What are you up to today if you have chronic illness part 2?

[MewithME]

Thread 1 here
https://www.mumsnet.com/talk/_chat/5332156-what-are-you-up-to-today-if-you-have-chronic-illness

Come join us for our ups and down and daily natter.

@TeaAndStrumpets it's always dramatic when blood happens in my house 🙈 when he was younger he used to have other triggers for it too and keel over all the time, now we seem to be down to just the blood and averaging 2/3 faints per year.

@MewithME I was up to "high doe" as my granny would have said 😂 the nose bleed was so random, think I've only had about 3 in my entire life. And my poor is coming round and apologizing bless him.

You're just right to break up the bed change into parts, I do this too, it takes me a whole day just to do one bed sometimes!

Definitely not silly to go out, I know what you mean about how you might suffer for it later but if you're craving nature let your mind and soul have it.

I didn't get my stint in nature sadly. Settled for a dip into the garden here and there for a sit. I have felt awful again this afternoon and DS came back early. Very typical of exh. He's managed just over 24 hours.

Back to work again tomorrow and still feeling dreadful.

@Greenvases I can totally relate to doing an activity for 2 hours and seemingly fine, but no one knows that I've spent the previous 2 days resting and will spend another couple of days afterwards.

Aw that's a pity, is your garden nice and green to sit in? I reckon that would still count! Sitting in the garden can be so good for your mind. That's a pity about your son coming home earlier than planned, sounds typical and frustrating.

I often think it's like standing on a rake but not getting smacked in the face straight away but a day or so later.....by which time you've done it a few times thinking you'll be fine...

@Realisation14 I hope no bloodbath today!

@MewithME I hope you get through your day OK.

Today I don't feel too bad (some hip and knee pain but nothing major). So I'm going to tackle some of the worst of the weeds in my dad's drive.

Not an urgent task, but as he's mid 80s I'm mindful of the fact that we might be trying to sell it in the next few years, and it will help if it looks cared for.

I will try to pace myself by doing 15 mins while listening to an audiobook. Really enjoying Kristin Hannah's Winter Garden at the moment. Then 30 mins rest.

We've got leftover stew from last night, so it's an easy day in some ways.

Hope everyone is having a good day.

@TeaAndStrumpets thankfully no!!

Had a very successful meeting at sons school today with new principal, SENCO and class teacher, felt heard.

Yay! @Realisation14 meetings like that can be so exhausting so well done for your success 🙌

Thank you, I know I was absolutely dreading it but thank goodness it went much better than expected. I think they could see that I was well informed and not hapless or helpless and willing to do whatever takes to fight for my son.

Another week and very nice sunshine. Had a weekend with no viewings so that was a welcome break from tidying etc. Gave the bathroom a good clean and caught up on laundry. We recently had to buy a replacement washer-dryer and I have been shocked how well it dries the towels compared with my old one. The washer part is rubbish though, so I wouldn't buy again. Had an accidental nap ie just rested my eyes and I was gone!

I know when I've overdone things because I get whole body jerks, that is my signal to ease off. And painful IBS. Recently I tried some women's probiotics and they made me 100x worse so I am rather wary now. I am sensitive/allergic to so many foods and ingredients. I haven't drunk alcohol for decades, so am a very cheap date!

I am resting on my laurels now the bathroom and bedroom are done. Tonight we will be watching some episodes of Home of the Year Ireland which is very relaxing, then a few hours reading. Never watch/read anything exciting or violent in the evening, it seems to rev up the adrenaline while I sleep.

We have a consultant appt / baby scan tomorrow..

Today i went for a walk ,
Had a shower ,
Bkd a fringe trim 4 tomorrow..
Packed a vinted sale

Do you know the baby's sex yet, or is it too early/want a surprise?

Today is meal prep day. Meal prep Monday! Makes it easier to remember. Been doing this for a few weeks and means very minimal prep for dinners for the next few days. The next time I will fully cook is Friday.

My sister visited for a while.
knackered now. Accidentally fell asleep on the sofa and woke up feeling ill.
Now resting and about to watch One tree Hill.

Hope today is not too bad for you all.

