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Cannot cope with our children anymore

152 replies

RainbowAndArrow · 14/06/2025 07:36

6 and 4
6 year old has ASD. We suspect 4 year old does too.
They are like hurricanes. They don't stop talking. Everything needs explaining to the nth degree
But the bigger issues is the volatility of behaviour. Fine one minute then utterly unreasonable and not listening at all the next. 6 year old then has massive guilt, tears etc only to repeat it all at the next opportunity.
4 year old wouldn't stay in bed til 6 today (that's our rule). Screamed at me, hit me when I tried to put her back in her room.

I'm getting hit before 6am on a Saturday. I'm utterly exhausted.

OP posts:
WonderingWanda · 14/06/2025 12:14

My dd was always a 5 am bird, just how she was wired so we took turns to get up with her. She still wakes between 6 and 7 as a tween. Just get up with her. You have nd children so what works for most kids may not work for them. Insisting they stay in bed etc is not going to work.

thatsawhopperthatlemon · 14/06/2025 12:17

RainbowAndArrow · 14/06/2025 08:29

She has lots of toys in her room.

We've tried later bedtimes and it just doesn't work, they wake at the same time.

It's the hitting and screaming at me that's my bugger issue

Does she hit and scream at her dad as well, or just you?

RainbowAndArrow · 14/06/2025 12:17

DH took them to a birthday party this morning.
They are just coming in and they are both crying.

OP posts:

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UnbeatenMum · 14/06/2025 12:25

I have 3 with autism, it's hard. For anxiety we do a lot of preparation. E.g. we look at pictures of where we're going or pictures of us having been there before. School make social stories for my 5yo for things like school trips. For sports day I will be there with him and he knows he doesn't have to do anything, he can just watch this year and see what it's like. We've looked at pictures of my older children doing Sports Day. They all know they don't have to do something if they don't want to. So we can go and have a look and go home if we want to. Having less pressure reduces anxiety. Two of them need a lot of support in school and for my youngest if school isn't going well it does really affect home behaviour. We now have a really good EHCP for him which is really helping. Do you think your 4yo is coping well and getting enough support at nursery?

MightyGoldBear · 14/06/2025 12:28

We are up before 5am often. Changing bedtimes didn't help we just have early risers. My eldest at 10 is just starting to lay in to 7am.

You've got some great advice from pp. Make life easier for you take some pressure and rules off. I have ND kids and if we tried to stick to rules and nice to haves we would live in endless meltdowns. You and they will figure themselves out more as they get older. Still at 10 years old my eldest and I'll be honest me at 33 years old 😂hunger and tiredness are my first port of calls.

It is absolutely shite and hard work. I too get fed up and think why did we do this to ourselves. You're not alone. It will change. One day you'll get some space and freedom back.

FromTheFirstOldFashionedWeWereCursed · 14/06/2025 13:18

OP, I have a 11yo who's autistic and a 5yo who's got some stuff going on too, albeit her profile is less clear at the moment. The single best advice I've ever been given is that "behaviour is the language of the child". Every single bit of challenging or unexpected or irritating behaviour will have some sort of underlying reason. When my kids wake up, they are hangry and thirsty and can't be rational until I've fed and watered them, no matter the hour. Could you leave a couple of Rich Tea biscuits / buttermilk pancake and a water bottle by their bed for a few nights, and see if that helps? Not fancy enough to be worth waking early for, but takes the edge off.

There's also every chance that they may be triggering and re-triggering each other. My two get on beautifully, but one needs lots of quiet indoor time and the other goes bananas if we don't get her outdoors and doing social stuff at weekends, so we divide and conquer or take it in turns to do stuff with each of them. It'll ease a little for us in the next few years as my 11yo introvert will happily safely and stay at home by himself for an hour or two, but we are four years into this pattern, and it works well. We really notice anxiety rise when we move away from it.

Another thought on birthday parties - they are definitely not fun for every child. DS does not go to all of the parties he's invited to, and I explain to the hosting parent why not - we've never had anything but kind acceptance in reply. At your kids' age, he found the start and end of a party hard, so we'd go 10 mins late and leave a little early - often just after the blowing out of the candles. That made it manageable for him. Even now, he loves the local Laserquest which is the venue of choice for his friends' birthdays, but the room they serve food in is very loud and he can't handle that, so we go to the laserquest bit then quietly slip away before the hotdogs and cake bit.

You said "nobody I know would let their child get up before 6am". If you compare your children and your parenting to what other parents choose to tell you about their NT children and their NT parenting, you will make yourself unnecessarily miserable. It won't even all be true! Parent your kids in the best way for them and you - your kindness, your adaptations and adjustments, your standards, your expectations, your compassion, your prioritisation - and they and you will be much more in tune.

Ruelzdontapplyhere · 14/06/2025 13:20

RainbowAndArrow · 14/06/2025 09:36

She is usually happy to stay in her room if she wakes early

I honestly don't know anyone that would let their kids get up before 6am.

We are just really worried about her. She's so anxious, and the smallest of things can set her off. I've done the right to choose path for her but it's all hard ATM.

We often start our day at 5am. I've 3 kids with ASD and they all have sleep issues. Once they wake up all they want is their breakfast and to start their day.

Sirzy · 14/06/2025 13:46

RainbowAndArrow · 14/06/2025 12:17

DH took them to a birthday party this morning.
They are just coming in and they are both crying.

For many young people who are neurodivergent parties are sensory hell. As much as they often want to go and enjoy it they can’t when they are there.

