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Still waiting for biopsy results 3 months on, do I just keep on chasing?

3 replies

StandingOnaCornerInWinslowArizona · 12/03/2026 09:39

It's been 3 months since I had a gastroscope. They took biospies for coeliac disease as I have been suffering from digestive issues for years which have been getting worse and recent blood tests showed a low IgA level.

I have chased it three times already only to be told by the secretary nothing had come back but the last time I checked (over 2 weeks ago) she said the results were back and they had been handed to the gastroenterologist to look at yet I still haven't had a letter and there is nothing on my hospital patient portal account.

The problem I have is I had to eat gluten every day before the procedure to ensure I didn't received a false negative. I since gone strictly gluten free in the hope it would help me as it does appear to help so many but I am really struggling as I can not stomach most gluten free products, I follow a low fodmap diet already and many gf products contain high fodmap ingredients. I also have ARFID and find the taste and texture of many GF products simply disgusting if I am honest.

I am also not getting any relief from my issues having gone gf but I would like to know for sure if I am ceoliac before re-introducing gluten.

I hate being that annoying patient who is forever contacting the secretary but surely 3 months is long enough? Should I keep chasing?

OP posts:
Iwascupbearertotheking · 12/03/2026 09:54

I'd pop an email to PALS.

They are rubbish where I live but it might help.

If no response I'd get my MP involved as that does tend to light a fire under then.

Good luck!

StandingOnaCornerInWinslowArizona · 12/03/2026 10:49

Iwascupbearertotheking · 12/03/2026 09:54

I'd pop an email to PALS.

They are rubbish where I live but it might help.

If no response I'd get my MP involved as that does tend to light a fire under then.

Good luck!

Thank you, I will try PALS.

OP posts:
Muckypig · 12/03/2026 12:55

If the results are back and secretary has confirmed that definitely ring again and ask when your review appointment is, and if she says it hasn't been made then ask for it to be put through to the bookings team. And then put a recurring event in your calendar to call every week until it's booked.

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