:59

TheNewFinch · 14/09/2026 13:50

I have observed many ADHD children as a child therapist and I observed that medication harms the child and they only end up in a devastated condition. It is better to regulate their behaviors at early ages through therapy so later in life they become able to manage their condition.

I’m a CYP therapist also and have seen how ADHD medication has been a totally positive game changer for many young people, so your post surprised me. Obviously medication isn’t for everyone and sometimes the type of medication needs to be switched as the first type tried doesn’t always help or there are side effects. But I’ve never seen it harm or cause devastation: to the contrary, I’ve seen the massive transformation it can make in struggling young people.

BertieBotts · 24/09/2026 12:25

I'll be honest, I didn't watch the prog because I felt it was engineered completely for controversy and views rather than having anything interesting to say in itself.

I do think there's absolutely a discussion to be had about how schools could be better resourced to support SEN and ND learners. I don't think it's a particularly niche view that inclusion has never worked especially well because pupils were simply expected to fit in to mainstream classes magically/perhaps with the support of a single, non specialist TA shared between several SEN pupils, without any thought seemingly being paid as to what led to certain pupils being excluded from mainstream education in the first place causing them to need re-including. Because just putting their name on the register and treating them the same as everybody else is not including them. It's quite obviously going to lead to the kinds of issues that caused schools in the past to exclude children or refer them to specialist provision or for children to disengage, play truant, withdraw, or struggle to attend (physically or mentally).

That said, my own personal experience of ADHD medication is that it's been brilliant, both for myself and for my children. (ADHD does run in families.) I still see far more hesitancy and fear and stigma around ADHD medication than makes sense if you look at the actual facts (e.g. the research, the pharmacology, the anecdotal experiences of people who have used it).

I believe this to be because we have been fed in small and large doses a steady drip drip of misinformation and controversy-seeking media content about ADHD medication since roughly the late 1990s. I actually think it had a really huge peak around the millennium/early 00s probably because this was when diagnosis numbers were beginning to rise in the UK and because there was a question about whether it was being overdiagnosed in the US, where they have widely recognised it since the 70s and 80s. Most of us who are parents now are in our 30s and 40s, so when we were seeing this information 20 years ago, we were teens or early 20s and probably didn't know anybody with ADHD. Or if we did, it was that one extremely hyperactive and disruptive child at school, or someone's hyperactive/annoying brother. When something doesn't affect you personally you don't pay a lot of attention to it, but because ADHD was constantly in the news and on talk shows and so on it was a lot of "Is this just an excuse for naughty kids?" "Is it right to treat children with drugs?" "Is it an excuse for poor parenting?" "Don't children just need to run around more?" and lots of narrative which suggested that the drug treatment for ADHD was some kind of sedative which made children easier to manage, or that children are being treated medically for the convenience of adults, or the benefit of adults, not for any benefit to themselves. And this constant drip drip just sort of establishes itself and settles in as part of your general knowledge.

The way our brains establish whether information we receive is reliable or not is partially by checking it against the other information we have seen on that topic and seeing which themes repeat and which ideas come up again and again, and so the more that we hear something, the more we begin to assume it is reliable information. This makes sense - if you think about how we would have processed information before writing and printing presses and so on, it would have all been word of mouth and direct experience. And when you get information by word of mouth and direct experience, the experiences and advice that are generally good are usually the ones which get repeated the most, whereas the outliers that only 1 or 2 people say are probably more likely to be that person's opinion and not necessarily reflective of reality. But it can also be a way that myths and legends form, both in the past (e.g. completely useless folk remedies for common injuries) and also in the modern world where we hear a particular opinion or bit of information so many times that we just assimilate it into our general knowledge and then it's hard to tell something like "ADHD meds are mainly for adult convenience" from "when the clouds are dark grey, it will probably rain soon" or "gravity is the force which makes things fall" or "The president of the USA is Donald Trump" or "dementia is a condition which affects older people and can make them fail to recognise people". We might not even remember specifically where or how we know this information, we just take it for granted - everyone knows that, don't they?

