What are you up to today if you have chronic illness?

[MewithME]

I do like the What are you doing today thread. But as someone with an energy limiting illness, I find myself marvelling at the level of activity that is beyond me.

Sometimes I feel sad about it even after accepting my illness for a few years now.

My week at work has been brutal and I'm feeling very weak and worn down. I am trying to find some inner peace.

This morning I managed a bath and ds helped when shopping arrived. I sat in the garden for a little while but newish neighbours were playing loud music which I found a bit stressful.

I've managed to put a wash on and made some lunch for us. I'm now in bed listening to some music festival in town floating on the breeze. There's sirens going off, so hope nothing bad has happened to anyone.

I'm going to lie down for a couple of hours. Hoping to watch a film with DS later. Pizza for dinner.

I found a nice new podcast called Shedunnit with lots of Agatha Christie in it which is up my street.

I may just lay here and listen to that for a while.

So if you have ME or LC or fibro or anything else that is a flipping funsucker of a thing to deal with, do share your little things. Our world is smaller but we are here.

I will add I know there are those worse off than I am, but not matter what we deal with, chronic illness is hard and it's hard to feel part of the world.

I’m on holiday from work today but weds is my usual day off when I have an outing with my mum - today is my brothers birthday so drove an hour to see him then to Tesco & M&S for a few bits. Had been trying not to nap today but feeling exhausted now so it might be a case of saying hello to husband and going for an hour or two

Not good here.. feeling very fluey, been in bed all day.

Oh no. Is this a flare of usual symptoms or do you think you have got a virus?. sorry you're feeling so grim.

It's a flare unfortunately. I've done a bit too much.

Yeah me too. I'm a bit on the edge. Been quite symptomatic today. Body aches, sore throat, noise intolerance, brain fog, tummy gurgling and not quite right.... I could go on 😬🙈 it's mad how this has become my normal.

I’ve also got a sore throat and I have to do a work dinner tonight. I would happily pay a million dollars to not do it but sadly I don’t have a million dollars :).

This illness is so cruel. I hope everyone in flares can get some proper rest.

A lot of what you are describing is me a couple of weeks ago with Covid. Still getting over the residual cough, sweats, no taste nor smell returning.

Morning everyone, hope today is a bit easier for us all. Yesterday I massively over did it with my son, niece and nephew at the park but I enjoyed every second of it so it was well worth it. So tired this morning, going to spend the day at home pottering if I can.

I have one more day tomorrow and then I will be doing full on pottering! Mad morning already with my son who had a bit of an autistic wobbly but we're ok enough.

Take care everyone. Hope today is kind to you.

I was glad I missed the family thing last night as feeling a bit better today despite hardly any sleep.

Keep faffing over doing a PIP MR- (the PIP people have been surprisingly helpful over my to-ing and fro-ing) have decided now to go with it despite the chance they might remove points or whatever. I will just have to try and think positive.

Had a horrible flare with no sleep. Not sure if it was the lack of sleep that pushed the flare or the insomnia came with the flare. Finally sleeping again (tapered steroids too) and feel sooo much better.

Any tips for better sleep?
Magnesium glycinate
relaxation exercises and going to bed when tired - not pushing past it and ending up wide awake again.

Yea the magnesium has been brilliant for me too.
I got this tip for inflammation of the body which I think may be helping.

Into a glass a half teaspoon of bicarbonate of soda and half a teaspoon of molasses, I'm using pomegranate molasses, fill with water.

It helps calm the inflammation in the body.
I have done it for a few days and can feel an easing of my aches.

Maybe a coincidence, but can't me do any harm.
Slept well which makes such a difference to me.

@Greenvases Thank you. Lemon, ginger, turmeric, black pepper and honey is another drink. Actually tastes okay.

We do that here too. Husband adds apple cider vinegar too.
I'm a big healthy gut person so date, walnuts and keffir are eaten.

I am mostly being very good with sugar too. Last night I had some of my friends delicious cake though, couldn't resist.

Intend to stop buying anything sweet here, my children can and will buy enough of their own sugary junk food.

If you take red onions/ginger sliced and boil in water for 10 minutes, drain them, allow to cool, add tsp honey, sprinkle of cayenne pepper. It is so soothing for the throat.

This sounds mad but its an old one that really works.
Put a cut onion close to your head when trying to sleep with a cough. It draws it out.
Onion straight into the bin in the morning.

