Does anyone else get unusual migraine symptoms?

[Twinklefeet]

Hi all came to ask what your migraine symptoms are, do you have any bizarre ones odd ones etc.

I suffer with migraines my odd one is my mouth and tongue tingle.

My sense of smell increases to that of a basset hound. Any chemical smell - like deodorant or air freshener- can somehow stab my brain.

This as just made sense to me now with the tremperature my face gets really hot.
Never thought of a link to migraines.

I get double vision so I cannot focus my eyes, unable to do anything when that happens except sit and wait for it to leave. I get a metallic taste in my mouth afterwards.

Again thank you all for the comments it makes so much more sense to me now.
Its been an eye opener and i feel a bit better now i know its not made up in my head.

My first symptoms is always visual disturbance, normally starting with my right eye.

i am always absolutely ravenous after one. Like, could eat my own arm from hunger.

I also go blind. Day before I also yawn, get a v blocked nose/runny eyes and generally sound like I’ve got a heavy cold. Pressure in sinuses. Cannot find words, drop things /lose co ordination. Crave sweet food.

Find my digestion stops too, if I am sick it’s often cos food has been in my stomach for hours and is not digesting.

DH can often tell as I look different, he and the kids can see it in my face, sometimes before I know.

Oh and v sore and stiff neck, often with incredibly sore and sensitive scalp where any touch is excruciating.

Have weirdly found French paracetamol sachets (current ones crème caramel flavour) seem to work and be absorbed even though tablets don’t. Expect calpol would similar but you’d need a fair few spoons for the dose

I had a vestibular migraine (had to look it up to see WTF was going on) once when I started taking Mounjaro - fortunately nothing else as severe after. I seemed to get diarrhoea and constipation at the same time and then while I was sitting on the toilet my vision went blurry then I had coloured flecks in front of my eyes. Very bizarre and took about an hour to subside fully, lying on the sofa.

My husband talks of constant headaches. He went blind in one eye once. He has trouble swallowing. Has tinnitus. Once his eye went to the left and stayed there. I called the emergency services and they came and looked him over and blue lighted him to hospital with suspected stroke and were very worried about him. Neurologists have ruled this out and think it is linked to the headaches. Nothing visible on scans or mri. He grinds his teeth like nobody´s business. And his speech goes funny from time to time. Has problems walking, with his balance, lack of strength in both legs and sometimes arms, so much so he couldn´t carry our daughter and walk straight since she was 1 year old. But it is all to do with the headaches. Hmmm. He´s at the end of his tether.

Thank you so much for saying that. There's been a thread about smelly people and B.O. and I said that at least the smell of B.O., or manure spread on the land for that matter, never gave me a migraine but if people at work sprayed stuff on themselves at their desks, which they did, it could give me a migraine, and it was more of a three-day event than a quick half-hour.

A few weeks ago I had a bad neck, diagonally opposite the usual migraine site, but it felt migrainous and Google said you can get them in the neck, so I reached for the triptan.

I get ocular migraines which is fork lightening and pinprick vision, but also there are cognitive effects. The last time I experimented with reading during one, I couldn’t remember the meaning of very basic words. An optician said that they tend to go post menopause.
I don’t get pain though so that’s super.

@Notactive@Twinklefeeti was just googling and it looks like there are some good migraine clinics in the UK; London Migraine Clinic looks interesting. They’re probably private but I’m guessing on balance cheaper than going abroad. Is there any reason you would go abroad? Not judging just interested.

The bit where my thumb meets my hand aches. I also mix up words a lot, but I know that isquote common. Still odd though, getting words in the wrong order or only being able to describe something in odd ways.

I've just thought of another one which isn't at all unpleasant. Not everytime, but often,the day before I get one I get the taste of very specific foods in my mouth, like I am eating them. Things like a particular brand of hummus and some dark rye ryvita or a meal from 30 years ago that I had completely forgotten about. So strange.

My teeth ache. And very occasionally I get a stomach migraine which I didn’t even realise were migraines to begin with but very much disappeared with Triptans.

I get excessive yawning as my aura and my right nostril gets completely blocked. My migraines are right sided.

Yawning, constant massive yawns. When that starts I know I’m done for.

Alice in Wonderland Syndrome - the floor seems to near or too far away! Weird!!

I came on here to say yawning. Especially before the migraine starts. It’s a thing!!

Yes also have the euphoria - though never know whether that’s just me feeling massive relief when it lifts…

A weird throbbing in my right ear, usually the day before. I used to get facial numbness too but that seems to have petered out. I always get a pain under my right shoulder blade then neck pain as the migraine set in.

I hate migraines.

Really fascinating to see different people’s symptoms. I get a lot of these. I’d never realised the yawning was migraine related.

Also: weird itchy /stuffy nose. I end up wriggling it and looking like I’m doing some sort of rabbit impression.

I know a migraine is coming because I start yawning uncontrollably the day before. And I do mean uncontrollably - like hiccups, but yawning.

It’s my nose and chin that goes numb and tingly. I have to fight hard to think properly, and then the wrong words come out. I write gibberish too.

I am prone to rage before one comes, which isn’t like me at all, and my mood drops horribly during an attack. Would happily die tbh and think it was a blessing on anyone who knows me to be rid of me.

My neck, jaw, shoulders hurt the day after in a weird way. It’s like the way my mouth feels if I bite a lemon, but spread out into the bigger muscles.

One of my triggers is intense exercise although those ones tend to be fairly short.

My neck clicks like a ratchet. It feels like my head is going to fall off.
If the pain gets past my ear and reaches my temple, it's too late for the triptan and it will be 3 or 4 days before I can function properly again.
Mine were definitely cycle related. I had a very short cycle and would get a severe attack every 3 weeks then another milder one mid cycle so there weren't many days a month I felt well.
I just put up with it for years but GP prescribed Propranolol and Sumatriptan when I was about 40. I thought they would stop after menopause as my Mum's did but I don't actually know when that happened as I had the Mirena coil fitted after DC at 37 and never had another period but still had the migraines regularly.
Had the coil removed at 55 and they have definitely eased off. I still get low level ones probably every month or two so still taking the tablets now at 67.

I have aphasia and alice in wonderland. I have also had migraines inside all my teeth and vestibular migraines. The one thing I haven’t had in 20 years as a migraine symptom is a headache.
I have the weird itchy nose thing but have never connected it to migraines.
I used to get the euphoria when I had classical migraines but I haven’t had one for a while. Still glad when it’s over but it’s a different feeling.