And so yes, I think collectively we have this idea that ADHD medications are very strong, they are intended to control/subdue hyperactive or disruptive or distracted behaviour which gets in the way of the demands of school in particular. They are psychoactive medications, meaning they act on the brain, and that is of particular concern because children's brains are developing so they could potentially harm or disrupt this development, although there is also a general fear that any kind of psychiatric medication can affect personality. There is some awareness of a link to recreational drugs of abuse. Whether relating to this or whether relating to the developmental piece, there is a concern that these medicines could have long term effects, that the long term effects are unknown, that there could be health risks particularly to the heart, or stunted growth, or that the medication itself could be addictive. There is an idea that medication replaces other interventions for ADHD such as therapy, behavioural/parent training, large amounts of physical exercise, closer supervision/support, skills based learning (e.g. meditation, anger management), school based support etc, and as such, that it is a kind of "short cut" to avoid the work or inconvenience involved in those things.

And the thing is that some of that is true. But some of it is wrong. Some of it has a grain of truth but it is exaggerated, highly skewed, or out of context. Some of it is out of date. How do you know which is which? (I am not in UK and about to do school run but will quickly run down which bits are which later on.)

You probably don't unless you look into the literature or read a lot by experts in the field. And the worst thing is that you probably don't know what you don't know. And this is not only parents who have this set of beliefs, it is also your neighbours and your friends and your parents and even people who work closely with children in this context or might have authority to approve or deny referral, such as teachers and GPs.

Sorry, I appreciate this doesn't really answer the question and I will come back and share my experience and my DCs' experiences as well as running through the myths/truths/half-truths. I just think this context is hugely important. A lot of the things that we assume we "know" about ADHD medication are not actually based in good quality evidence, they are based on media narratives from years ago which were deliberately created to stir up discussion and controversy, because that makes for good, entertaining TV in terms of talk shows and so on, and much of this is still ongoing now. While we might be able to recognise what we are seeing in the present day in the context of well OK, this is calibrated to go viral on social media and is very biased, a lot of the background noise or underlying assumptions we hold is stuff that we maybe didn't recognise as that years ago, because we were younger, because the idea of things "going viral" was less widespread, or it maybe didn't feel that relevant to us so we absorbed it less critically, or whatever.

Bzr · 24/09/2026 12:38

Medication has been the best thing we have done for our teen. He is able to focus, he doesn’t get in trouble at school, he enjoys his studies and he’s happy and calm. He doesn’t have a great appetite from it and he does need to make sure he eats but no other issues

BootstrapTime · 24/09/2026 12:45

We finally found the right psychiatrist who said we'll keep trying until we find one that is helpful with no side effects. She said there's absolutely no need to put up with side effects. Medikenet in various formulations didn't work. Tyvense I think changed him, he became very flat, more rigid thinking, etc. Both suppressed appetite. Now trying Equasym and it's been a game changer. He's exactly the same child, very happy, eating well, no anxiety but taking notes in class! He feels that he can pay attention better - it's subtle but it is having an effect. I hope we can stay with her for the long haul as I trust she'll get us help without compromise on side effects.

IDontCareWhatMyUsernameIs · 24/09/2026 12:53

Watching this with interest. My son has been through assessment privately and will (very likely) receive his diagnosis next week.

I am very unsure about medicating; he already has an underactive thyroid which exhausts him. And his only really struggle is in school. I want him to be able to receive the education he should, and be able to learn,
but he’s already on daily medication. His thyroid already causes low mood and I don’t want to flatten him further.

Its such a concern.

MyKindHiker · 24/09/2026 13:09

The challenge with any straw poll like this online is i’ve realised over the years and with son in special school so a huge network of parents I know - every child is different. Some respond great, some don’t. Can be exact same drug and one child will thrive another won’t. And of course a documentary won’t be interested in interviewing all the people for whom medication is life changing for the better.

Also there isn’t one ‘ADHD medication’. My own son has been on 8 different meds over the years - some stimulants, some non stimulants. They all have different side effects. One he was on longest had zero side effects at all.

With regards changing the school system. I have 2 kids with ADHD. One i do not medicate and he has to learn workarounds. The child I medicate we did not for grades but because his behaviour was so impulsive and chaotic he was in constant physical danger. I think because so much more ‘mild’ ADHD is diagnosed now, people forget that this is a condition which can be very serious. My son will likely never live independently and meds are absolutely essential to get through the day. No amount of adjustment to schooling can handle a kid who tries to jump out of the window on impulse!

dizzydizzydizzy · 24/09/2026 13:14

I’m (adult late 50s) on ADHD meds. They have not changed my personality at all. However they make me feel much calmer and more focussed and it is easier for me to get stuff done.

