What are you up to today if you have chronic illness part 2?

[MewithME]

Thread 1 here
https://www.mumsnet.com/talk/_chat/5332156-what-are-you-up-to-today-if-you-have-chronic-illness

Come join us for our ups and down and daily natter.

I'm at work. Been ok this morning. Just had my homemade soup for lunch so hoping my heart rate doesn't start climbing too much now.

I have a very old and pot bound peace lilly. Hasn't flowered for years. I got it back from my exh in fact so I bet it's twenty at least. It seems healthy enough and I even attempted to split it and repot for more room some time ago but obviously needs a repeat. My yucca is as high as the ceiling almost, so he'll have to go outside eventually. I love him. I don't know why he's a him, but he is! I also bought a monstera which is lovely and my other lilly (non smelly) got a nasty bug but I cut it right back and stuck it outside and it looks fab now.

I'm not really green fingered but I do try and keep them alive. I love my indoor jungle. Yucca also gets baubles at Xmas!

Hey all. I don’t post much but love reading these everyday. I’m feeling down today as I’m in the middle of a bad flair, on antibiotics and generally feel horrible and think I’m going to have to let down a friend who I’m meant to be going to a gig with on Thursday. It’s bang in the middle of my work days and I just don’t think I have enough “spoons” for this. I’m intending on telling her that I don’t want any money for the ticket or parking which I’ve already paid for, and she’s got lots of friends so will be able to fill the place, but still feel shit. I’ve got to do it tonight really so that she has time to find someone else and I’m sort of psyching myself up for it. She’s not a close close friend so it feels worse… my best friends would absolutely understand, but she’s not so clear on my pacing and spoon situation. Can anyone relate?

I committed to this almost a year ago when I was in a much better place, but I just don’t think I’ve got it in me, especially as I’ve got tickets to an exhibition with my sister on Sunday.

Fucking chronic illness!

@LambriniBobInIsleworthISeesYa oh it’s hard when you have to cancel stuff like that especially when it’s someone who isn’t familiar with your condition but hope she understands.

I also have a peace lily that periodically flops in a sad heap too and then revives again. I repotted it a while back and amazingly it flowered this summer. It is amazing as I’m not green fingered either, love a house plant but can be a bit hit and miss if they make it, but i seem to have kept the peace lily alive for a good few years now so it must be easy to grow!

I also have a peace Lilly. It was a gift from work when I was very poorly after surgery a few years ago. I love that it tells me so dramatically when it’s thirsty.

its hard letting people down, but you wanted to go and you would jf you could.

I totally forgot I’ve got soup in the fridge. I ate a mini pork pie and pack of crisps for lunch. I should have had the soup with the sourdough. Duh.

Thanks for all the recommendations for mobility aids - I will study them all this weekend

I just remembered that I also had soup in the fridge that I forgot to eat but I’ll have it for dinner

I’m painfully tired today - didn’t go into work but will need to go in tomorrow/Weds and Thurs so putting my feet up today

I also forget when I’ve taken medications. I can take a pill, walk downstairs, get to the bottom of the stairs and think did I take that pill or not and genuinely not remember!

hope the puppy viewing went well

Peace Lily into water, now perked up...me onto sofa not so much. Ah well.

I just remembered I've had a Thanksgiving cactus for about 8 years, just ready to bloom. It seems to survive pretty well.

Work today - long one as we had training after work. Home now and it's our anniversary, so it's takeaway for tea ❤️

Aw congrats @Swanhilde . How long? 😊

Been at work today - WFH fortunately. Went out for fresh air with my son after work and made the mistake of thinking "oh it's a lovely evening, I'll just walk one block further"

Been asleep on the sofa most of the evening!

Hope everyone else has had a good day.

Sometimes it's worth it @VikingNorthUtsire !

I had those thoughts driving home from work but knew I couldn't do it really. Was straight in bed when I got back!

24 years, but known eachother 34!

Big anniversary next year - would love a party but it might have to be in the afternoon 🥳🥂

Awake since 4am, brain kept focusing on events from decades ago that I'd rather not go through again. Pleased to be up and sort-of doing!

Hope you all have a good day.

Morning.

DH has gone to London. Cleaner was supposed to come but I’ve asked him to canc her as I’m not functioning enough. DS2 has got to school, DS1 had a very large mole removed yesterday and is in pain from the wound. I’ve coaxed him out of his high sleeper and into my bed. Taken him toast and drinks and painkillers and he’s settled there for the day. I’m in stupid amounts of pain and feeling very sorry for myself. I’ve got to drive 30-40 minutes to hydro this afternoon and I just am dreading it. I’ll move a bit better after and I can’t cancel so I’m going, but today can sod off.