RainbowAndArrow · 14/06/2025 13:48

No they loved it when there, they had an argument over a party bag.

OP posts:
cestlavielife · 14/06/2025 13:58

Get an assessment with ss children with disabilities team.
Ask about short breaks.
Get referral for behaviour support via school senco

Confuuzed · 14/06/2025 14:02

I think you should look at pda - pathological demand avoidance. Since i read up about this and realized that it describes my children perfectly, i switched to low demand method of parenting the meltdowns have cut down dramatically. Check out At Peace Parents on Instagram. Pda is sometimes referred to as persistent drive for autonomy. Basically, if the child feels that their autonomy is threatened, they find it very difficult to deal with it. That can cause a lot of conflict. If you're parenting style is that children must do as they're told when they're told to do it .ASD with a G&T is a funny account with PDA children.

Basically you have to reframe what you're asking The child to do and doing your best to keep them under their threshold of what they're able to deal with. A full day at school and then a swimming lesson on top - my children would never be able to cope with that. They'll get all wound up by the constant demands of having to "sit Still. be good. Write this. Do that. play with that person. Be quiet . Eat your lunch nicely. Do PE. be quiet. Sit down. Queue up." And then after all that , it starts again - "go to the swimming pool , get changed , be good , do your swimming , get changed again , go home. Eat your dinner , do your spellings , brush your teeth , go in the bath , go to bed".... It all stacks up and then you get a child that is over the threshold of what they're able to cope with and then they start lashing out.

You'll have to let go of the strict parenting ideas that you were probably brought up with. Make suggestions instead of direct orders and make sure the child knows what happens when. Let her have input into the plan. Such as offering her water and telling her she can't have anything else - is it that big a deal if she has a little bit of squash or milk? Now and next boards are useful. If your child is demand avoidant then as a parent, you need to be very creative about how you deal with situations as they arise. You need to throw out the rule book and write your own based on what your child needs and what works for them.

It's very very hard. But it's cut meltdowns down by 90,% while still getting the stuff done that we need to do.

Confuuzed · 14/06/2025 14:03

RainbowAndArrow · 14/06/2025 11:58

Yep, but she didn't want to, she literally just screamed at me.

I need to find something to help with the anxiety, I think that's making everything much worse.

Play therapy is useful for mine with anxiety. A lot of the anxiety may be coming from feeling like she's out of control.

RainbowAndArrow · 14/06/2025 14:08

School senco is absolutely rubbish. I had a meeting with her and she suggested I read him a book about Chris packham.

Thanks for the other suggestions, pda terrifies me but I'll have a look. At the moment it all seems so manically fractious and whilst id love to do less stuff ont he week they just argue at home!)

DH and I definitely feel like we r on edge a lot of the time.

But then somethings they absolutely love and they are so ho for it and have a great time. DD was in hospital for a few days a while ago and it has really heightened the anxiety

OP posts:
Confuuzed · 14/06/2025 14:28

It's ok - honestly - learning about pda is scary, but it is NOT worse than how you're living now. Once you can put a name to what's going on, you can learn how to cope with it and how to help your child cope. I used to get hit daily. I haven't been hit in months. There's light at the end of the tunnel. Is you r daughter diagnosed or on the pathway? If not, look into right to choose to get her a diagnosis.

RainbowAndArrow · 14/06/2025 14:39

She's on the pathway, we are waiting for an appointment

Nursery are certain she doesn't have PDA but I definitely think looking at some strategies could help us at home. Her nursery have been a amazing to be fair

OP posts:
stargirl1701 · 14/06/2025 14:41

We used a Yoto for early morning waking.

RainbowAndArrow · 14/06/2025 14:44

Tried that, DS put it in the bath when he'd had it a week.

OP posts:
LoafofSellotape · 14/06/2025 15:10

RainbowAndArrow · 14/06/2025 12:17

DH took them to a birthday party this morning.
They are just coming in and they are both crying.

A long day at nursery then swimming, an early start then a birthday party sounds pretty full on the. My ds would've found that too much at that age. Hunger played a huge part in his behaviour too.

RainbowAndArrow · 14/06/2025 15:22

I think that's just normal for ours, I wouldn't know how to change it? They want to do stuff. They had taekwando this morning

OP posts:
Confuuzed · 14/06/2025 15:28

They might want to do it but you need to ensure they're not getting overwhelmed. Plenty of downtime at home with hardly any expectations in between if you want to continue with a full schedule of activities.

RainbowAndArrow · 14/06/2025 15:35

Would you let them have unlimited TV during that time?

OP posts:
Pamspeople · 14/06/2025 15:40

A large number of activities, a recent hospital stay and it's also mid summer when many of us are naturally waking earlier than usual - it's no wonder things are heightened at the moment. Kids (and adults actually) regress after a stressful experience such as a hospital stay, it takes a little while to get back to where we were.

Pamspeople · 14/06/2025 15:44

RainbowAndArrow · 14/06/2025 15:35

Would you let them have unlimited TV during that time?

Maybe something less screen focused? Reading with you, something hands on crafty?

VoltaireMittyDream · 14/06/2025 15:53

No advice, but lots of empathy. I’ve got one with PDA and am also having a day where I honestly wish I had never been born. I am so overwhelmed by the incessant talk and being hit and slapped and jumped on (not aggressively but in a sensory seeking way) and ceaseless ear-splitting vocal stimming and being ordered around.