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Fibromyalgia - be honest.

651 replies

Hellovation · 19/03/2025 21:16

I think I’m going to be diagnosed with fibromyalgia.

I had never heard of it, until the neurologist and GP both mentioned it.

Having now mentioned this to a few people and their reaction leaving me confused, some internet searches lead me to believe it is widely believed to be a non diagnosis and simply something in one’s head or a ‘lazy diagnosis’ because doctors are at a loss.

I was heartened to think I might have a diagnosis and understanding and way forward to get better and live my life but now I feel so sad.

Be absolutely honest- what do you think of fibromyalgia?

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BadgernTheGarden · 17/11/2025 21:28

Time40 · 19/03/2025 21:36

I think the pain and suffering of fibromyalgia are real but also think it's a catch all diagnosis for when drs cannot otherwise explain the very real pain and suffering. I was diagnosed 25 years ago

Personally, I agree. I had that diagnosis years ago, after several years of serious disability and pain. In my case, all my symptoms went away, very slowly, and now I am absolutely fine.

A friend has it and was told it might resolve itself in a year or so, but it never has she is in constant pain with it. There is no simple test for it so it is diagnosed by the symptoms, but it is a very real condition. You were lucky.

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