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Need a handhold - son in hospital

544 replies

HaudYerWheeshtYaWeeBellend · 31/05/2025 00:20

Took him to A&E yesterday as he fell at the gym and we thought he had broken his wrist (thankfully just a sprain) however during their examinations they were worried about his circulation as his hands and lower arms were going blue and were cold to the touch, they advised we needed to make an appointment with his GP for further investigation.

Managed to get a GP appointment for 3pm today as the hospital suspect he could possibly have Raynaud's syndrome/disease

GP took his blood pressure and it was 177/127 , they thought the machine was faulty so got a another one and it was the same.

We had to take him straight to A&E, they’ve been trying to get bloods for the last 6 hrs but his veins keep collapsing and are unable to obtain his bloods, 2 doctors and 3 nurses have all tried with all sorts of needle sizes/cannulas etc… even with a vein scan machine, he’s been poked and prodded more times than we an count,

They’ve done a serious of tests, ECG, blood pressure cuffs on his arms and lower legs every 60 mins.

His only symptoms are some slight dizziness and some blurred vision, because of this they carried out a test where they turned the lights off and shown a torch in his eye… however the drs body language changed, she went and got her senior doctor to look and they redone the test.

We were then told to wait in the room as they needed to speak to a more senior doctor.

We were then put into a room, nurse came in about 45 mins later and advised he was being admitted, we asked why and she said has no one told you anything and we said no.

Doctor has come in and said DS is being transferred to another hospital, either tonight or tomorrow morning, he needs to see an specialist eye doctor , he also needs a urgent CT scan, possibly MRI and a heart scan as his ECG has shown some concerns and did we know he had a heart murmur.

They also need to get his bloods urgently somehow.

I’m not naive, I know what they are suspecting, I just need to be positive and hopefully the scans show nothing.

OP posts:
PiggyPigalle · 31/05/2025 21:37

Glad to hear your son is happy now he has his charger. Otherwise I was going to ask how he was coping with it all.
Strange thing with men, catch a cold and don't we all know it. Big stuff and they become all stoic.
Sleep well tonight, both of you.

Bunnie007 · 31/05/2025 21:41

Sending love. He’s in the best place and they will get him sorted asap I’m sure x

Booboobagins · 31/05/2025 21:47

Sending you and yoyr DS good luck for tomorrow's barrage of tests. Hoping they find its something straight forward. BTW my friends prescription steroids caused her sone mayhem recently so they were stopped and then switched - she has chronic asthma. Hoping its similar for your DS cos the switched did wonders for her xxx

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Wobblyheart · 31/05/2025 21:49

BunnyEaster · 31/05/2025 21:10

Weird they didn't do the CT scan. That's the first thing I had. I then needed a NRI and lumber puncture. However the next Dr on duty cancelled it, the next one rebooted it etc for three days! On day four I was improving. So on day 5 I went home!

Taking notes is a good idea as you can ask and follow up everything the Drs are saying. I didn't feel too bad whilst in hospital ( I was very ill) but I felt weak and wiped out on day 6 when I was discharged back home.

It is not weird. And what an insensitive thing to say to the OP when she is worrying about her child. The doctors are professionals and they have their reasons why the have pushed the scans back. It means they probably have some leading theories on what it could be and are making sure all is done on the best interest of her child. OP, it sound like you are in good, competent hands. I am also hoping it is actually good sign they are not rushing him to imaging. All the best to you and your son, and wishing him a full and speedy recovery.

Hermyknee · 31/05/2025 21:54

Thinking of you too OP x
We wrote everything down in a lined paper notepad (drs names, times, meds, results etc) we kept by the bed because this helps with change of shifts etc. Also if you and your Dh do shifts being there it means you can keep track what’s been going on. With emotion and tiredness, you can forget stuff and don’t want to keep repeating it.

Also I got some rice packets and oat porridge pots - anything you can just microwave or pour hot water into. There should be a parents room for this or a hot water tap. Hospital food can be grim.

OlderGlaswegianLivingInDevon · 31/05/2025 21:55

' happy as Larry ' that's good, really good
and you have a bed - that's good too

ThierryHwasthebest · 31/05/2025 22:07

Thinking of you and your family. I hope you manage to rest and get answers soon.

2chocolateoranges · 31/05/2025 22:12

Glad to yea he is settled, sounds like the hospital have a good plan of action for tests. Hopefully they pin point exactly what’s causing the problem quickly.

keep chatting to us all,

OchAyeTheNo0 · 31/05/2025 22:14

Sounds like you’re being well looked after but my goodness what a weekend.

PrettyPuss · 31/05/2025 22:14

Sending a big, warm handhold. All the very best to you and your son.

Mumwithbaggage · 31/05/2025 22:20

Wishing you and your ds all the best - you're in the best place and glad he's settled for a good night with his laptop.

