DH was seriously ill for nearly 2 years before he died. During that time he became completely dependent on me for everything. We had carers 4 times a day, but without me I guess he'd have been in a home. I was changing my DH's nappy and administering injections. Trauma is an over used word but I do think that's what it was for me.
But, bigger than that was the full time job that was advocating for him. Some of the treatment of a completely helpless man was appalling and if he hadn't had me badgering asking for e.g. pain relief I honestly think he'd have been left in pain, in his own waste and without a drink for hours, let alone getting aplropriate treatment. I saw other patients experiencing that and it was heartbreaking.
My eldest DC had just moved 300 miles away to be with his GF. I'm very happy for him and it's a good move for him, but it's unlikely he'll be much support. I have one other son but wouldn't ask him to change anything about his life to support me either.
I can pay for care, but it's the advocating part that frightens me....and this morning I cried on BF about having no one to care for me if I end up like DH! Poor thing.