Alice in Wonderland Syndrome. Or, Fat/Big Hands. Anyone have this?

[Horrace]

It's a thing. It's real. I've had it since I was a child. A feeling when I'm relaxed or trying to sleep and the only way I can describe it is that my hands/fingers are huge and everything else is small.
I only experience it with my hands and it's not visual with me, but there are people who have visuals and experience the feeling in other body parts and objects around them.
I've never met anyone else who feels this.
It's really horrible.
I'm laughing typing this, it sounds so bonkers. I suffer with migraines so think it's related.
It's a real thing I promise.

I really want to know if others have this.

It is real. I used to have it as a child. Usually when I was run down, petrifying.

I used to have it when I fell asleep but not all the time. I love the feeling actually. I don’t think it’s that rare?

This is interesting! I've never had it but every now and then I will feel super tall like I've grown a foot overnight and sometimes when I'm trying to sleep I feel like I'm floating up to the ceiling. Not the same but a similar kind of out-of-reality experience. Brains are so weird!

Did you have big or small hands? I've not always been able to tell.
I'm in my 50s and been getting it a lot lately

Big, real sense of having to pinch myself and move to get my bearings. I used to get it when ill, feverish. How’s your health?

Oh yes, I get this when ill/ hungover. Very strange and I don't enjoy it! It helps to lay on my hands when I feel it.

I get this when I have a fever! It's horrible makes me feel queasy and only learnt it had a name a few months ago even though I've experienced it for years

I've been getting dreadful 3 day migraines once or twice a week for a few years. I've had an MRI and trying different meds constantly.
So I only found out last night that migraine sufferers are prone to it. So explains a lot.

I've just never found others that have this too.
I get it just sitting awake watching TV which is odd. I hate it.
The brain is so strange

I had it for the first time when I was about 7 and very ill. Genuinely thought I must be dying and I was so terrified but I didn’t know how to explain to my mum what was going on. Worked it out on Google a few years later, but to be honest I’m still scared when it happens now! Which is not very often thankfully but a few times a year, always when I’m trying to sleep.

I have this sometimes when I’m trying to go to sleep, but it’s my whole body. I feel like I’m turning into a tiny stick man. I thought it was just me, I’ve never mentioned it to anyone.

I think it happens when I’m feeling anxious or stressed.

I also suffer from migraines so possibly related.

Yes, I first had it a few years ago and thought I was having a stroke - now largely if I’m stressed or anxious, sometimes when v v tired. My right leg (never left) and both hands and for arms feels HUGE and heavy. It’s the weirdest sensation that I’ve never been able to describe or explain.

This thread makes me feel like I’m not bananas when it happens!

I read that Lewis Carroll had migraines so people wonder if he had it too, hence what helped inspire the book

Yes I sometimes get balloon hands, it's a horrible sensation isn't it?

I used to get this fairly often as a child, especially when tired or feverish. It hardly ever happens now though.

I used to get this as a child, always in bed and accompanied by a few other weird effects, and always the precursor to a horrendous night terror episode (not strictly a nightmare as there was no "narrative" to the dream, just a few images, always the same ones).

I also had regular migraines from the age of 7, where I would go sheet white, projectile vomit and blurred vision along with the excruciating headache. Maybe it's related? I was abused and neglected as a child so no medical input was ever sought. I still get migraines as an adult.

I used to have it as a child, called it the Big Little Feeling, years before I found out what it was actually called. It’s even referenced in Pink Floyd’s Comfortably Numb When I was a child I had a fever/my hands felt just like two balloons and when I was a young teenager hearing that for the first time I was like, “ Wow! So it’s not just me then!”

I’ve not had big hands, but as a child I used to lie in bed and experience loud silence. That sounds silly written down, but I don’t know how else to describe it, sometimes if felt deafening.

This was one of my weird effects, along with the big clumpy hands feeling, followed by weightlessness.

Yes! I've had it since a child and I really like it. I only found out a few years ago that other people get it too,and about the migraine link (which I've also had since childhood).

Me! I have it every other night or so. Always in the dark.

I have migraines and other neurological things (currently in the process of being diagnosed)

I used to get this when I was a child, usually when I was ill.

I've not had it since, but I do suffer from migraine aura as an adult.

Alice in wonderland syndrome is linked to migraines and some types of seizure disorders.
I used to get it a lot when I had a migraine attack. I think it's more common in children but some adults do get it. It didn't have a name when I was a kid. I think people just thought I was weird. I quite liked it though. As sometimes I could do it when I was bored almost on purpose. But other times it would lead to extreme sickness and seizures.

Yes, I used to get it as a child. Occasionally as an adult but it's been a while now. Makes me feel sick now but as a child I used to feel scared. I remember hiding behind the sofa and tucking my hands under me until it passed.

I used to feel like my lips and tongue were big as well as my hands.

I remember as a child laying in bed trying to fall asleep, and feeling as if I was a tiny little speck drifting in an endlessly huge outer space. At the time I wouldn’t have been able to articulate that, I just knew I had a very small, faraway feeling that was quite unsettling. I mostly grew out of it, but occasionally if I am really tired I start to feel like it’s on the edges of happening again. I think this is most likely to be Alice in Wonderland syndrome, which I only learned about as an adult as a healthcare professional.

That “loud silence” rings true for what I experienced as a child as well