Can you tell me about your worst migraines?

[ShellSong]

I just spent a whole night in agony and totally disoriented seriously concerned I had a brain tumour because it was so awful. Had a two day build up to it where I felt off too. And heavy period bleeding just to make it even more enjoyable. My husband calms me down by telling me this has happened for 30 plus years but every time I get frightened.

please join me in my misery but also reassure me. They’re so violent aren’t they?

They are the worst, sorry you experience it too.
I'm 'lucky' in that I experience an aura first so I'm usually able to take tablets which stave off the actual head pain, but on the occasions where I don't have said pain killers, I'm screwed.
My worst ever was actually my first ever, I felt like horses were stampeding over my head, actually like my head would implode or explode!!
I was only 16 at the time and my mum had suffered for years too, so we were half expecting it to happen ato one of my siblings or me at one point.

Now, if I get the pain, it's similar, throbbing violence in my head, vomiting, diarrhea, slurred speech, incoherence.

And then the migraine munchies when it subsides.

I’ve had some that have started in the night with an intensity so strong I simply cannot move my head and have to lie totally still in the darkness until a Triptan works.
Do you take a preventative or are you on Triptan medication?
The only reassurance for me, that they aren’t some kind of life threatening tumour, is that in between attacks I am completely fine with no hint of a headache.
Attacks really are awful things.

Migraines are the worst. Luckily I haven't had one for about 20yrs now, but I remember them so well. For me it used to feel like I had a knife in my head. I couldn't move my head even a fraction without crying in pain, and when the pain subsided I felt tired and spaced out for days afterwards.

My day to day migraines can be averted if I take painkillers fast enough, and now I know the signs they are coming on (stiff neck, slightly disorientated, feeling queasy) I can usually avert them.

My worst ones are triggered by something in cocoa and alcohol. Those ones make very feel very hot, then I get the headache and then I start vomiting uncontrollably if I try to move. Last time I was being sick so forcibly that I thought I might suffocate. So now I don't drink at all and avoid chocolate, but I can feel another food sensitivity lurking in the wings...

But, on the bright side, I have found that menopause has made me less susceptible to the ordinary migraines, so there's that.

I also get aura migraines, I’m lucky that I don’t get them very often so I have no idea what triggers them but they’re horrible (once one hit when I was driving which was completely terrifying). During my worst one I briefly lost the ability to speak properly. Some words I was mispronouncing and others I just couldn’t say at all. I couldn’t even write them down. I honestly thought I was having a stroke - a level of fear that really didn’t help when the pain and pretty lights hit. Anyone who thinks a migraine is just a bad headache has never had one…

Migraines are awful. For everyone who says just a headache I wish they would have one then they might understand! They are really awful. When I was in hospital in Glasgow once after trying lots of things in the end I had morphine as it was so bad.
Funny I always crave hot sweet tea when it starts not something I really drink any other time.
I really do not have any suggestions but send me your best wishes

I call myselve the migraine queen.
Ive had them from mild to being taken to hospital.
From a droppy eye to passing out.
Sicking my guts up living in sunshades,
Lets not forget the forgetfulness cant get words out cant read sparkle vision, floters almost daily, lovely auras.
The migraine hangovers.
Sometimes i feel like ive been hit with a bus or had a good slap the side of my face.
Sounds are louder smells are smellier.
Looking at something but cant see what it is odd on that.
Lets add some dizzyness spinning ear rining.
And many more.

I dont need drugs or beer to be off my face.

sending psychic migraine sisterhood vibes to you all!

I have focal migraines from consuming two annoyingly common foodstuffs. Apparently, it looks like I am having an epileptic fit. However, at least they're over and done with quite quickly; I just feel very tired and a bit odd the day after.

My most recent ones have a quick onset. I am on a cocktail of daily medication, plus painkillers and anti-nausea tablets (my prescription has been changed again, as of this week). I would prefer it if the root cause could be found, rather than just dealing with the symptoms. I can take the anti-nausea tablets as soon as I feel it coming on, but I'll vomit very quickly, and then I have to get home ASAP. I get a sharp pain in my head, I start walking stiffly and slowly, my balance and coordination go, serious heat and light sensitivity, and I get confused and can't keep up with when people are talking to me. Oh, and my own words are jumbled up, or I forget them. I certainly can't drive. I spend 5-6 days in bed with heavy flu-like aches and pains in the rest of my body before it is safe to venture out again.