I would recommend anyone with ADHD to try them - these med have been around for decades and they work. Long term, they will lesson your chances of some of the comorbid conditions such as drug and alcohol abuse and diabetes because you stand a better chance of making sensible decisions.

emptygoosenest · 24/09/2026 14:39

I also work as a child therapist and have a dc with ADHD. I don't see any evidence in my work that medication for ADHD causes devastation. It can suppress appetite, make sleep harder and there can be bump in dis regulation as the meds wear off in the afternoon.
Therapy can absolutely be useful but it can't impact the shortage in dopamine that a dc has in the way that medication can.
There is understandably fear around medication but it doesn't change a dc's personality and unlike antidepressants the stimulant medications completely leave the system each day ( so the dc can sleep, eat etc) So a dc can take them on school days and not during weekends or breaks should they want to.

IDontCareWhatMyUsernameIs · 24/09/2026 15:16

I think the ‘devastation of kids’ poster was well out of line to baldly state that with no context tbh.

Pussygaloregalapagos · 25/09/2026 01:51

DazedandConfused1234 · 14/09/2026 14:04

I am not sure about children ending up in a "devastated condition". What does that mean exactly?

I would be inclined to agree with this. My DS almost 18 has been prescribed Elvanse after school recommended he get proper diagnosis for ADHD inattentive. The medication seems to cause heart to race, low mood at the end of the day, difficulty sleeping, loss of appetite, feelings of dissacociation (can't ever spell that word), and a general blunting of personality. He regularly sits tests and exams and doesn't write a single thing! Both on and off the medication. He managed to pass all this GCSEs so maybe it did help with school work but at the expense of his and our peace of mind. Now he is a senior in high school I honestly just want school to be done so he can do something he actually wants to do rather than trying to fit into a school environment which is just painful for him, us and the teachers.

Pussygaloregalapagos · 25/09/2026 01:53

Justttheone · 24/09/2026 08:54

I'm worried about the appetite effect as my DC is quite low weight and we can't really afford further appetite suppression. I do wonder though whether they would sit and eat properly rather than getting bored after a few mouthfuls and claiming to be finished/full.

This worry is very valid - it does suppress appetite (it is also used for Binge Eating Disorder) and reduces hours of sleep which both have been proven to restrict growth. My boy would love to be over 6foot as everyone seems to be these days but not sure he will get there now as almost 18.

BootstrapTime · 25/09/2026 09:22

Pussygaloregalapagos · 25/09/2026 01:51

I would be inclined to agree with this. My DS almost 18 has been prescribed Elvanse after school recommended he get proper diagnosis for ADHD inattentive. The medication seems to cause heart to race, low mood at the end of the day, difficulty sleeping, loss of appetite, feelings of dissacociation (can't ever spell that word), and a general blunting of personality. He regularly sits tests and exams and doesn't write a single thing! Both on and off the medication. He managed to pass all this GCSEs so maybe it did help with school work but at the expense of his and our peace of mind. Now he is a senior in high school I honestly just want school to be done so he can do something he actually wants to do rather than trying to fit into a school environment which is just painful for him, us and the teachers.

Has he tried other medications? He shouldn't have to compromise severe side effects for ADHD relief. Our psychiatrist was very clear that there will be a drug that doesn't have side effects but it's a case of trial and error. I believe her now, seeing what my son was like on one medication versus another. Even if it's the same underlying molecule, the method of delivery and release can make a big difference.

MissHavershamReturns · 25/09/2026 09:43

My child is completely himself and meds have been life changing for him. We have a long running thread on the SEND board which has lots of experiences in it and the op recommends an amazing evidence based book. IRRC 50% of all kids taking the meds have no side effects at all.

allshewantsisworldpeace · 25/09/2026 10:04

14yo been on Medikinet for around 2 years now and he’s like a different child, but in a good way. He was so angry and miserable before it, school was a nightmare and other kids picked up on it and pushed so made it 100x worse. I used to get calls all the time from school “he’s done this, he’s done that”. He started Medikinet just before he went to senior school and since then he’s been the same good old kid we love, but happy and focussed. Every parents evening is “he’s so well behaved, he does so well in his tests, he’s a pleasure to teach”. I cry at parents evening for a different reason now. Instead of those awful phone calls I get emails from his subject teachers saying how much of a good day he’s had. They all think I’m lying when I say it wasn’t like this in primary.
I was reluctant to medicate at first but it’s made a world of difference to all of our lives now. I have 4 children and I worry about him the least. Never in a million years did I think that it would be like this. If you’d have said that I’d feel like this 5 years ago I’d have laughed in your face.

