Anyone have an underactive thyroid and take ADHD meds?

[BabyMolly]

Just curious.
Am on levothyroxin and that keeps my levels 'stable' clinically but it makes absolutely no difference to my energy levels, they are constantly on the floor. First thing I think of when waking is when I can have a nap during the day.

Started Elvanse about 3 months ago and its been completely transformative in terms of my brain and my energy levels.
I can function.

BUT the last 3 days I didn't take my Elvanse because of various reasons and my god, i forgot how debilitating the fatigue is.

I literally could not do anything for the days I didn't take it, had multiple naps, was absolutely no use to anyone.

Today I took it and normal again.

But it makes me worry that it is masking that level of fatigue. Its not normal. But I am told my levels are fine at every blood test but I literally feel like a zombie without the ADHD meds.

I am happy to have something that helps my fatigue but obviously its not meant for that, but I almost worry that something is seriously wrong with me and I'm just using this plaster to cover a broken bone, iykwim?

I am seeing a specialist about exactly this. I was found to have low vitamin B so intake that along with thyroxin but like you I feel exhausted all the time and I can’t properly concentrate on anything for more than 10 minutes at a time.
I will post again after I have seen the doctor.

My dd has this.

she’s trying to titrate to a different brand after her preferred brand is no longer available and it turns out that the fatigue is genuinely much much worse without the Levo.

her thyroid diagnosis took five years and she collected a CFS diagnosis along the way.

I've not actually been to the Drs in so long about the fatigue alone because I almost learned to live with it and accepted I needed to sleep way more than normal people.

But the severity of the fatigue I feel when I miss my ADHD meds is actually scary.

I've gone upto 50mg and I didnt sleep at all last night and my anxiety has been sky high so I feel I need to maybe come down a little, back to 40mg maybe but I'm scared to lose the energy that I have on it at the same time.

But it scares me because how can my body be so reliant on a stimulant to not feel that way?

I feel like I want to go to my GP but what do I say? That I'm concerned that my ADHD meds are helping menin an unexpected way?

Thankyou for sharing.

Yes I always have a low vitamin B too. To be fair my diet is atrocious and I have absorbsion issues from a surgery and am supposed to take supplements but they all make me feel extremely nauseous so I've not been taking them :/

Go to gp and say you are concerned about your base level of fatigue.

They could at least check iron and b12.

although iron tablets are bloody brutal on the body

No advice on the specific question, but bear in mind when you stop Elvanse it’s normal to feel completely wiped out (and hungry!) for a few days.

It’s a powerful stimulant, so you have a sort of amphetamine comedown, basically. It doesnt necessarily mean you are naturally that wiped out forever more.

Its honestly the same level as before I started Elvanse, I've felt this way for years but just keep being told my thyroid levels are fine. I may have felt it more the last fewndays as I've gotten used to the stimulant but its definitely not just a comedown from that. I would spend days in bed to tired to even feed myself