Alice in Wonderland Syndrome. Or, Fat/Big Hands. Anyone have this?

[Horrace]

It's a thing. It's real. I've had it since I was a child. A feeling when I'm relaxed or trying to sleep and the only way I can describe it is that my hands/fingers are huge and everything else is small.
I only experience it with my hands and it's not visual with me, but there are people who have visuals and experience the feeling in other body parts and objects around them.
I've never met anyone else who feels this.
It's really horrible.
I'm laughing typing this, it sounds so bonkers. I suffer with migraines so think it's related.
It's a real thing I promise.

I really want to know if others have this.

I have had it all my life but as I've got older it's less " visual" and more and sinking sick feeling which alerts me to sit down/ drink water/ go outside. I thought it was just me but then found out it was called Alice in wonderland which absolutely describes my experience

@SoManyTeeth

Check out the big brains on you 😂

Maybe it is that. The brain is fascinating isn't it.

For info, I never had headaches as a child but dreadful nightmares.
But migraines all my adult life.

When I was little, I had recurring bad dreams which included feeling that my limb bones were very slowly lengthening and contracting. It was a horrible feeling which I thankfully no longer experience.

Another migraine sufferer who gets it occasionally usually hands but sometimes other bits or all of me!

Yes indeed I had that as a child. I grew out of it as an adult. Enormous hands. I have no idea what causes that.

I got this regularly as a child when I was feverish and found it terrifying. It still happens today when I’m very poorly (last time was when I had Covid), but I just kind of detach and notice it these days: “oh yeah, there’s the weird boxing gloves for hands feeling, I must be really ill then”.

Yes I've experienced this and have done since I was a child. I used to feel unsettled when I was younger but just distract myself now on my phone or listen to a podcast if it happens. It's always when I'm trying to get to sleep in the middle of the night. I suffer from migraines too.

I've read about this and used to have it as a kid. It's so interesting to hear people actually talk about it!

It's never been diagnosed (is it even a diagnosis?!), but after researching it both DH and DS2 get it. There's no pattern to them getting it, not ill/feverish but perhaps tired?

I used to have it as a child. I would go between feeling as large as the universe and as tiny as an atom. I also used to feel I had an enormous leg.

Oh my god! I never knew anyone else had this! It used to cause me such distress. I haven't had it for years now, but I had it frequently up to my late teens and then occasionally throughout my twenties and thirties. I used to have to get out of bed and hold something like a book in a vice grip to help. Awful.

I had this when I was a child. My mum always said it meant I was tired.
It always happened when I was in bed at night. Everything looked tiny and very far away.
It happened when I was about 7 or 8, can’t remember when it stopped but I don’t think I had it as a teenager.

As an adult I’ve had migraines since my 20s and can feel quite spaced out and detached if I’m tired or stressed. I’ve never thought of the connection until reading the thread.

Yes, I sometimes get the sinking feeling too. I put it down to spurts of anxiety, but perhaps a bit of AIWS breaking through on occasion!

I'm in the office today. Been asking people if they've ever experienced anything like this as a child.

Not one person. They all think I'm nuts

Yeah that's why I never mention it in real life!

I get it occasionally. I can feel myself becoming tiny (it's all over rather than just part of me). Such a weird sensation, another migraine sufferer here.

I have epilepsy & have that sensation as a prodrome to a seizure. Its caused by brain activity in a specific area of the brain & can be seen on an EEG.

If you don't have epilepsy it's completely normal & very like deju vu - everyone experiences it at some point.

My grandmother had epilepsy and me, my Mum and my daughter all get migraines. I've always wondered if there's a link.

Yes I did read that people with epilepsy have it.

It's just nice to know that we are not all mad.

@Serencwtch

Can I ask if you get this feeling as a warning to a seizure? I assume that's what you meant by 'prodrome'

I had this once when I was about 10. I sleep walked downstairs. Mum and dad were really small and I was very tall looking down at them. A couple of years later I started having migraines.

This is so interesting. Brains are bizarre
I have a feeling in bed with my migraines that I am lying on a huge slope, so my head feels it’s at the top end of an imaginary very steep angle when really I am lying completely flat. I often can’t move my head even slightly without feeling like the room spins.

Is any of this connected with that horrible falling through the air feeling I used to get as a child in dreams when I would ‘hit the ground’ and startle awake feeling very shocked I wonder.

I also had this as a young child when dropping off to sleep - and recall often getting anxious that I wouldn't be able to play the piano, despite never having had a lesson in my life.

Yes, exactly this. I also get very scared and panicky.

That's exactly how I describe it .
I love that feeling , hadn't happened in years