You are not alone, they are the worst. Somewhere in the midst of the blinding pain, the dizzying sensation when have to move my head to be sick, the thumping in my head and raging heat after every vomit is a sensation of pure fear. First I'm worried I'm going to die, and then I'm worried I'm not. Just awful.

Migraines are hell.
I feel for you
Are your migraines from hormonal changes before a period?
Worst was feeling so sore in the head & vomitting..I slept it off after the vomitting
Next time i went to the chemist who gabe me a controlled drug coldral which worked...once another time not.
I had them quite often 2yrs ago.
I took alot of time off.
I was prescribed rizamelts...they make me feel off my face...so I dont take them.
Now i get sibus headaches like a knife up i to my brain
White tiger balm releives the aching and lifts you abit.
If I take 2 ibprofens it makes me sleep.
Also hydate is hard feeling ick.
My doctor said try orange juice with a pinch of salt like a homemade hydration drink.
The only time i hate being sick is migraine pains with children its unfsor for everyone.

I think I've had them since I was 10, I'm 50 now. At first without the pain just the other symptoms, extreme fatigue, weak arms and legs, cold extremities, then the pain started when I was about 16.

I've never been able to have proper job because over 20 days each month were migraine days. I got some reprieve when I was pregnant or breastfeeding, I don't smoke, drink, have caffeine or sweetener, my diet is good (boring) I've spent most of my life in bed with a bucket, I've tried tens machines, Ice packs, acupuncture, piercings, reiki, reflexology, meditation, curable app. I've tried all the meds, most didn't work, but a combination of topirimate propranolol and zomig lessened them slightly and at least I could potter and stay out of a darkened room.

At the beginning of the year the Neurologist prescribed Atogepant and the pain has gone completely. I am just left with the symptoms I had when I was 10yrs old, so I can tell when I've got a migraine, but no pain, I'm just exhausted, weak, and maybe a little nauseous. I still can't live a "normal" life and I still sleep more than the average person, but I'm enjoying not having pain for the first time in 40years. So please keep going back to your Drs and insist in seeing the Neurologist, I had to try so many meds that had to fail before they would prescribe the atogepant.

Just to say the curable app is well worth a look at. I used it all the time when I had a migraine as it has visualisation meditations that calm your nervous system down. It only didn't work for me as my migraines are caused by a condition I have, but I think it would work well for stress or food triggers. I haven't used it for a while so I don't know what the cost is now, but I bought it for life and I'm cheap so it couldn't have been that much 😆

My worst migraines were many years ago, my first I had the doctor come to see me for something else at age 15, I described pains and he said it was a migraine.

I tried the tablets that were first produced approx late 80s but made no difference. With all my migraines, I literally felt as though a sledgehammer was going into my head over and over and I had nausea where I was sick too. Luckily when I was 30, they disappeared. Think they were hormonal originally. I got auras too, not all the time though.

Migraines are awful, I haven’t had one for about ten years now, mine were hormone related but I had them from about sixteen to 40.

the pain in my head on one side, felt like I had a knife in my eye, pain up my nose, dizzy, couldn’t move my head without pain and sickness and just a really odd feeling of not being here.

Then eventually I’d be violently sick and I’d start feeling better, but I’d be washed out but so relieved it was over for the month

horrible things. Anyone who says a migraine is just a bad headache hasn’t a clue. Mine weren’t even half of what some people describe as mine would only last a day

Bloody awful things.
I've had them since around 12 and they ramped up in my forties. Now, at 54 they seem to have gone away. But I've changed jobs and my sleep is far, far better and I think a big trigger of mine was tiredness.

My worst one, I think, was a thunderclap migraine during a bootcamp exercise class. The instructor had to call an ambulance as I was utterly incapacitated. (I remember lying in the back of my car, holding the hand of some poor chap who'd attended the session, begging him not to leave me. I never returned to the class.)