Ive finally had a less dreadful day and managed a very short walk with DH and new dippy dog. Took a perching stool which is a bit of a pain but means I can walk a few mins, then perch. Also helped doggo as she was happier to walk/ run around with DH whilst being able to keep an eye on where I am as she’s still rather anxious outside the house, especially if I’m not there.
I think DH has realised how much I’m struggling though as he seems to have stepped up jobs in the house a bit after I had a bit of a meltdown last week. So I was able to rest at least which I needed as legs are throbbing despite not going far but mentally it did me good.
So yes I agree with those talking about getting out in nature. I haven’t even been in the garden much lately and today made me realise I need to prioritise sitting out there each day the weather permits, even if it’s with a blanket and a cuppa like an old lady 😊

Managed to squeeze in a nap this morning between yard, horses and work. Just finished work and I’m fighting a sleep attack off with a coffee. I’ve got a banging headache too.
Ive got dogs to walk and evening yard to do so I really can’t afford to nap again.

@TeaAndStrumpets well done on your jobs today. I also get the body jerking thing and random muscles twitching when I’ve overdone it. And also cant tolerate alcohol anymore!

@worldwidetravel2017 good luck with your appointment/ scan tomorrow.

@Tiredandwired2 meal prep Monday is a great idea!

@Realisation14 glad your meeting went well.

@MewithME sorry you’re still feeling dreadful and hope work is manageable today.

That's such a great idea! I try to plan meals so we have leftovers. It does make for less stress. I used to make and freeze lasagne, fish pies etc when I had energy, but sorry to say we now buy a lot of Charlie Bigham's!

DH has taken over the cooking in the last few years but he has a limited repertoire and I have to plan everything for him. He started cooking when I was in a very severe CFS crash and couldn't stand upright for long, and just carried on. Of course now I am banned from the kitchen while he is cooking because he has to concentrate so hard . He gets quite put out at my devil may care attitude to timing. He needs everything to finish at the exact same time, whereas I can juggle. Poor chap!

Been to work, walked too much. Pain killers taken and home in bed with a cuppa. That is all - leftover soup for tea then sleep. Night night 😴

Hello all.

Work was tolerable. Struggling a bit with some colleagues who are wearing. One in particular but she's not worth the effort of typing about. It does wear me down though, just being around people who are selfish and I find uncomfortable to be around.

The commute was pretty awful. Took way longer than usual.

Then exh sent me a fairly awful WhatsApp, wittering on about nothing and being critical and his usual pompous self.

I'm trying to think of something nice... Oh dear 🙈

The sun shone. I had a lie down and watched some TV in bed when I got home. My friend rang and we chatted a bit (he's actually my ex boyfriend/partner and I still love him to bits really but that's another story...) . I got a nice hug from my boy and he seems happy today.

I'm going to buy some nice soap as a treat now. Bought some on holiday and it's lush. Sick of plastic so going soap for bath stuff now.

Love to the puppies @Stressybetty and hope your new dippy doggo is bringing you joy despite tiring you too @Hotbeverageplease

I've just looked at some videos of cute dogs on Instagram. I have my favourites. Virtual dogs are a lot easier but I do miss having one of my own.

Night night all x xxx Hope we all sleep well.

Awake as usual and have been for the last hour 🙄 but I must say today yesterday was a good day for me. It's too much to hope that tomorrow will be the same right?? Lol

Onward and upward!

A week ago I was so anxious about numerous things (that I really can't change) and I was very low. Then one morning I woke up and I had gone through some sort of mental pain barrier and thought, I just don't care any more. I am worrying about things that are out of my control and it's such a waste of effort.

I am trying to remember that feeling and not let myself get wound up again.

I mentioned it to DD1, and she said "I think you've just run out of adrenaline, Mum."

So trying to have a calm attitude this week!

@TeaAndStrumpets I need to keep this in my mind. I had a terrible night's sleep, tired and wired, anxious, ruminating after a blood test which needs further investigation and then catastrophising.

Hard to change my mindset when I'm almost housebound and feeling very isolated - my friends IRL are nowhere to be seen and I'm sure they think it's all in my mind.

Oh massive sympathy! The fear in the middle of the night is very real. Our defences are so low at that time. When that happens I get up for a while and have some herb tea, a browse on eBay can be very calming in the middle of the night, not to buy but to occupy the mind. I look at odd things like vintage tea towels . Very soothing.

I have slowly lost friends over the years too, I am lucky to have grown up children who are always in touch.

I also catastrophise, not just for myself but for all my family, it really never lets up. As for blood tests and so forth, I have to take my BP at home because my heartrate shoots up the minute I step inside the surgery. Anything medical gives me anxiety.

I hope you get your results soon.