Heartbreaking story in the Times

[BlueDressingGowns]

https://www.thetimes.com/article/593a86e8-41ba-4638-9186-fa56d51ba3be?shareToken=b82c8d410078ef40f788f3f892e8fbf2

I had never heard of Sanfilippo syndrome before.

I follow a few social media accounts of families who’s children are affected by it. I’m not sure how I came across them to start with but it’s a dreadful condition. I think the families I follow try and do lots to raise awareness. But it’s very rare.