TheTwerkingDuchessOfMonteshitshow · 25/09/2026 10:07

TheNewFinch · 14/09/2026 13:50

I have observed many ADHD children as a child therapist and I observed that medication harms the child and they only end up in a devastated condition. It is better to regulate their behaviors at early ages through therapy so later in life they become able to manage their condition.

How early is early?

Quokkafeet · 25/09/2026 19:14

allshewantsisworldpeace · 25/09/2026 10:04

14yo been on Medikinet for around 2 years now and he’s like a different child, but in a good way. He was so angry and miserable before it, school was a nightmare and other kids picked up on it and pushed so made it 100x worse. I used to get calls all the time from school “he’s done this, he’s done that”. He started Medikinet just before he went to senior school and since then he’s been the same good old kid we love, but happy and focussed. Every parents evening is “he’s so well behaved, he does so well in his tests, he’s a pleasure to teach”. I cry at parents evening for a different reason now. Instead of those awful phone calls I get emails from his subject teachers saying how much of a good day he’s had. They all think I’m lying when I say it wasn’t like this in primary.
I was reluctant to medicate at first but it’s made a world of difference to all of our lives now. I have 4 children and I worry about him the least. Never in a million years did I think that it would be like this. If you’d have said that I’d feel like this 5 years ago I’d have laughed in your face.

This is so lovely to hear, as a parent of a son earlier in this journey. Thank you for sharing, I'm so pleased your DS is doing so well.

allshewantsisworldpeace · 25/09/2026 19:43

Quokkafeet · 25/09/2026 19:14

This is so lovely to hear, as a parent of a son earlier in this journey. Thank you for sharing, I'm so pleased your DS is doing so well.

I hope things go as well for your son as they have mine. I mean, don’t get me wrong, it isn’t 100%. He still does and says stupid things, but it’s a million times better than it was!!

FamingolosForDays · 25/09/2026 20:17

Medication was absolutely life changing here. DS has been on it since he was 6. He went from a school refuser with violent meltdowns to happily going into school most days, able to focus and become more confident. He is still behind academically but alot of the frustration was due to the fact that he couldn't physically sit still, concentrate on what his teachers want him to do, which made him anxious and therefore got told off for all of the reasons above, so had a rubbish experience at school. Would come home and detonate, not sleep because he was so anxious and then the whole cycle would repeat the day after, and so on.

It was the best decision we have ever made. We are in a much better place as a family.

No changes to his personality, he is still prone to a meltdown or two but we have lots of positive coping mechanisms in place and he is now able to verbalise how his brain works which is enormously helpful.
We had to change from medikinet to equasym as the formula just wasn't quite right for him.

I don't give it to him in the holidays, recommended by his psychiatrist. Extra coping strategies for those days.

Medicine never claimed to solve the behaviour and emotional challenges, needs to be done with a whole holistic approach.

FamingolosForDays · 25/09/2026 20:26

MyKindHiker · 24/09/2026 13:09

The challenge with any straw poll like this online is i’ve realised over the years and with son in special school so a huge network of parents I know - every child is different. Some respond great, some don’t. Can be exact same drug and one child will thrive another won’t. And of course a documentary won’t be interested in interviewing all the people for whom medication is life changing for the better.

Also there isn’t one ‘ADHD medication’. My own son has been on 8 different meds over the years - some stimulants, some non stimulants. They all have different side effects. One he was on longest had zero side effects at all.

With regards changing the school system. I have 2 kids with ADHD. One i do not medicate and he has to learn workarounds. The child I medicate we did not for grades but because his behaviour was so impulsive and chaotic he was in constant physical danger. I think because so much more ‘mild’ ADHD is diagnosed now, people forget that this is a condition which can be very serious. My son will likely never live independently and meds are absolutely essential to get through the day. No amount of adjustment to schooling can handle a kid who tries to jump out of the window on impulse!

Totally agree with this. DS has terrible impulse control and absolutely no sense of personal safety- we quite often have to medicate if we know we are out for the day in a particularly hazardous place. He's nearly 11 and still has to hold someone's hand near roads because he's liable to just wandering into traffic. Nightmare!

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