What are you up to today if you have a chronic illness Thread 8.. plodding on gently...

[MewithME]

Linky to last thread 🧵 https://www.mumsnet.com/talk/_chat/5506529-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-7

Let's be good and use those last posts up first. Nice to be tidy here if not in my house! 😉

Sending you very best wishes @FuzzyPuffling

Sorry to hear this, hope the consultant can help. My DH is also having a flare up in his condition and has a text tomorrow, it's stressful isn't it.

I hope they find out what's wrong and come up with a plan,

Thinking of your and DH @FuzzyPuffling

Feeling a bit better today, was good to be back in my own bed. Have arranged an initial chat with a local counsellor who seems to specialise in an appropriate mixture of things. I have another couple 'shortlisted' but she had the nicest website and way of writing about things!

That sounds positive @martha79 I hope she’s more helpful.

Not a good night here pain wise or sleep wise despite the strong meds I’m still on. Think I need to take them a bit earlier as I felt zonked this morning. DH out early today as DD has an exam so left me a cuppa and breakfast and luckily the dog has just slept too as he had a few errands to run. My mum is unwell too and I obviously can’t get over yet but DH has checked on her again this morning and dropped some food off. He’s a superstar. Times like this I worry about the future as she only has us locally. I have brothers but both live abroad and rarely visit so all the future care will be on me and that’s going to be tough. We can only do what we can do I guess. Wish I could switch off my worry button as it’s not helpful!

Thinking of you & dh @FuzzyPuffling .

@FuzzyPuffling Sorry to hear things are hard. Hope things improve for you and your DH.

@martha79 Counselling can be very tricky. I had a lovely therapist right in the beginning of starting to come to terms with my health and she was amazing. Very much focused around acceptance and changing the way I live my life e.g. stop pretending everything is ok and putting a mask on to seem fine and be more honest and ask for what I needed in work to support my health.

Im 90% sure she was a clinical psychologist though. My counsellors since haven't been quite as good and I have noticed a massive difference. She used an acceptance and commitment therapy model like @Swanhilde mentioned. It was very helpful and helped me reframe things.

@MewithME Hope your week goes as well as it can.

Home from work and in bed with a cuppa ☕

One more get up to go ....

I am happy today because I’ve got tickets to a concert - who knows at the time if I will be able to go, nothings guaranteed but I’m excited anyway!

Where are you all? Hope everyone's okay 💐

I am home from work and showered and packed! Baked potato for tea and then an early night as we are travelling tomorrow 🥳

Thank goodness for regular breaks, I am shattered 😴

We are a bit less chatty just now I think. You're right @Swanhilde

I've been in a crash. Felt a bit better this morning but absolutely wiped this afternoon.

Big event day tomorrow so I'm a bit nervous and I see we are in for sudden heat which I am not happy about.

Not doing too well at all really. Feel weak and foggy.

Just been depressing myself reading about the trial of scrapping fit notes from GPs. Find it scary for people like us.

Yes it must be a slow day! No change here with pain or fatigue and didn’t want to moan M.
though I have managed to get an osteopath app tomorrow with a lady I’ve seen before. Hoping that might help along side the physio anf meds.

Great news @ValleyClouds fingers firmly crossed.

@Swanhilde glad you’ve got a break to look forward to tomorrow. Enjoy. Baked potatoes here tonight too!

Hope you can get through tomorrow @MewithME and sorry to hear you’re struggling 😕

Hi just a quick post so I remember to come back to this thread and read it later!

Wishing you all a restful evening and sleep

I try to limit exposure to benefit bashing @MewithMEbecause the anxiety I feel is overwhelming

Evening all. I'm so tired. Couple of busy days at work not helped by uncooperative technology. And I had a very dodgy stomach in the middle of the night last night 😔 Am lying in bed having just woken up from a nap, with very achy hips, but must get up for some food. Just one more day at work this week then I'm off until June.

I'm just in a worrying funk about DH.

I read that and thought wow...until June! That's a nice long break. Penny dropped....omg how is June only 10 days away! 😱

Has he seen anyone yet?

He's had several tests and been hurried to a consultant tomorrow.

That’s good that he’s getting the attention and things are moving

Had a hospital day yesterday, nothing major, just a heart review. Meds are maintaining things as well as they can, and nothing is changing. Which is nice, I dread it when they fiddle with my meds, it always takes ages to adjust, and a load of different side effects to contend with.

But the driving and waiting around on very uncomfortable chairs made it quite tiring.

What is it with NHS chairs? its like they want people to develop bad backs as well as whatever they already have.

Had a lazy day today. Sod all achieved, but refusing to have guilt.

What is it with hospital chairs? When I burned my feet I sat for 4 hours if I recall while DH stood most of the time. He has a bad hip and was limping so badly by the end he went and sat in the car to wait.

I've had a stressful week, self imposed because I worry so much. I hardly ever cry because I can usually jolly myself out of being silly but the floodgates opened two days ago and I just couldn't stop. Kept getting full body jerks which I always get if I'm exhausted.

Last night I had the most violent adrenaline rush as I was going to sleep and my heartrate was straight up to 135. I usually get this while fast asleep and get jerked awake. In a very detached way I could "watch" this episode in real time. First I felt a massive lurch in my chest and my heart started beating very fast. I had to calm myself down by telling myself it was just adrenaline, my heart is fine, it will soon be over, etc. DH checked my HR after a few minutes and it was slowly going down. I was really tired after a sleepless night previously so I just held DH's hand for a bit and fell asleep. Slept like a baby but will be resting today.

I feel a bit more normal today, so hopefully normal service will be resumed!

Oh I’m sorry @TeaAndStrumpets that sounds a tough night. Sometimes crying can be cathartic but it’s also exhausting for us I find. Hope a gentle restful day helps.

Thinking of @FuzzyPuffling and DH today.

Thank you Tricky. It's a long wait until this afternoon.
I didn't sleep much and have a headache...goodness knows how DH is feeling.