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If your child is autistic or has autistic traits ...

121 replies

miscelleni · 03/05/2025 13:31

  1. Do you and/or the child's father also have autistic traits.
  2. How did you meet? Was modern technology a factor in how you got together?

I'm asking because I've been listening to the new BBC podcast, The Autism Curve, which is about the exponential increase in autism diagnoses. In episode 1/2 they considered the data and explored how definitions and diagnostics have changed over time. But Episode 3 takes a step back and looks at the science of whether there could also be a real underlying increase with an identifiable cause. An academic from KCL says there is a strong genetic factor to autism, but that it is "unlikely" to explain the numbers (implying, I think, that genetics are random). Another academic, from UCL, says that if there is an environmental factor to be found then it is something that began in the 1990s and is most prevalent in high income countries.

It seems to me that, since the 1990s, people with autistic traits are much more likely to find each other and form relationships due to modern technology. And this is something that has increased exponentially with the uptake of social media.

I felt fairly socially isolated as a teenager in the 80s. I managed ok at school but was averse to phoning people or taking any first steps that might turn acquaintances into friends for fear of rejection. University was difficult for similar reasons. However, I started using email in my first job in 1993 and used it to keep in touch with course-mates from uni who I would otherwise have quickly lost touch with. One of them introduced me to someone she thought I would click with. We started emailing each other and I'm now married to him. We both have traits that probably lie somewhere on the autistic spectrum, as do both of our children, though not impactful enough for us to have sought formal diagnosis.

If I hadn't met DH in that way, I probably would have ended up with one of the many single males I've met in my tech-related job over the years, many of whom have autistic traits.

These days social media brings together many people with strong interests in things, from train spotting, to bird watching, to celebrity fandom, to history buffs, to comic con fans, etc etc. Could it be that the "randomness" of genetics is becoming much less random when it comes to neurodiversity?

OP posts:
RubyRubyRubyRubyAhAhAhAhAhAaaah · 05/05/2025 20:12

I have two children with autistic traits flagged by school and nursery / childminder.

My husband is undiagnosed, but I think he is actually quite far along the autistic spectrum. My sibling is a psychiatrist and says the same about him, so I'm not imagining it. I think I also have some autistic and nd traits.

I met my husband in person though. No electronics involved. We met at a nerdy university which is well known for mathematics and engineering though, so don't know if that has something to do with it

coxesorangepippin · 05/05/2025 20:15

More women attending university as well = more couples getting together and having kids

Nn9011 · 05/05/2025 20:27

miscelleni · 05/05/2025 20:04

Does getting a formal diagnosis unlock more support than an informal diagnosis? I can see how that would be true for ASD traits that are profound enough to warrant an EHCP, but in my experience "school support" is provided with or without a formal diagnosis - it has to be, because diagnosis can take such a long time on the NHS. There is also now self-help information online and in books which obviously doesn't require a diagnosis to access.

There is no informal diagnosis, do you mean self diagnosis? Some people may be able to access reasonable adjustments for symptoms without a diagnosis but to do that they have to be able to recognise they have symptoms of autism which is a problem in itself if you've survived to adulthood without knowing.

miscelleni · 05/05/2025 20:34

Sunnyglowdays · 05/05/2025 20:06

What do you mean by informal diagnosis? Diagnosis is a medical assessment and either you’ve been assessment or you haven’t.

In my experience school has been much more supportive and willing to put adjustments in place with diagnoisis than me just raising concerns.

I mean where someone has suspected autistic traits that are causing difficulties, either self-identified or noted by a parent or teacher. Often it is the trigger for seeking formal diagnosis but, in the meantime, schools that have good SEN support will respond to the difficulty itself rather than waiting for the diagnosis.

I realise that not all schools have good SEN support though.

OP posts:
Sunnyglowdays · 05/05/2025 20:44

miscelleni · 05/05/2025 20:34

I mean where someone has suspected autistic traits that are causing difficulties, either self-identified or noted by a parent or teacher. Often it is the trigger for seeking formal diagnosis but, in the meantime, schools that have good SEN support will respond to the difficulty itself rather than waiting for the diagnosis.

I realise that not all schools have good SEN support though.