HappyHedgehog247 · 31/05/2025 22:23

I'm so glad you have a plan and a bed and you will get a letter for the exams. Fingers crossed that they get to the bottom of things soon

thaegumathteth · 31/05/2025 22:29

Glad you have a bed OP I’ve done the chair ‘sleep’ before with ds and it’s so uncomfortable! Even if you don’t manage to sleep at least you should be more comfy.

Rockhopper1 · 31/05/2025 22:33

Just some more love xx

Angrymum22 · 31/05/2025 22:35

It’s interesting that he has some findings in his eyes OP, again optic changes are seen and often allow an earlier diagnosis of sub acute bacterial endocarditis. Hopefully they will be able to get to the bottom of it soon.
It’s good that he is resting and starting to relax, particularly re exams.
DS was diagnosed with a juvenile form of epilepsy, which thankfully he has grown out of but during the diagnosis process it was so stressful and difficult to shield him from the potential of life long problems. The same for my niece, she was 12 when she had open heart surgery. The decision was made quickly when her heart function dropped below safe levels. She didn’t attend the meeting with the consultant when they decided, the consultant advised no exercise or stress until her op. My sister recieved a phone call as she left the hospital from my niece to say she was going to weight training. You can imagine my sisters reaction. My niece was also very upset that she couldn’t join in the cold water activities on her school trip later that week.
She made a very quick recovery after surgery and went on to play football for her school and local team. The only problem she faces in the future is potential complications if she decides to have a family.

On a more reassuring note the RVI was one of the hospitals that DSis was given the choice of to have D nieces surgery. Along with Sheffield Birmingham and GOSH they are a centre of excellence and as such are run a little differently to local hospitals.

Newusername321567 · 31/05/2025 22:40

💙💙

Highfivemum · 31/05/2025 22:54

Sending lots of love and strength to you and your family ❤️

allthemiddlechildrenoftheworld · 31/05/2025 22:56

@HaudYerWheeshtYaWeeBellend can people please be mindful that this is a mum who is scared shitless for her son. try not to be scaremongering with horrendous ifs and maybes. unless you are a doc with the casenotes and test results in front of you, you should not speculate. no bad case scenarios should be voiced. we can all just pray and hope for the very best outcome for this young man.

WWomble · 31/05/2025 22:57

Oh bless you. Best wishes to all of your family and especially DS.

No exams is definitely the right thing, I think he may be able to be awarded grade predictions from school due to medical reasons. Amongst everything else you have to do please try and contact school first thing on Monday, or email now, Head of School, Head of Year, Head of Subjects impacted immediately and most importantly the Exams Officer. I’d be tempted to ring and leave a message as soon as possible. The sooner you can let them know the sooner they can tell you the evidence you need - which is probably easier to get to the medics whilst DS is inpatient. (Putting it down in the hope that it might be a prompt for you as when I’m under stress I can overlook the obvious.)

Zippidydoodah · 31/05/2025 22:57

Thinking of you and your son, @HaudYerWheeshtYaWeeBellend . It sounds terribly stressful for you all. 💐

anonymoususer9876 · 31/05/2025 22:59

Just sending you a hand hold and that your DS and you get some answers, it’s a simple fix, and you’re both back home soon x

Perhapsanothertime · 31/05/2025 23:02

HaudYerWheeshtYaWeeBellend · 31/05/2025 15:19

Apologies he has Edxcel Statistics written paper 1, exam on Monday.

He done really poor on his 1st math paper (higher) came home really frustrated and just said he knows he’s failed it 😞

Ive just told him , it’s a problem we will resolve another day, for now he just needs to concentrate on getting better.

Still waiting on consultant, once I know what we’re dealing with then I’ll email all involved regarding his exams, thank you everyone.

I was the same with my higher maths paper at GCSE. I took intermediate in year 10 then higher in year 11. Came out convinced I’d got a U but turns out I’d got a B, so he can’t know he’s failed it. May well be totally fine.

NewAgeNewMe · 31/05/2025 23:06

Just wanted to send you hugs after what must have been difficult to put it mildly. I remember when dc was in hospital (more than 10 years ago) I asked dh to get me some body wipes so I could freshen up when needed and I had a comfy tracksuit for the nights as I didn’t want to be in pyjamas.

Also change for vending machines and he’d bring me in a sandwich and some soup in a flask. We had access to the parents kitchen with a fridge and microwave so I could heat up meals if required.

my kindle and magazines were a help.

best of luck 💐💐

whatwasthatnoise · 31/05/2025 23:09

Even though he's 15 and (I assume) taller than you, I'm sure he's very pleased you're able to be with him day and night. He must be so scared.
I just want to add my wishes/ hand hold/chorus of positive thinking from this great community. We're here for you.

sideeyes · 31/05/2025 23:15

Lots of thoughts for you today x