Good morning all. I'm so tired I can't remember if I've posted here before but it's coning up on 'threads I'm on' so I must have done! I'm sitting in a patch of sun in a bath towel having 10 mins P&Q. I'm Divorced with 2 young people of 20 & 18. Both are Autistic & Dyslexic so need a lot of support. My Ds went into heart failure last summer & is still not well. 14 days ago I was also diagnosed Pericarditis Hypertension & Hyperlipidemia which was not good as I have a lot of work still to do. Today I need to rearrange my mortgage, print & send final version of formal complaint re Ds care & I'm way behind on OU access course I foolishly hoped I'd be able to do. Right now, I'm sitting on the sofa in a rare patch of sun (rural Scotland). I hope to dip in here more often & get to know you all x

Hello @pinkingshears . You have a lot going on! Do enjoy that peace and sunshine. We have to grab our bits if joy where we can.

Today is the first proper day of my long awaited annual leave. I feel absolutely exhausted. I was woken by ds at 7am and went back to sleep with the help of my heat pad and podcast.

I'm now having coffee in bed and know I must get moving but feel very weak. I have a GP appointment this morning to get blood results. I will push yo actually discuss my MEcfs today. Felt like she fixated on testing me last time. I don't think she's in denial about MEcfs unlike some doctors, I just think she's not confident in discussing it or else doesn't see the point as there's no cure.

Other than the GP, I think I will have to take it easy today. Over did it on Saturday so I'm suffering.

@MewithME good luck at the doctor's today! Glad you got back to sleep.

I was up at 4am with my IBS but managed to get back to sleep from 5-7am, still feeling rubbish, pains in stomach and tired. Fighting off anxiety!

I have an appointment at 2pm to get my nails done that I'm REALLY looking forward to so I hope I can drag myself through that.

Hi pinkingshears

I had a busy day with family yesterday so am exhausted today and still not really up (but aided by some cups of coffee) DH is getting ready for a work trip so staying out of the way of that.

I'm grateful it is cooler than it has been. there is even a bit of a cool breeze in the air which is nice.

I find buscopan fantastic on days like that. It settles everything down for me

Aw thank you but I can't use buscopan as I have IBS-C and slow transit so with buscopan stopping the bowel from cramping it only makes things worse for me in the long run.

I bought myself a shark carpet shampooer which arrived yesterday, I've never had one before. Really looking forward to using it today, I didn't get the upright kind as I wanted to be able to sit on the floor while using it to try and lighten the load.

Counting down the days to my surgery (which I’m terrified for) to hopefully free me of it

Oh wow. Must be nerve wracking. Rooting for you.

Admittedly I’m being a baby about it, but it’s also my first surgery. My chronic sinus issues have been ignored for decades, I finally saw a doctor who took it seriously and now I’m days away from them potentially being gone forever

Well, I'm absolutely exhausted and taking ds to cinema today He's now old enough that he doesn't want to be going between me and ex so much, so I feel I'm getting less of a break than I did at one time (though really that's not true because ex has always been unreliable so I've probably not had much break ever, if truth be told). ds autism is more obvious as a teen and he's snappy with me. It's hard going.

I'm feeling a little down I guess. I was looking forward to my annual leave but I have no headspace. I am craving just being alone without having to look after someone else and without having to think. But then I feel maudlin about my holidays with my little boy and maybe that time has gone or at least is coming to an end.

I'm feeling the weight of being a lone parent all these years. I'm watching friends start to retire with their husbands and have nice couples holidays. I don't know what I have to look forward to in the future. Being single is fine but single with chronic illness is lonely.

Anyway, I shall stop it, have my coffee, wash my face and put some make up on and go watch some very noisy dinosaurs.

Good luck today OP I can really relate to the parenting aspect. To everyone on here I hope you have a happy day today and manage to do at least one nice thing that you can enjoy just for you.

I am having to do exhausting but urgent life admin today while I have some childcare. It’s cooler which is a big relief because cognitively I feel very affected by the heat. Stress also so having this stuff hanging over me and struggling to start or finish it, makes everything mentally and physically feel a lot worse.

I had never appreciated how much stress and mental health affects me physically before becoming ill like this. It’s easy to get into a vicious cycle if you don’t feel up to keeping your paperwork or housekeeping going and then have to go all out to sort it out. So I am trying to pace myself with getting through that as well as pace with the other stuff of life not to exhaust myself further.