Forced myself to have a shower, then felt so awful I had to choose between brushing (long wet) hair or brushing teeth. Hair won. Teeth can wait an hour. My heartrate had been stable for months but three busy days on the trot has really been my downfall.

Read the Times online, just depressed me. Looked for a calming polite thread on Mumsnet but mostly it's trolls/fucking halfwits. The bile on here is off the scale.

This a nice thread! Think I'll give up the other stuff for a few days. Thank you all for being human.

You need to come and talk about how old your cheese grater is @TeaAndStrumpets 🥰😆😆

Ah @FurForksSake hope the pain eases off for you and your son too. Hate it when you’ve an appointment you know you can’t cancel anf you wake up feeling awful. I had that with the dentist yesterday but DH drove me and at least I was in and out super fast.

@TeaAndStrumpets sorry your busier few days have caught up with you. This is a lovely thread and it does help to have others who just get it. Good idea to stay away for a few days, I sometimes can’t believe some of the comments. Just no need to make other people feel like shit is there!

Im struggling again today and so fed up of sounding like a bloody broken record even to myself. DH and DD are away 2 nights at the weekend as he’s taking her up North for a Uni open day so guess I’m a bit anxious about coping especially with our new little rescue pup as I’m struggling with her today and he’s home but I’ll just have to as it’s important to DD.

Oh, I will look for that thread! My cheesegrater is only about 20 years old, but my bread knife is 50 plus years old and second hand when we got it ;-)

https://www.mumsnet.com/talk/_chat/5421327-how-old-is-your-cheese-grater?utm_campaign=thread&utm_medium=app_share

@Hotbeverageplease how exciting! There are some great northern universities and a lot cheaper to live depending where you are.

You need to stock up on a few treats to get you through the weekend. Hope puppy is a Good Dog for you!

Oh thank you!! Perfect.

I have a sub to the Times and feel the same about it and MN at times. I expect stuff like that is not good for us mentally sometimes too, because it is stressful to deal with. I'm not sure why I keep my sub at times, I think it was very cheap offer or something.

I'm on mounjaro and started a simple thread about that and being more sensitive at lower doses, but even that seemed to descend into bickering and drama. Sigh. At least this thread is not like that.

At least the Times is better than the Daily Mail which MIL insists on bringing on a weekend. I just read her her stars and ignore the rest. She says she gets it for the TV guide but I'm not convinced.

Still mainly in bed here but did get up to e.g. wash dishes and put the laundry on, same old stuff..

Have messaged my sons today (16 and 20) telling them about the ME / CFS diagnosis, reassuring them I'm Ok but any help with things like dishes and housework is appreciated! Will see how that goes..

DH is encouraging me to 'get out and do something' so might try going for a short swim later. It's hard when you don't know how you might feel after.

Need to try and book a flu jab but can't be bothered with that.

I hope your boys step up @Orangesandlemons77 . It's hard isn't it to ask for help - I don't know how you feel but my instinct is always to hide my health issues to protect them. My mum was quite unwell when I was an older teen and on the one hand I did lead quite a carefree life at the time but in retrospect I really wish I'd understood more of what she was dealing with.

I met a friend for coffee this morning and picked up a couple of bits of shopping (no work today). It's my turn to cook tonight so I am in bed resting up for that.

Busy day here looking after dad. First up was car MOT which took a lot longer than I expected. Was out for nearly 2 hours.

Then tidied for his cleaner coming and then had a large delivery from Tesco. Am now lying on sofa, hoping to have a nap.

Following advice on here I'm trying to rest lying down - think it was from @Orangesandlemons77 course.

Heard this morning that my pip review has started, so hopefully the paperwork will be there when I get home. I had to ask for extra time to complete it last time. And then it took them ages. Anyone know if they're still behind on them?

@FurForksSake how beneficial is hydrotherapy? I feel that I need to do something very gentle

Definitely behind on PIP reviews Berfy. My form was returned in Aug 24 and I haven’t had an assessment yet. I just keep getting the ‘we’re processing your review and will be in touch soon’ texts every 3 months.

Home from work drinking a cuppa in bed. More training later but it's online so will stay in bed for that. DH is cooking tea.

Yesterday I ate half a packet of plain chocolate digestives. My sleep last night was rubbish, as were the biscuits! So disappointing and so not worth it 😟

I shall therefore be staying off the sugar for a while and hoping that my sleep sorts itself out ....