I understand. I think it ‘s very much school dependant but especially with high masking children a diagnosis makes a difference. It shouldn’t but it does.

Jewel1968 · 05/05/2025 22:04

@miscelleni formal diagnosis has unlocked some additional support but DS has a diagnosis for 3 conditions including ASD. He also gets extra time in exams which is useful.

PawsAndTails · 05/05/2025 22:18

miscelleni · 05/05/2025 18:57

"It makes me laugh when DHs skeptical older relatives used to say things like ‘But you used to flap your hands like that all the time and repeat words and phrases over and over when you were little, and you’re fine!’ when questioning the validity of DS diagnosis."

I guess only your DH knows whether he felt fine or not. One of the podcast episodes (possibly episode 5) talks about how when autism is diagnosed in young children it is usually on the basis of how other people see them rather than on how they feel themselves. That is obviously different for adults who seek a diagnosis.

Here's a difficult question (feel free not to answer) - would you have still married him and had children with him if you knew he was autistic?

Now that more children are being diagnosed with autism, and given that it is genetic, I do wonder how the diagnosis (as distinct from the personality traits themselves) might impact their future relationships.

Edited

How it might impact their future relationships? If you mean romantic, one of mine is married and their partner is autistic.

I know so many ND couples. Often they didn't know till later on. Usually one partner got diagnosed after a child and it took longer for the other (usually the mother) to start realising they were also ND.

greenalf · 05/05/2025 22:26

I have an autistic adult child (diagnosed) and I have been diagnosed with autism as an adult. I met his father before I ever had regular access to the internet, but it wasn't a mainstream way to meet people, and if it had happened a decade later then I expect we would have been more likely to meet online - it was a natural way for each of us to communicate as we are both quite reserved in person.

I have 2 younger dcs who I had with my current partner. My eldest is likely autistic although not diagnosed. DH and I met in a bar/through a hobby. I don't think we would ever have got together online - he wouldn't have felt comfortable online dating and I would never think he was right for me on paper. But in person it worked! He works in tech and is likely autistic, but no diagnosis.

tellmesomethingtrue · 06/05/2025 02:22

SmegmaCausesBV · 03/05/2025 14:55

I'd say a large amount of ADHD and AUDHD kids I know were preemie babies - which is apparently common. As more survive we get a rise in the effects.
Also microplastics in food have effects, we see what calcification does WRT dementia/Alzheimers, so finding microplastics in every organ of the human body is something I suspect will be discovered to be having an increase in disorders in parts of the brain.

Autism is NOT a disorder. You are spreading fake information from your own opinion. You’ve no idea how many premature babies have autism or the other way around.

tellmesomethingtrue · 06/05/2025 02:25

RubyRubyRubyRubyAhAhAhAhAhAaaah · 05/05/2025 20:12

I have two children with autistic traits flagged by school and nursery / childminder.

My husband is undiagnosed, but I think he is actually quite far along the autistic spectrum. My sibling is a psychiatrist and says the same about him, so I'm not imagining it. I think I also have some autistic and nd traits.

I met my husband in person though. No electronics involved. We met at a nerdy university which is well known for mathematics and engineering though, so don't know if that has something to do with it

“Quite far along” ??? This isn’t how autism works.

tellmesomethingtrue · 06/05/2025 02:33

miscelleni · 05/05/2025 09:50

Yes, that's why I think its key to identify environmental factors that might be influencing genetics.

Meeting your life partner at university, or at a niche interest group, or in a niche job that attracts similar personalities, or online, may just marginally increase the genetic risk compared to a randomised pairing, and perhaps the more niche the interest, the higher the risk. Now that women are more likely to be fully functioning members of society rather than dependants to be randomly picked up and mated with, it's not difficult to see how that might have an impact over time.

But I think I need to qualify the word "risk". Episode 4/5 of the podcast covers autistic identity. Many autistic people at the high functioning end of the spectrum embrace their personality traits and value them. At some point I expect we will drop the D in ASD.

It’s already been dropped. It’s ASC - autistic spectrum condition.

