2020-2021 I kept attending A&E as I felt something was seriously wrong and my GP just wasn't getting it. I had to go as there was no where else!
Daily headaches leaving me in bed and waking me up feeling like my skull was being crushed.
My hair started falling out, as in massive patches of hair missing and I felt like I had bugs under my scalp.
I fell quite unexpectedly, losing my balance walking and ended up with a fractured elbow.
I was also gaining weight like crazy, lost all energy and had constant brain fog and fatigue.
Each and every time I'd sit down in A&E feeling like a fraud as it was either an Accident or an Emergency, but I wasn't exactly healthy either.
My GP just kept saying take some paracetamol, rest, blah blah blah. They even said I was depressed and referred me to talking therapy. No blood tests, no face to face consults.
In October 2021 I had this episode of vomiting, I couldn't keep any kind of liquid in and needed rehydration. No stomach bug just vomiting 18 times in 8 hours. In A&E that day they were doing HIV screening and I consented to blood being taken. I got my rehydration and anti-emetic, felt instantly better and went home shortly after.
2 weeks later I received a phone call from the specialist GUM clinic asking me to come in and repeat my bloods. I went in and was told my blood had tested 'reactive' for a marker in HIV. They needed to test me again, meanwhile asking me about my sexual history and general health. What followed was the most stressful period of my life, as that test also had to be repeated and I was convinced I was HIV positive. Turns out, after a few blood tests I didn't have the virus, I found out 2 weeks before Christmas 2021. But I did have something, and the Dr's at the GUM clinic were not able to say what.
Long story short, I have an autoimmune disease which I'm certain is what killed my mum back in 2000 at the age of 31. She went very ill very quickly and had the exact same symptoms as me. I was at the time also 31 and petrified.
It's a few years on, and I still don't have a name for what I have, but I know I'm not healthy. I know I take alot of medication to treat symptoms. The brain fog has gone, I can actually concentrate on work, my hair is regrowing (it's no where near as thick and my hairline is at least 2.5cm higher than before) and I've lost lots of weight thanks to mounjaro.
Because of my 'health anxiety' I am alive. This 'health anxiety' told me to sit in A&E to get help.