PawsAndTails · 06/05/2025 04:52

tellmesomethingtrue · 06/05/2025 02:22

Autism is NOT a disorder. You are spreading fake information from your own opinion. You’ve no idea how many premature babies have autism or the other way around.

None of my autistic kids were premmie. Nor were they born to older parents. Looking at my family now that we know about autism, it's clearly been in the genes for quite some time.

sunshineandrain82 · 06/05/2025 06:07

We have 4 children.
one each from a previous relationship, 2 we share.
our older 2 (his and mine from previous) are autistic.
the 2 we share are autistic. These 2 have much higher needs then the older 2.

older 2 attend mainstream schools with very little support.
our son is out of school with a ehcp and nothing is suitable for him.
our youngest child is non verbal and is a special provision.

both DP and I are autistic although i also have ADHD.

it was child 3 being diagnosed that led us down the route of being diagnosed ourselves after professionals in his life suggested it. He was the first child to be diagnosed before our youngest followed shortly after. Our older 2 it wasn’t suspected till much later on when they started to struggle in ways we hadn’t seen previously.

I would also be willing to place a bet that both DP and I dad’s are on the spectrum as well.

DP and I met randomly at the cinema.

RubyRubyRubyRubyAhAhAhAhAhAaaah · 06/05/2025 14:47

Quite far along the spectrum meaning that his level of autism is quite significant / severe, although he is high functioning.

Did you think I was saying his autism is progressing like an illness? I was not. HTH

SmegmaCausesBV · 06/05/2025 14:50

tellmesomethingtrue · 06/05/2025 02:22

Autism is NOT a disorder. You are spreading fake information from your own opinion. You’ve no idea how many premature babies have autism or the other way around.

https://www.thesmallestthings.org/parents-experience-of-sen-support-for-children-born-preterm
"Evidence tells us that children born premature are at higher risk of special educational needs than children born at term..."

Parents experience of SEN support for children born preterm — The Smallest Things

https://www.thesmallestthings.org/parents-experience-of-sen-support-for-children-born-preterm

Somethingscintilling · 06/05/2025 17:36

@clinellwipe what is the classic engineer??

MadKittenWoman · 06/05/2025 17:58

Yes, more and more neurodivergent people are meeting and having relationships and children than previously. ND is genetic, therefore there is a massive increase.

miscelleni · 06/05/2025 18:26

SmegmaCausesBV · 06/05/2025 14:50

https://www.thesmallestthings.org/parents-experience-of-sen-support-for-children-born-preterm
"Evidence tells us that children born premature are at higher risk of special educational needs than children born at term..."

This link doesn't mention autism though. It is about SEN as a whole.

OP posts:
clinellwipe · 07/05/2025 02:59

@Somethingscintillingsorry I hope it wasn’t offensive. I mean the stereotype of an autistic person who is very good at STEM - both our dads are engineers (but struggle with socialising, rigidity and so on)

Somethingscintilling · 07/05/2025 07:24

@clinellwipe no not offensive fil is one and I've long suspected he has autism but I never knew the connection was a classic obvious thing

MysteriousUsername · 07/05/2025 08:21

I have 5 children. 2 have diagnoses - 1 has autism and learning disabilities, 1 has autism and adhd. Of the other 3 one probably also has autism (Asperger’s as was) and adhd, and the other 2 have traits but I wouldn’t say enough to get diagnosed.

It was when I was doing my sons assessment forms for autism and adhd that I sat there and thought “but this is me, I do all this” I then got diagnosed 5 years ago with autism. I haven’t pursued an adhd diagnosis because it involves talking to too many people!

My ex, the kids dad, is definitely on the spectrum. He has 2 kids from his previous marriage, one is also diagnosed. Their mum has adhd. His parents definitely were on the spectrum too. As well as various uncles and aunts. My kids cousins have various diagnoses too.

On my side it’s a bit harder, though my late brother definitely had adhd. My dad was adopted, so it’s hard to tell if his difficulties were attachment based.

My current DP has a few traits, but I don’t think would be diagnosed. His son is definitely autistic, reckons his mum is too.

I met my ex in the pub when I was teenager. I met my current DP through volunteering. So modern technology wasn’t a factor in either, but then I’m old so there wasn’t the tech when I met my ex.

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